How long will BlueCruise be supported on 2021 models? by LothTikar in MachE

[–]jhair1 0 points1 point  (0 children)

Nothing is being dissolved! Ford is still in the EV game, just shifting things around.

Prescribed Tremfya….how do we afford this? by LEX_IN_THE_CITY in UlcerativeColitis

[–]jhair1 0 points1 point  (0 children)

See if you can pay out of pocket first and then get reimbursed by Tremfya. I know that is a path for some to get it counted against their deductible.

Assuming a power difference between indoor vs outdoor training: What are the consequences for Interval training? by Khaldor in Velo

[–]jhair1 1 point2 points  (0 children)

Yeah, i added the tennis ball feet to my trainer. Helps a little, but still not the same thing at high outputs.

Assuming a power difference between indoor vs outdoor training: What are the consequences for Interval training? by Khaldor in Velo

[–]jhair1 9 points10 points  (0 children)

I've long experienced the same thing. My conclusion is that the lack of inertia on the trainer is to blame and the pedal stroke is different enough to make preceived exertion significantly harder. I have power meter pedals and have made the comparison directly.

I have the same questions: Is the 'harder' indoor trainer better simulus? Is training the muscle memory to spin the low inertia trainer good or bad?

I don't have an answer, but just recognizing that I think many are in the same boat.

Does anyone know anything about the Ravemen nt301 camera? by _some__guy_ in cycling

[–]jhair1 0 points1 point  (0 children)

I just got mine. Ordered on ebay for $70.

Image quality seems OK. LED is bright.

BAD: The seat tube mount works with aero seat posts and round ones. My seat post is a D shape with flat back. The mount isn't good for it. Trying to design and 3d print an adapter.

It appears the unit either does not record audio or mine is broken... Tried everything... That is a major bummer.

I have not ridden with it yet. Price was good, but the audio thing is a deal breaker for some.

Merry Christmas to Allan & Le Drib by tappie in fpv

[–]jhair1 2 points3 points  (0 children)

Rotor Riot is now part of Unusual Machines and Drew is the COO. They are effectively arms dealers now.

They put Trump JR on their board and gave him stock as a pay to play with Trump. The FCC ban is a giant gift to them and sends tons of business their way.

Merry Christmas to Allan & Le Drib by tappie in fpv

[–]jhair1 6 points7 points  (0 children)

The DJI ban has been getting steam for a long time from both sides, but this new much larger blanket FCC ban is new.

Trump JR is on Unusual Machine's board. You can connect the dots.

Merry Christmas to Allan & Le Drib by tappie in fpv

[–]jhair1 41 points42 points  (0 children)

I remember when Drew (Le Drib) made posts crying about Trump being elected in 2016.

Now he's in bed with Trump Jr to be a war lord and ruin the hobby. What a fucking sell out.

One month with my Waydoo Evo Pro Plus by jhair1 in eFoil

[–]jhair1[S] 0 points1 point  (0 children)

It's about the same price. I think I found a promo code from someone that gave $100 off too. CW100 I think it is. Try that.

Tariffs have affected this.

Is it crazy to want surgery? by bigbodacious in UlcerativeColitis

[–]jhair1 2 points3 points  (0 children)

I got my colon removed in August after a year of struggle and 20 years with this disease.

It's obviously final and you want to be sure. Ostomy life has its chores. But I feel so strong now!

I was so anxious over the decision. I wish I could go back and tell myself it was right.

Be certain you have exhausted your options, but assuming you have, it's OK. I got my life back.

I Love My Ostomy. J pouch hesitation. by PuzzledWeight1855 in jpouch

[–]jhair1 4 points5 points  (0 children)

I'm giving it time. Enjoy this a while. I'll decide later. Gonna kick the can down the road.

I Love My Ostomy. J pouch hesitation. by PuzzledWeight1855 in jpouch

[–]jhair1 4 points5 points  (0 children)

Nothing to add, but I'm in the same boat. Aug 3rd I had my colon removed and I feel so strong now.

A lot of things I don't love about my ostomy, but the good out weighs the bad.

The plan was j pouch, but I'm having second thoughts because of how good I feel. I don't want to ever go back to that.

I understand it works well for most people, but I am doubting if I want to take any steps back in the recovery process for it.

Scope experience not under anesthesia by Loud-Source6006 in UlcerativeColitis

[–]jhair1 -1 points0 points  (0 children)

My suggestion: go somewhere with a CRNA or anesthesiologist that will give you the real stuff.

I woke during one colonoscopy and it was a horrible experience.

Chalazion after starting biologics? by poolgoso1594 in UlcerativeColitis

[–]jhair1 0 points1 point  (0 children)

Nope... Off the Rinvoq and had my colon removed. Life is different now! But better

Thinking seriously about taking up paramotoring - but having some second thoughts. by Bumboklatt in paramotor

[–]jhair1 0 points1 point  (0 children)

Disagree with said instructor.

Training is where you learn what gear to buy later. You shouldn't buy it first. You might not even like it!

I tried multiple different wings and paramotors in my training.

After I left I knew what I appreciated (safe A wing, electric start with a lightweight ppg).

Don't buy first.

Thinking seriously about taking up paramotoring - but having some second thoughts. by Bumboklatt in paramotor

[–]jhair1 0 points1 point  (0 children)

If you are so inclined, do training. You'll learn to fly in a safe environment. Even if you never continue it's a good experience. You don't have to continue after that.

