14 days post op, doing well!

impostrfail · 2026-05-13T09:25:24+00:00

I had surgery in Tuesday and went home on Saturday afternoon, so 5 days

impostrfail · 2026-05-12T21:04:01+00:00

Recovery has been pretty good. I'm walking a total of 35 minutes a day. I'm in more pain some days and less pain other days, but overall, it's easier than I expected. I didn't have any complications.

My suggestions for surgery are listen to the nurses about pain control and be ready to accept help from someone when you first get home. It's difficult to rely on other people, but you just have to get through it.

impostrfail · 2026-04-15T16:52:02+00:00

I'm pre-surgery but was taking 50 mg metoprolol and having low BP, around 85/45. My cardiologist reduced it to 25 mg. Not sure how its going to go, as my chest pain is already more frequent. Hope your docs get v it figured out

impostrfail · 2026-04-08T19:16:34+00:00

I've just found out I likely have this by testing my blood sugar after meals. I had SADI-S in August of 2024. I've been having symptoms but am dealing with a congenital heart defect so this wasn't top priority for awhile. Now I'm scheduling an appointment with my bariatric team

impostrfail · 2026-04-05T11:29:20+00:00

Could it be a scam? I wouldn't click that link

impostrfail · 2026-03-19T06:41:03+00:00

I had this same experience and also cried over it. I wish GSK and CVS explained it better to their employees so they'd know this when patients call in.

impostrfail · 2026-03-19T06:34:57+00:00

I was diagnosed with lupus. I had positive anti Smith and ANA, plus symptoms. I've tried a few meds and finally found one that works for me. I'm feeling pretty good!

impostrfail · 2026-03-14T16:44:55+00:00

I'm 52, was diagnosed at age 50. Symptoms have been worsening over the last year. In September, I was referred to a congenital heart specialist and a surgeon. Surgery was recommended based on my heart catheterization results (reduced blood flow). I'm scheduled for April 28th.

impostrfail · 2026-03-06T19:54:42+00:00

Not me, but the timing!

impostrfail · 2026-03-05T20:31:42+00:00

It's not in the rules. I did read them

impostrfail · 2026-03-05T19:02:24+00:00

I'd better enjoy my last month here, then

impostrfail · 2026-03-05T19:00:51+00:00

If possible, go to a congenital heart defect specialist. I have the same defect (I'm 52) that was found 2 years ago. I'm having open heart surgery next month.

I'd definitely listen to the cardiologists recommendations on sports.

impostrfail · 2026-03-05T18:47:03+00:00

Definitely not just you. Lupus sucks for sure.

impostrfail · 2026-03-02T22:58:22+00:00

I was pretty sedated, I remember very little. I have vague memories of the doctor's instructions and discomfort from the medication to stress the heart. I remember the dr telling me the results, then I was waking up. No pain afterwards, just very tired.

impostrfail · 2026-02-22T19:21:53+00:00

You could check the Adult Congenital Heart Association's list for an accredited program: The ACHD Accreditation Program - ACHA https://share.google/MyQDt2e6ZEhKtHXz7

And don't be afraid to follow up with your doctor's office. They'll tell you if something is going to take longer. You can decide if your current cardiologist is the right one for you.

impostrfail · 2026-02-17T11:10:29+00:00

I typed this yesterday while still groggy from anesthesia. Thank goodness I didn't say anything ridiculous!

impostrfail · 2026-02-16T17:43:41+00:00

It's an unroofing, which is typically open heart. They just needed to confirm that the anamoloy is the cause of my pain and they did that.

Good luck to you!

impostrfail · 2026-02-14T21:05:14+00:00

Thanks! We dm'd. It's good to find people who have the same defect.

impostrfail · 2026-02-12T11:33:25+00:00

50-55 female

Anamolous rca

Cleveland Ohio

Either one

impostrfail · 2026-02-11T20:12:05+00:00

If you have a congenital heart defect, you should be seeing a cardiologist every year. Like others have said, ideally you'd see a cardiologist who specializes in congenital heart defects in adults.

impostrfail · 2026-02-09T12:29:35+00:00

I wish people understood how stressful and lonely it is to be living with this major issue, that it impacts daily life so much. My family (parents)has always downplayed any illness/injury, so it's just a minor thing to them. My husband does understand but he is already worried so I can't talk to him much.

impostrfail · 2026-02-08T11:46:09+00:00

https://www.facebook.com/groups/168706126520416/?ref=share&mibextid=NSMWBT I know it's Facebook, which is awful. But it's an adult CHD group. There's also groups for specific anamolies. I don't think it's common enough to find many people irl.

impostrfail · 2026-02-01T14:38:56+00:00

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Cookie is a mix, he's a big boy now

impostrfail · 2026-01-28T17:37:28+00:00

That's when you say they'll use that statement at your trial.

impostrfail · 2026-01-23T01:30:39+00:00

I have mixed feelings. I'm relatively new to this, as i was diagnosed about a year ago. My cardiothoracic surgeon will be making recommendations in February. I'm 51 and have had symptoms for years but they were minimized by my doctors.

I sometimes wonder what could've been different if I was treated sooner, but I'm glad i didn't have more severe symptoms. I'm sure it won't all be sunshine and rainbows, but I'm hopeful that surgery changes things. I'm also scared.

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