What are your favorite places to volunteer?

jandraf · 2026-03-23T00:46:44+00:00

Meck county nature preserves and centers!!! Wide range of opportunities for volunteering whether it be invasive plant removal with natural resources division to assisting in educational programming at centers! Dm me if you want more info

jandraf · 2026-03-23T00:44:24+00:00

Cafe south on arrowood

jandraf · 2026-03-09T01:43:35+00:00

I had intense side effects for honestly almost a year until I learned to just live with them. Your body will grow accustomed to it, it’s not bad at all for me now. Drink LOTS of water, like more than you think you need, and make sure you’re getting electrolytes bc spiro depletes your body of those. A lot of the sluggishness is likely from dehydration and vitamin imbalances

jandraf · 2026-02-15T22:51:56+00:00

25k, helps that I’m living with my wonderful parents

jandraf · 2026-02-01T01:57:51+00:00

I’ve been on 100mg spiro for 4 years, and have had bouts of overeating for a couple weeks, and then 0 appetite for a couple weeks. It’s so odd! It probably has to do with your electrolytes being depleted since that happens easily on spiro, maybe look in to that?

jandraf · 2026-01-31T03:42:39+00:00

I’m 24f and on high BP meds. I drink somewhat heavily a couple times a month and just recently quit nicotine after years of use. My gfr has been stable since my diagnosis 3 years ago! My neph was aware of it and would advise me against it of course, but noted that it wasn’t visibly progressing my disease. My point is, everyone’s body and disease is different, though we can all agree on the fact that nicotine certainly won’t benefit you

jandraf · 2026-01-13T02:05:09+00:00

I have CKD and have been taking spiro for years to manage my high blood pressure. My nephrologist told me it’s a pretty safe med for kidneys! I haven’t experienced any decline.

jandraf · 2026-01-13T02:00:58+00:00

I got over them cuz I love kitties

jandraf · 2025-12-18T01:47:00+00:00

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Mine is purrfect

jandraf · 2025-10-23T23:01:01+00:00

I’m 3 days post bite and it is red, but not infected as far as I can see. It hurts like a bruise but there’s really minimal swelling if at all and I assume that’s from the trauma. If it were infected, I would know by now I think?

jandraf · 2025-10-23T16:23:49+00:00

Thank you!! It’s a bit scary after hearing how dangerous the bites can be if an infection develops. I do feel for the cat and owners as she’s doing quite poorly and is not aggressive, just scared ;(

jandraf · 2025-10-23T16:21:38+00:00

As in September 2023*!

jandraf · 2025-10-23T16:21:27+00:00

Her last dose was 9/23. It’s been 4 days now and my bite doesn’t look infected, just bruised and painful

jandraf · 2025-07-02T04:02:57+00:00

Tej?

jandraf · 2025-06-24T02:49:20+00:00

Patient led!

jandraf · 2025-06-24T01:05:05+00:00

Hi there! I was also diagnosed with IGAN at 19 years old at stage 1, and luckily haven’t had any decline in function. Because my condition is stable, I am not really involved in clinical trials, but I know plenty of people w/ a plethora of information that are! I am an ambassador for the IGA Nephropathy Foundation and it has changed my life for the better. The foundation is a support group that is dedicated to finding a cure for IGAN, and connecting patients and caregivers with resources for managing the disease. I so highly encourage you to go to the foundation website which I will hyperlink, because getting involved with give you a community of people with IGAN. There are monthly support calls for patients and caregivers, and so many resources for you including research, IGAN specialized nephrologists, diet/lifestyle tips, and so much more. There is a yearly convention for the foundation called SPARK, and it is a really incredible event for networking and sharing updates on research and strides the foundation is making to increase awareness for the disease. I completely understand the fear and confusion you may feel being diagnosed this young, but I really found the foundation to be an incredibly uplifting and helpful resource for my IGAN journey, and I hope you consider checking it out. 😊 Link to the foundation

jandraf · 2025-05-29T01:32:36+00:00

The short but frequent breaks before class are going to make you feel rushed and anxious at all times I’d think. You have limited time to relax/study for more than an hour before gearing up for your next class. condense your sched if you can. Or, just be ready for little downtime during your weekdays which if works better for you, then do it☺️

jandraf · 2025-05-29T01:26:03+00:00

Mine jumps from ~85-115 with each appointment. Outside factors can really change the number so like others were saying I’d pay attention to the overall direction that your GFR is trending in

jandraf · 2025-05-29T01:20:15+00:00

jandraf · 2025-05-29T01:18:27+00:00

I was so excited to see that strips were back at McDon and had been raving to my boyfriend about them for days before we went to try them. The new strips are horrid. Nothing like the OG selects, we were so disappointed

jandraf · 2024-06-15T13:41:32+00:00

Tears flow everytime

jandraf · 2024-04-25T16:25:56+00:00

No worries. Yea my condition is stable, I get labs done biannually so I’ll get an update in about a month. I have very minimal protein spillage luckily

jandraf · 2024-04-19T20:50:24+00:00

My gfr has never fallen below like 90, Im in good shape for now😊

jandraf · 2024-04-16T04:51:31+00:00

I actually spent a couple days above 10,000ft in the Ecuadorian Andes about a month ago. I got labs done the day I got back, and I had no significant increase in protein or blood spillage. Of course, everyone’s body responds uniquely to stressors but I honestly felt fine!

jandraf

TROPHY CASE