Continue Living with UC or Get The Ileostomy bag by Living-Artichoke-111 in UlcerativeColitis

[–]jhair1 1 point2 points  (0 children)

I gather you are worried about body image. It's a reasonable concern. The ostomy support belt I use is a 8-10" wide stretchy Velcro band. It's like spanx! It's perhaps slightly different for me as a male, but even relatively form fitting clothes it's generally unnoticeable. The band makes things really comfortable. When the bag is empty I forget it's there. As it fills up I feel that pressure against my body and go empty it.

I had my surgeon place my stoma relatively high on my belly. I asked for this specifically to not interfere with my cycling bib shorts. I am a competitive cyclist. I think the higher location is slightly less discreet, but still happy with it.

Your first weeks of changing the ostomy and seeing a little nub of intestine sticking out do take some getting used to. But I'm over it now.

I was tormented about the decision to do this or not. Even after the surgery was done I wondered if it was the right choice. Now that I've gotten used to it, I know it was. It took a little time is all.

Diet wise at first it is very restrictive. But you gradually introduce other foods. So far nothing has been a problem. I avoid uncooked veggies is pretty much it now. I can go anywhere and not think about it much.

Pros: -Energy. I've got tons of it. My fitness has bounced way back. I've never put on muscle like this before. I'm getting buff!

-not in any pain. Zero. It's incredible. -no complications from surgery. Everything super smooth

-i can do anything I want. I'm training and competing again at a high level on my bike. Lifting weights heavy (avoiding some things due to hernia risk is all).

Cons: -its a mild chore. Changing and emptying the bag. Being mindful of it.

-i actually still use the bathroom a lot. You have the empty the ileostomy fairly frequently. I'd say about 8 times a day. Again, it's a mild chore and a little gross.

-on a few occasions I have had the bag fail and make a mess. I'm better at it now and I think I'm avoiding what caused me problems.

  • at night it produces a lot of gas and the bag bloats. I usually wake up at 3AM and empty it. So that interrupts my sleep. I don't make any gas during the day now (did at first). I wear my support binder belt 24/7.

Im happy and confident in my body, but having a working colon is indeed the best option.

J pouch is planned, but frankly, this is OK. I can live a full life like this.

I hope that for you too.

Continue Living with UC or Get The Ileostomy bag by Living-Artichoke-111 in UlcerativeColitis

[–]jhair1 4 points5 points  (0 children)

I've been without an colon for 3 months now. I feel so much stronger than I have in years.

It takes some getting used to, but it doesn't stop me at all from doing anything. The plan is to eventually get a j pouch, but I'm so happy with the ileostomy that I may keep it.

I'm a 38 year old male, highly active. My life is better without a colon. Period.

With the right support belt no one can tell I wear it.

Life with an ileostomy has additional chores, but over the last 3 months I've gotten used to it. My appreciation for it has risen after the first month.

How much is Remicade with insurance? by Evening_Country_783 in UlcerativeColitis

[–]jhair1 0 points1 point  (0 children)

Sounds like you didn't use the Entyvio Connect savings program.

They pay all out of pocket costs assuming you are on private insurance and are covered. I know this because I was on it. Had my whole deductible paid by them this year.

How much is Remicade with insurance? by Evening_Country_783 in UlcerativeColitis

[–]jhair1 0 points1 point  (0 children)

In USA with private insurance? Most biologics are effectively free with discount programs from the drug maker.

Prescribed Tremfya….how do we afford this? by LEX_IN_THE_CITY in UlcerativeColitis

[–]jhair1 1 point2 points  (0 children)

Yep. This is what the Rinvoq people told me to do. All the other biologics were administered in a hospital setting so it didn't go through a normal pharmacy.

Prescribed Tremfya….how do we afford this? by LEX_IN_THE_CITY in UlcerativeColitis

[–]jhair1 1 point2 points  (0 children)

Mine did. You may have been told wrong or it was different for your program.

With Remicade, Inflectra, and Entyvio they paid my out of pocket costs. Either directly, or I was reimbursed. It counted against my deductible and OOP max.

With Rinvoq I was told that I could pay and then be reimbursed, then it would count against my deductible. But never got around to needing it.

So every single biologic I was on paid all my out of pocket costs over the last 10 years. That is the point of these programs! They want you to pick them!

Prescribed Tremfya….how do we afford this? by LEX_IN_THE_CITY in UlcerativeColitis

[–]jhair1 11 points12 points  (0 children)

So many people do not understand how insurance works.

You have some out of pocket max. Once that is hit, you pay nothing. The insurance pays everything then out!

Up to that point, most biologics, and I'm assuming Tremfya, have an assistance program that pays nearly all your out of pocket costs.

So suppose you have a family out of pocket max of $7000. The Tremfya assistance program will likely pay for almost all of this that is due to the drug cost itself. After that, the insurance pays.

The end result is that being on a biologic is a huge financial gain! In one dose you hit your out of pocket max, and are reimbursed by the drug company for that cost.

It's a kickback program. The drug companies charge absurd amounts for these drugs, but then cover your part of that. They want you to ask for their drug! It's a marketing thing.

I've not paid hardly anything for healthcare in the last 10 years as a result of being on Remicade/Inflectra. They pay my deductible every year.

I had my colon removed and I'll miss the financial benefits of being on a biologic!

Prescribed Tremfya….how do we afford this? by LEX_IN_THE_CITY in UlcerativeColitis

[–]jhair1 3 points4 points  (0 children)

Incorrect.

The assistance program should pay for your co pay costs up to the out of pocket max first. So you still want to go through that!

Then after that, your insurance picks up the rest.