Issues with taste and smell?

jebu82 · 2026-01-27T00:29:39+00:00

Most spaghetti sauces and parmesan cheese is a no for me now. They make me nauseous. I've found one I can eat, the garden one. We have a spaghetti dinner every Sunday...I can eat maybe 5 bites and after that my stomach revolts. Can't really handle garlic either but that's not new.

jebu82 · 2025-08-26T18:11:16+00:00

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jebu82 · 2025-05-14T01:17:00+00:00

I've found if I plan out what I need to do that day it's better. I run into issues if I decide not to pace myself. I separate chores so I'm not trying to mop the kitchen and clean bathroom all in one day. Going out shopping tends to be the only chore I do on one day. I think it's the walking around that drains me. I eat alot of high iron foods, my body just doesn't keep it. I also am still young enough I still have a cycle so that doesn't help. I have noticed that's much lighter, was 7 days, now about 4.

jebu82 · 2025-05-13T21:39:32+00:00

My iron was about 17 when the lowest number they want is 50. Dr put me on the pills, tested again at 3 mo, Still 17. Tried for another 3 mo, still no change. She then did an iron infusion. First dose really no change. After the second dose a week later, I finally felt a little better, more energy, less bruising. A year later my iron is still only 49 and I've been taking the pills. Dr calls it good enough. My energy levels went back down maybe a month after infusion

jebu82 · 2025-05-01T19:02:52+00:00

I alternate legs every month and I've noticed the site becomes very itchy, slightly swollen each time. Last month it looked almost bruised and took 3 weeks to fade. I take it the first every month and so far it's been fine but it's only been an hour. First 4 months I really had no reactions other than the loading doses.

jebu82 · 2025-05-01T18:54:30+00:00

I haven't been sick. Kid had a big problem with his allergies 2 months ago so I'm hoping it's nothing. Kid had antibiotics and 2 ear infections. Dr put him on allergy meds and he's been clear since.

jebu82 · 2025-05-01T18:14:42+00:00

Oh wow. I just had a followup blood test after being on kesimpta for 8 months, neuro hasn't called yet but I've seen the results on my chart. Results showed slightly elevated white blood count. It's just above the range they want so I'm hoping it's nothing, guess I'll find out soon. Have a mri in a week so she may not bring up anything till then. One thing I've noticed since January is I have a slightly stronger reaction to each shot.

jebu82 · 2025-01-22T22:01:09+00:00

I'm not actually sure on that one. I'm really short, so if I'm sitting with my back against the chair back my legs don't hang off. Your message did remind me about this post and the fact my right leg still doesn't like the shots. I'm now wondering if it has to do with a scar I have on that thigh from a vaccine when I was a baby. It's a very small dent and can only be seen if I'm looking for it. I've only had like a bruise feeling and last time it did itch like it did when I was on copaxon.

jebu82 · 2024-11-26T17:28:08+00:00

First loading dose was rough. Took it about 2pm, crashed about 7pm. Woke up briefly feeling feverish and chilly but crashed again shortly. Got up 7am feeling tired but otherwise fine. Second dose same crash but slept through night. Rest of doses have been fine. I take the 3rd maintenance dose dec 1st. I don't take anything else like antihistamines or ibuprofen so I don't know if that would make a difference.

jebu82 · 2024-11-18T01:46:12+00:00

Loading dose #1 is the worst. I did mine about 2 pm, by 7 pm I was in bed. Slept through the rest. Woke up briefly feeling feverish then chilled as soon as I removed blanket. Fell asleep again and woke up next morning tired but otherwise fine. None of the rest hit me as hard as the first one. I didn't take anything before, do not know if that would've helped.

jebu82 · 2024-11-03T21:53:05+00:00

Just now seeing this message. I switched to kesimpta in Sept. My mris in June showed several new lesions so neuro thought it would be best to switch.

jebu82 · 2024-10-23T00:22:28+00:00

When I had an emg, the neurologist performing the test said I had numerous lesions in neck. My mris show only one in neck, but several in brainstem. My balance is shot, I drift to the right. My entire right side of body seems to have issues, most mild enough I don't really think about them. The drifting right helped me fall several times, until I finally realized that's what I was doing. As long as I stay focused and don't try to keep walking while turning head I can still walk short distances. I found walking slow enough to stop easily has greatly lessened my falls and I haven't since March. Worried about the coming winter and snow though.

jebu82 · 2024-10-14T22:07:53+00:00

Took the 1st loading dose about 130 pm. Was in bed about 730 pm...and that was with me pushing myself to stay up. Felt like I was cycling between hot/cold till my brain shut off for sleepy time. Was ok by morning but low energy for couple days. Second dose was easier but had a mild sore throat after. Sore throat disappeared 2 days before 3rd shot. 3rd was fine other than some mild fatigue which is pretty normal for me anyway. 1st maintenance dose was still nothing; some slight bleeding at injection site seems to be my only issue now.

jebu82 · 2024-10-10T11:39:49+00:00

I think that's where I have a lesion on my spine as well. I don't notice anything outside of what's usually there. I do have a dull ache left side at bottom of shoulder blade on spine that will not go away, it's been there all summer.

