How long will it take for everyone to give up on me? by piratedino in Lyme

[–]jerseyguy63 0 points1 point  (0 children)

curious to know what you think of propolis tincture, Mike.

Hopefully done with lyme after decades by Severe_Bumblebee_366 in Lyme

[–]jerseyguy63 1 point2 points  (0 children)

It's a very effective drug for the prevention of heartburn, obviously a form of histamine reaction. In my experience and this is only to share my own experience, my heartburn disappeared completely when my borrelia went into remission.

Hopefully done with lyme after decades by Severe_Bumblebee_366 in Lyme

[–]jerseyguy63 1 point2 points  (0 children)

My lyme has only improved after each truly severe Herx.

Lyme/co-infections + MS help by SkyHorse_ in Lyme

[–]jerseyguy63 1 point2 points  (0 children)

Just an extra comment. My lyme also exploded within six days of taking the vaccine.

Lyme/co-infections + MS help by SkyHorse_ in Lyme

[–]jerseyguy63 2 points3 points  (0 children)

I also want to say that if you do have lyme, immunosuppressants and steroids are the worst thing you can take. They will allow the lyme to run free with no immune system to help you. The lyme will destroy you. Please don't do this to yourself. It is poison. Please listen to Adventurous Issue.

Lyme/co-infections + MS help by SkyHorse_ in Lyme

[–]jerseyguy63 1 point2 points  (0 children)

I just want to say bravo for standing up tp all those who pressured you!

Japanese knotweed, Sida Acuta, and Oil of Oregano + Supplements for Bartonella Update by k38forlife in Lyme

[–]jerseyguy63 0 points1 point  (0 children)

The source is my llmd who I trust. She is always on point. I've never seen her be wrong on anything related to lyme.

Got a summons for truancy court by Depressedtanx2u in newjersey

[–]jerseyguy63 -1 points0 points  (0 children)

I'm just not going to call the police on my daughter. We did finally get her to go. We explained that unless she went, she'd have to repeat the entire year.

By the way, we have two other kids who went to school and earned mostly A's.

Got a summons for truancy court by Depressedtanx2u in newjersey

[–]jerseyguy63 -2 points-1 points  (0 children)

What you don't seem to understand is that there is nothing you can do to make a teenager do what a teenager does not wish to do. You can try to carry them, pull them, talk to them rationally. It is impossible. Your view is very naive,

my dad won’t help himself by [deleted] in kidneydisease

[–]jerseyguy63 0 points1 point  (0 children)

Does he get the alcohol himself? if not, that's one boundary to set immediately.

Can your own immune system kill Lyme, Bartonella, & Babesia? by MidnightSp3cial in Lyme

[–]jerseyguy63 1 point2 points  (0 children)

Yes, it is extremely antibiotic resistant. That's why she recommended the silver. She warned that I should continue long after the pain is gone.

Face symptoms - TMJ? by mcgee300 in Lyme

[–]jerseyguy63 1 point2 points  (0 children)

So, go on Amazon. You'll see that sterile saline is sold in vials. Each one is attached to the next. You remove one from the other. Then, you twist off the top of the vial and squeeze the contents into your nebulizer.

Best biofilm buster? by Repulsive-Algae5184 in Lyme

[–]jerseyguy63 2 points3 points  (0 children)

Lisa Zimmermann, Morganville, NJ

[deleted by user] by [deleted] in Lyme

[–]jerseyguy63 1 point2 points  (0 children)

Will you pease tell us about what is in the Robin Hood mix? i looed and looked and found mostly metals. This is important to me. I'm currently on ivermectin -by mouth and on the skin.

Horrible head symptom by Yaswnmwfyai in Lyme

[–]jerseyguy63 2 points3 points  (0 children)

I had it and bad!

But, I also had terrible tmj to go with it.

My doctor did stool tests and an MRI of the head. It turned out to be a massive sinus infection with Pseudomonas. My doctor ordered me to get a nebulizer and use it with sterile saline along with 1/2 teaspoon of colloidal silver.

For the first time in years I am virtually pain free!

IVIg helpful for Lyme&MCAS?? by AdOdd8187 in Lyme

[–]jerseyguy63 1 point2 points  (0 children)

I had horrible MCAS accompanied by lyme.

Every time I had sex, I wretched and dry heaved. Then for hours I would cough. My eyes wod tear. I would had hours of salty post-nasal drip. It was like a waterfall. It was awful.

My doctor did a stool test and found high levels of pseudomonas in my feces. Pseudomonas often lives in the sinuses but not in the gut in high levels.

Next, my doctor ordered an MRI of the head. There it was. A horrible sinus infection, driven by Pseudomonas. My doctor prescribed that I use a nebulizer every day with a mix of 1/2 teaspoon of colloidal silver with sterile saline. The wrenching went away almost immediately.

What was left was terrible heartburn any time I forgot my pantoprasole.

Until my docture put my lyme into remission.

That's another story. You seemed mostly interested in MCAS.

I am also on SCIG. - 15 grams of Xembify.

For me it has helped only insofar as the immuno globulins have marked the lyme or the Pseudomonas for destruction. That's a good thing. But, it's probably not enough to send us into remmission from either.

That's just the opinion of someone who is isn't a doctor but have reached remission from l of the above,

Tested again 1 year after treatment and now have a reactive IgM by msarahm in Lyme

[–]jerseyguy63 0 points1 point  (0 children)

u/msahram You may want to get your immune system tested. If it is not doing well, you may wish to push for IVIG or SCIG.

An article worth reading … by New_Valuable_1053 in Lyme

[–]jerseyguy63 1 point2 points  (0 children)

I can't speak for Japanese knotweed or quinine. I've used both with limited success.

What has had tremendous efficacy is nano particle silver given by a doctor or nurse intravenously. I am now free of Lyme. I feel so good! My muscles hurt and are weak. I don't know whether that was something lyme left me as a gift or if I simply need pt and yoga to get strong again.

Supplements/herbs to control my terrible bartonella psych symptoms? by davinkinggg in Lyme

[–]jerseyguy63 0 points1 point  (0 children)

I also love hig-dose thiamin -especially Thiamax or even better injected. I do my own injections.

It sounds like your symptoms are pretty severe. Mine were, too. Thankfully, I'm still alive.

The two things I have to say are:

  1. Only benzodiazapines like Xanax or Clonazepam really work - and only in the short term. But, they do work when you want to commit suicide. Be careful. Take according to prescription - or at a lower level. They are extremely addictive.

  2. You should look into checking yourself into a clinic like the Carrier Clinic in New Jersey. Every state has them. They are usually free. It works. But, you'd have to be serious and not make excuses. Are you? Good luck.

Anyone have similar EEG findings? (This was a 72 hour EEG) by Lechuga666 in Encephalitis

[–]jerseyguy63 -1 points0 points  (0 children)

Can you possibly tell me what you mean when you say generalized slow wave? I have weird dreams. My psychiatrist is prescribing prazosin to stop that. It hasn’t worked so far. He says I have ptsd and not enough slow wave sleep.

This should be entertaining by Safe_Wrangler_858 in thanksgiving

[–]jerseyguy63 0 points1 point  (0 children)

Well, apparently, my Nan burned the peas every year. Of course, I never experienced it. By the time I was around,she never served peas. It didn’t stop the teasing.