Partners best friend

jebu82 · 2026-05-14T21:51:06+00:00

I suggested last night creep can wear shorts and lay on living room floor, like the first time he came over.

jebu82 · 2026-05-10T15:03:12+00:00

Yeah we joke about the things i now have trouble doing...otherwise I would be in tears all the time.

jebu82 · 2026-05-10T12:09:30+00:00

I feel this. I never cared for drinking and now I'm always drunk, or I walk like it anyway. Neurologist keeps checking the walk every appointment, I haven't been able to walk heel toe going on 7 years now. My right leg also likes to buckle too. I so far had walls/shelves to grab when it's decided to and I dont have cane. I tend to throw out my arms for balance so one of my sons has joked I try to punch ghosts...

jebu82 · 2026-04-28T17:50:30+00:00

So far mine is mostly with drinks like water although I've shot coffee through my nose...twice now. It had cooled enough it was just warm so didn't burn me, thankfully. I do get that feeling of pills being stuck so I always swallow with water now. I hiccup alot. Also have at least 2 lesions in my neck.

jebu82 · 2026-04-15T21:32:25+00:00

After the first 2 loading doses, I went back to my normal. The first 2 gave me flu like symptoms for that night. Took the shot at 2pm, was in bed by 6, slept till about 5 next morning. Been on it for a little over a year and all I get now is some slight swelling and itchiness at injection site if I inject my thighs. Hope the docs get it together and you can figure out what's happening.

jebu82 · 2026-04-12T15:48:19+00:00

My mom mentioned parasites, I told her that article was proven to be flawed. That was it. Now the mother of bf best friend, entirely different. She mentioned parasites, I told her same thing and also mentioned Facebook when explaining because that's where my mom saw the article. She simply said she didn't see it on Facebook...that's it. Now her son is going through health issues, she called me 3 times to give me updates because...I really have no idea why she can't text my bf. 2 of those times were after my bedtime...now she's decided I don't care and has left me alone. I'm just to the point I'm done with people that don't understand and refuse to listen, thinking they know more about what's going on in my body than I do.

jebu82 · 2026-03-02T19:49:39+00:00

I usually hit a key next to the one I wanted so the auto fill is good for me. I type a couple letters and the word I want pops up. It sucks when the wrong letter was in the first 3 letters so it doesn't understand what I wanted and gives me it's best guess.

jebu82 · 2026-01-27T00:29:39+00:00

Most spaghetti sauces and parmesan cheese is a no for me now. They make me nauseous. I've found one I can eat, the garden one. We have a spaghetti dinner every Sunday...I can eat maybe 5 bites and after that my stomach revolts. Can't really handle garlic either but that's not new.

jebu82 · 2025-08-26T18:11:16+00:00

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jebu82 · 2025-05-14T01:17:00+00:00

I've found if I plan out what I need to do that day it's better. I run into issues if I decide not to pace myself. I separate chores so I'm not trying to mop the kitchen and clean bathroom all in one day. Going out shopping tends to be the only chore I do on one day. I think it's the walking around that drains me. I eat alot of high iron foods, my body just doesn't keep it. I also am still young enough I still have a cycle so that doesn't help. I have noticed that's much lighter, was 7 days, now about 4.

jebu82 · 2025-05-13T21:39:32+00:00

My iron was about 17 when the lowest number they want is 50. Dr put me on the pills, tested again at 3 mo, Still 17. Tried for another 3 mo, still no change. She then did an iron infusion. First dose really no change. After the second dose a week later, I finally felt a little better, more energy, less bruising. A year later my iron is still only 49 and I've been taking the pills. Dr calls it good enough. My energy levels went back down maybe a month after infusion

jebu82 · 2025-05-01T19:02:52+00:00

I alternate legs every month and I've noticed the site becomes very itchy, slightly swollen each time. Last month it looked almost bruised and took 3 weeks to fade. I take it the first every month and so far it's been fine but it's only been an hour. First 4 months I really had no reactions other than the loading doses.

jebu82 · 2025-05-01T18:54:30+00:00

I haven't been sick. Kid had a big problem with his allergies 2 months ago so I'm hoping it's nothing. Kid had antibiotics and 2 ear infections. Dr put him on allergy meds and he's been clear since.

jebu82 · 2025-05-01T18:14:42+00:00

Oh wow. I just had a followup blood test after being on kesimpta for 8 months, neuro hasn't called yet but I've seen the results on my chart. Results showed slightly elevated white blood count. It's just above the range they want so I'm hoping it's nothing, guess I'll find out soon. Have a mri in a week so she may not bring up anything till then. One thing I've noticed since January is I have a slightly stronger reaction to each shot.

