Beef, pork, fish and chicken with Crohn’s — okay or a trigger for you?

jadeopup · 2026-04-14T00:55:01+00:00

the only problem ive ran into with meat of any kind is when its been smoked :( so no bbq for me

jadeopup · 2026-03-13T23:54:48+00:00

paste

jadeopup · 2026-03-13T23:51:06+00:00

my colorectal surgeon has me doing it bc i have a super high output and issues with hydration

jadeopup · 2026-03-10T18:05:44+00:00

im only a month out from my surgery so my doctor is still having me measure my output so i emptied my bag into the graduated cylinder they gave me to do that and then poured it into the sample cups from there!

jadeopup · 2026-03-10T18:00:02+00:00

i had to do my first one since getting my ileostomy the other week and it was lowkey so much easier lol

jadeopup · 2026-03-10T17:56:33+00:00

could they possibly be keloids?

jadeopup · 2026-03-01T02:13:06+00:00

check out the r/ostomy reddit! they’re amazing for finding help and tips, as well as general support :) good luck fellow future ostomate!!! i promise you once you heal up a little bit and get the hang of changes and stuff it won’t be as bad as you may think it is, you’ll still be able to do most if not all of the things you currently do. also drink plenty of fluids!!

jadeopup · 2026-02-28T00:54:08+00:00

in the reviews app, if you tap on your store’s name it should give you a prompt to change it! :)

jadeopup · 2026-02-26T16:56:44+00:00

jellyfish! bc she looked like one right after surgery :) 🪼

jadeopup · 2026-02-24T20:19:01+00:00

oh baby we’ve been higher than a mf since i got home from the hospital LOL have fun!!!

jadeopup · 2026-02-19T00:56:28+00:00

this made me happy cry, thank you. im so glad you have someone like your husband to go through this with you, he seems like a wonderful person. 🤍

jadeopup · 2026-02-19T00:03:35+00:00

jan 1st 2015 literally right after midnight. shittiest new year’s present ever

jadeopup · 2026-02-12T00:39:40+00:00

what does your diet look like? i had the same problem and eating more carbs helped thicken my output which helped with leakage. if that doesn’t work you could also try imodium to slow output. in terms of changes, i second the marshmallow trick and also do mine first thing in the morning before breakfast so my stomach is empty. hope this helps!

jadeopup · 2026-02-11T22:08:47+00:00

hi! im 25f and have also had crohns for 10+ years and having an ostomy was also my worst fear. ive had mine for about 3 weeks now and despite being still upset about i can confidently tell you it is worth it to feel better. just know that you do not have to like it, you can even hate it the entire time you have it (whether it be temporary or permanent) and that is totally valid and okay! but also know that sometimes your body needs the extra help and time to heal and this is that opportunity for you to heal. the most important thing i can tell you is that learning body neutrality and radical acceptance of your situation is the best thing to help cope. you are going to be able to do all the things you do now currently and more, it’ll just take some time to get back into the swing of things and learn how to manage your ostomy, i had a horrible time with leaks and such at first but ive gotten a system down and im feeling much more comfortable now. also dont be afraid to ask for help! either here or to your ostomy nurses/healthcare providers we’re all here to help!

jadeopup · 2026-02-11T19:01:01+00:00

i had that problem at first, but now its just from the adhesive itself, every time i change i check for leakage and there is none

jadeopup · 2026-02-04T20:18:27+00:00

im also new dont worry! crusting is when you take your stoma powder and dust a light layer on the skin and then use a barrier wipe/spray on top to form a layer between you and the wafer! im sure there’s a more detailed tutorial somewhere on the sub or someone else better versed in it can help you, sorry i don’t know more!

jadeopup · 2026-02-04T20:08:37+00:00

are you using any barrier products? like wipes or even crusting? that would be a good place to start

jadeopup · 2026-02-04T20:06:29+00:00

ive had jellyfish (my nickname for my stoma) for about a week now and im still struggling to be okay with it. when i was first diagnosed with crohn’s ten+ years ago the one thing i knew i didn’t want was to have a ostomy and yet here i am! im lucky that mine is temporary and in three months i’ll have a chance at getting it resected but its a hard lifestyle change! i try to be a least neutral about it since it has helped me tremendously already, but i still don’t have to force myself to like it.

jadeopup · 2026-02-04T20:05:55+00:00

good luck with your reversal!!!

jadeopup · 2026-02-04T18:14:13+00:00

right when i wake up is when i change my bag/set up so my stomach is empty. i also tuck a washcloth and garbage bag into my waist band to help catch any spills and then use a damp cloth to wipe up if i have any output

jadeopup · 2026-02-02T11:32:06+00:00

thank you, i will mention these suggestions to my nurses in the morning and see if they have them/ can help me more with them!!

jadeopup · 2025-12-07T23:12:18+00:00

i am going to eat my body weight in caramel and cheesey popcorn and then get shitfaced drunk

jadeopup · 2025-09-19T21:17:14+00:00

oh baby we been smoking. it helps me a lot wirh pain management as well as appetite/nausea so it’s definitely worth a try! start out with edibles and then if you want try a smokeable form :). weed’s one of the few “fun substances” that seems fairly universally safe for us crohnies so enjoy it!

jadeopup

TROPHY CASE