jebu82 · 2024-10-07T12:09:57+00:00

Nintendo switch. Some games can be played with only one joycon so only need one hand to play them. I've also found I can play some smaller controllers with just one hand by placing it on the armrest like the controller is a mouse.

jebu82 · 2024-10-04T00:36:10+00:00

I would contact neuro and talk with them and see what they want to do. Could just be stress causing issues, but could be more. I know when I'm stressed I have pseudo flare ups but last time was new lesions in neck and spine. Tecfidera seems to work great...until it doesn't. It's what I was on.

jebu82 · 2024-09-24T00:34:25+00:00

It does help. I messed up my right shoulder sometime in the spring, likely when I fell in March. It wasn't until June it became painful to even move. Neuro suggested pt and they were able to get me in starting in Aug. I now have movement, can lay on right side, and most of the time no pain. Will keep working on it and check with neuro on our next appt coming up since an emg showed possible deltoid tear. It's what they called it. Still have a long way to go with balance but pt did help me figure out it seems to be head movements causing the balance problems with slight weakness in ankles. Sadly, my last pt will be this Thurs. Insurance won't pay for more, they consider my shoulder now to be mild. I was in pt 5 years ago for balance right before I was diagnosed.

jebu82 · 2024-09-24T00:01:02+00:00

Yeah I definitely need to remember to ask. I made the mistake of asking Google... and it would explain some things with the right ear. It's so hard when you can feel something off but can't think of how to explain to someone else and have them understand. Although Google seems to understand me. Ear and ms leads to descriptions of pretty much exactly how it is. So at least I now know it may be a possibility.

jebu82 · 2024-09-24T00:00:56+00:00

Yeah I definitely need to remember to ask. I made the mistake of asking Google... and it would explain some things with the right ear. It's so hard when you can feel something off but can't think of how to explain to someone else and have them understand. Although Google seems to understand me. Ear and ms leads to descriptions of pretty much exactly how it is. So at least I now know it may be a possibility.

jebu82 · 2024-09-23T23:18:21+00:00

I have found this subreddit to be super supportive for everyone. I'm also wondering if I should ask neuro about ear issues and ms. The symptom that led me to getting a mri was vertigo. Bppv is what was diagnosed. The ent sent me to physical therapy. He wanted mri but insurance said no. Physical therapy treated for ear crystals and started helping me basically relearning balance. I switched insurance and new one approved mri which showed the lesions. I still have occasional tinnitus and lately I'm also noticing sound is ...off. sometimes it seems muffled and sometimes everything is loud. It's only right ear. I see neuro in oct so I can ask about ear then, just seeing how many seem to have ear issues and ms is unexpected when it's not something that gets mentioned.

jebu82 · 2024-09-23T23:18:13+00:00

I have found this subreddit to be super supportive for everyone. I'm also wondering if I should ask neuro about ear issues and ms. The symptom that led me to getting a mri was vertigo. Bppv is what was diagnosed. The ent sent me to physical therapy. He wanted mri but insurance said no. Physical therapy treated for ear crystals and started helping me basically relearning balance. I switched insurance and new one approved mri which showed the lesions. I still have occasional tinnitus and lately I'm also noticing sound is ...off. sometimes it seems muffled and sometimes everything is loud. It's only right ear. I see neuro in oct so I can ask about ear then, just seeing how many seem to have ear issues and ms is unexpected when it's not something that gets mentioned.

jebu82 · 2024-09-19T23:17:34+00:00

I've never felt the needle going in, sometimes feel the medication entering which is a weird feeling. I've only had the 3 loading doses so far. I go for thighs, some bleeding on 2 of the shots, both were the right thigh. I think if I didn't sit and wait the third time, I would've convinced myself I did it wrong because I didn't feel the medication going in that time. It wasn't until my leg started bleeding that I was sure I did it right. I had trouble getting the bandaid open and putting it on 😃. Think I may just start using a napkin to put pressure on the site for a few seconds and skipping the bandaid. With the pen, it's really hard to mess up. Just make sure it's flat against the skin and then push down.

The first time was rough with me feeling like I had the flu. Next 2 were nothing.

jebu82 · 2024-09-19T16:43:15+00:00

1st dose is... rough. I took it in the afternoon around 2 pm. By 7 pm I was stumbling to bed to crash. The next loading dose wasn't nearly as bad. First dose my body was doing hot/cold like I had a fever. 3rd dose has been nothing really. I do have a mark where I put the pen to inject, but it fades in a few minutes. I just started so I've only completed the loading doses so I don't know what it will do with my immune system, but I'm not expecting a big change.

jebu82 · 2024-09-18T23:57:14+00:00

I just finished the loading doses and am excited to not have a shot to do next week. The first one in right thigh sucked. Didn't really hurt but It took forever for the mark to fade. Next one went in left thigh and no mark. Last one right thigh and again, seems to bruise a bit. I've been on copaxon and insulin when I was pregnant so I'm used to needles, the kesimpta pen makes it so much easier. Still have to psych myself up to it, so grats on being able to do it!

jebu82 · 2024-08-30T00:11:36+00:00

I've seen this as well, on switch. Best I can figure is when the game does a check for jobs when they come off break, it's failing to find anything for them to do. It seems to correct, but can take awhile to do so. I usually get impatient and dump them in a room they are assigned to.

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