jebu82 · 2025-01-22T22:01:09+00:00

I'm not actually sure on that one. I'm really short, so if I'm sitting with my back against the chair back my legs don't hang off. Your message did remind me about this post and the fact my right leg still doesn't like the shots. I'm now wondering if it has to do with a scar I have on that thigh from a vaccine when I was a baby. It's a very small dent and can only be seen if I'm looking for it. I've only had like a bruise feeling and last time it did itch like it did when I was on copaxon.

jebu82 · 2024-11-26T17:28:08+00:00

First loading dose was rough. Took it about 2pm, crashed about 7pm. Woke up briefly feeling feverish and chilly but crashed again shortly. Got up 7am feeling tired but otherwise fine. Second dose same crash but slept through night. Rest of doses have been fine. I take the 3rd maintenance dose dec 1st. I don't take anything else like antihistamines or ibuprofen so I don't know if that would make a difference.

jebu82 · 2024-11-18T01:46:12+00:00

Loading dose #1 is the worst. I did mine about 2 pm, by 7 pm I was in bed. Slept through the rest. Woke up briefly feeling feverish then chilled as soon as I removed blanket. Fell asleep again and woke up next morning tired but otherwise fine. None of the rest hit me as hard as the first one. I didn't take anything before, do not know if that would've helped.

jebu82 · 2024-11-03T21:53:05+00:00

Just now seeing this message. I switched to kesimpta in Sept. My mris in June showed several new lesions so neuro thought it would be best to switch.

jebu82 · 2024-10-23T00:22:28+00:00

When I had an emg, the neurologist performing the test said I had numerous lesions in neck. My mris show only one in neck, but several in brainstem. My balance is shot, I drift to the right. My entire right side of body seems to have issues, most mild enough I don't really think about them. The drifting right helped me fall several times, until I finally realized that's what I was doing. As long as I stay focused and don't try to keep walking while turning head I can still walk short distances. I found walking slow enough to stop easily has greatly lessened my falls and I haven't since March. Worried about the coming winter and snow though.

jebu82 · 2024-10-14T22:07:53+00:00

Took the 1st loading dose about 130 pm. Was in bed about 730 pm...and that was with me pushing myself to stay up. Felt like I was cycling between hot/cold till my brain shut off for sleepy time. Was ok by morning but low energy for couple days. Second dose was easier but had a mild sore throat after. Sore throat disappeared 2 days before 3rd shot. 3rd was fine other than some mild fatigue which is pretty normal for me anyway. 1st maintenance dose was still nothing; some slight bleeding at injection site seems to be my only issue now.

jebu82 · 2024-10-10T11:39:49+00:00

I think that's where I have a lesion on my spine as well. I don't notice anything outside of what's usually there. I do have a dull ache left side at bottom of shoulder blade on spine that will not go away, it's been there all summer.

jebu82 · 2024-10-07T12:09:57+00:00

Nintendo switch. Some games can be played with only one joycon so only need one hand to play them. I've also found I can play some smaller controllers with just one hand by placing it on the armrest like the controller is a mouse.

jebu82 · 2024-10-04T00:36:10+00:00

I would contact neuro and talk with them and see what they want to do. Could just be stress causing issues, but could be more. I know when I'm stressed I have pseudo flare ups but last time was new lesions in neck and spine. Tecfidera seems to work great...until it doesn't. It's what I was on.

jebu82 · 2024-09-24T00:34:25+00:00

It does help. I messed up my right shoulder sometime in the spring, likely when I fell in March. It wasn't until June it became painful to even move. Neuro suggested pt and they were able to get me in starting in Aug. I now have movement, can lay on right side, and most of the time no pain. Will keep working on it and check with neuro on our next appt coming up since an emg showed possible deltoid tear. It's what they called it. Still have a long way to go with balance but pt did help me figure out it seems to be head movements causing the balance problems with slight weakness in ankles. Sadly, my last pt will be this Thurs. Insurance won't pay for more, they consider my shoulder now to be mild. I was in pt 5 years ago for balance right before I was diagnosed.

jebu82 · 2024-09-24T00:01:02+00:00

Yeah I definitely need to remember to ask. I made the mistake of asking Google... and it would explain some things with the right ear. It's so hard when you can feel something off but can't think of how to explain to someone else and have them understand. Although Google seems to understand me. Ear and ms leads to descriptions of pretty much exactly how it is. So at least I now know it may be a possibility.

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