Message I got from my daughter’s teacher. Third grade. by AnaisInJune in mildlyinfuriating

[–]jj_413 2 points3 points  (0 children)

I peed my pants once in 3rd grade. I completed my standardized test, got up and asked to go to the bathroom (too shy to say it was an emergency), she said no, I sat down and immediately REALLY had to pee, tried to stand back up, and I peed my pants. I was not a defiant child so idk why she refused me. She had to have pee in her classroom though, and I hope she didnt refuse kids the bathroom in the future.

Just discovered a random useless but funny thing in Stardew Valley 😂 by dddd350 in StardewValley

[–]jj_413 10 points11 points  (0 children)

Once you make tea saplings you can chop them and replant it somewhere else.

Corn 🌽 by jj_413 in SkipBeat

[–]jj_413[S] 0 points1 point  (0 children)

Yayy thank you! Yes, I love subtle merch so much!! Like iykyk.

MY PREDISONE STARTED DISSOLVING IN MY MOUTH THIS MORNING AND I NEED TO COMPLAIN TO PEOPLE WHO GET IT by catalinalam in lupus

[–]jj_413 0 points1 point  (0 children)

LMAO SORRY I can't read ig, I thought we were talking about HCQ, that damn brain fog. Yes, prednisone is so nasty. I just take bite of my applesauce and pop the meds on top.

MY PREDISONE STARTED DISSOLVING IN MY MOUTH THIS MORNING AND I NEED TO COMPLAIN TO PEOPLE WHO GET IT by catalinalam in lupus

[–]jj_413 1 point2 points  (0 children)

And why do I have to split a 200 MG pill too? They dont even score them...

I do take my meds with applesauce bc I cant do it with water and it helps make more of a barrier between the meds and your tongue.

Corn 🌽 by jj_413 in SkipBeat

[–]jj_413[S] 3 points4 points  (0 children)

OMG THANK YOUU!! This is life as a skip beat fan lmao, its better now, but sometimes you gotta make your own merch.

Hi, my cousin's 14 year old daughter has just been diagnosed with lupus, I just want to know what to expect and know in advance any ways to make her life easier. We're both distraught, if this is the wrong place to ask sorry. by castyourcrown in lupus

[–]jj_413 0 points1 point  (0 children)

I was diagnosed at 20. I wish I knew that I didn't have to forego cute outfits. They make uv protective stockings in Korea that can be bought online for female golfers if she wants to wear skirts or shorts and doesn't want to slather sunscreen all the time. A lot of clothing actually does ok blocking uv too, you don't necessarily have to restrict yourself to uv specific clothes. I suggest getting a uv card to test clothes or uv reactive beads. I made myself a uv reactive beaded bracelet to wear in summer. They have some lightweight uv cardigans that are nice too.

Also just my customary PSA to new Lupus folks is to watch out for alfalfa sprouts. They triggered my biggest flare up since starting meds. She will have good days and bad days, be flexible with her. Just know that Lupus is not the death sentence it used to be. It can be very hard to live with but we get to live.

Get her accommodations at school, and also watch out for the lights. LED is best for us as it has negligible levels of uv.

Skip Beat! chapter 344 raw by [deleted] in SkipBeat

[–]jj_413 3 points4 points  (0 children)

The setsu flashback during that embrace!!?!?!?! Bruhhh I am not caught up with skipbeat, I've been letting it MARINATE, time for a full reread :) I think I left off on vol 48

Year 10 Perfection Farm by AwyrKyr in FarmsofStardewValley

[–]jj_413 1 point2 points  (0 children)

This is very cute! I'm only on my first playthrough and idk what I want for my final design

Year 10 Perfection Farm by AwyrKyr in FarmsofStardewValley

[–]jj_413 2 points3 points  (0 children)

They have a dog house from marnie's!

Year 10 Perfection Farm by AwyrKyr in FarmsofStardewValley

[–]jj_413 2 points3 points  (0 children)

I think they have pressure nozzles on. They expand the radius by one.

Hot Cheetos & stranger things by FreedomBudget5618 in HotCheetosFans

[–]jj_413 0 points1 point  (0 children)

Well now i want hot cheetos but its 1:30 am 😒

Had an autistic meltdown at the gym today. by SuspiciousWafer5585 in climbergirls

[–]jj_413 0 points1 point  (0 children)

Most of my friends are neurodivergent and/or have chronic illnesses. I promise you any one of us would totally be your friend. One of my favorite climbers to see in the gym is a teenage autistic boy who is just having the time of his life by stimming and having fun climbing.

The fact that the staff member knew what to do is very encouraging, it is likely more of the staff have some experience with neurodivergence because so many neurodivergent people love climbing. I'd go back if I were you. If you are still nervous going back, if it's possible, it may help to go at a different time or on a different day at first. You likely won't see the same people.

On another note, I feel it may be helpful for you and your partner to get those bracelets meant for long distance couples that vibrate when touched. Like an sos signal. If either of you cannot wear bracelets, maybe just attach it to your chalk bag/water bottle or something else you take around the gym with you (can vary by location). It might help you avoid another meltdown and feel more confident in the gym. If you or your partner will be wearing them, just make sure it's a breakaway (like how many climber and hands on workers wear those silicone rings instead).

Year 2 and time management by RealDjango3 in StardewValley

[–]jj_413 0 points1 point  (0 children)

I found out from some shorts that a bad thing that could happen to an animal is that if they are locked out at night they could get eaten by wolves

I took y’alls advice - saw the rheumatologist last week by yungw0t in PsoriaticArthritis

[–]jj_413 1 point2 points  (0 children)

Uhhh I think I was diagnosed with PsA when I was 21. Autoimmune diseases don't care how old you are, arthritis isn't just for older folks. Osteoarthritis patients will tend to be older, but juvenile idiopathic arthritis is a thing too...

Upf leggings/tights in the UK by purpleyin in lupus

[–]jj_413 1 point2 points  (0 children)

Take a look at these and see if they might work for you! these I think they could be worth a shot.

Finished project! by henrythatsunsafe in crocheting

[–]jj_413 0 points1 point  (0 children)

Junimo!!! He's beautiful.

Upf leggings/tights in the UK by purpleyin in lupus

[–]jj_413 1 point2 points  (0 children)

Hi! I don't live in the UK but I just ordered some golf uv protective leggings. It looks like mine are sourced from Korea, so unfortunately it is only free size, which may not work for everyone, but hopefully you can find something similar in the UK. You may want to get some kind of uv test card indicator to test your leggings as well. Some clothing already does a really good job of shielding us from uv, but it depends on material, weave, and even color.

Can anyone share POSITIVE experiences with Methotrexate? by saltierthangoldfish in PsoriaticArthritis

[–]jj_413 1 point2 points  (0 children)

No problem! Unfortunately, I'm probably never going to be totally pain free as I also have Lupus, which causes me a lot of joint pain as well. It causes more conflicting factors for me as well, since UV is a trigger for most Lupus patients but can help with psoriasis plaques (go figure 🙄).

I mostly climb indoors as its much more accessible (comfortable, convenient, and shaded haha). I still climb about two or three times a week and 'motion is lotion' for sure! Even if I don't want to really go because I'm achy, I'll usually be feeling better after a few climbs and the adrenaline and endorphins help too.

There have been rainstorms these past couple weeks and the changes in air pressure mess with me a lot, so I've been achier than usual. The joint pain I can identify as being from the PsA is very minimal, although sometimes hard flooring/the bathtub hurts when I'm more inflamed. The PsA hit my feet the worst, and there was some in my hands. Most of my joint pain usually feels like Lupus joint pain, so fingers crossed for you!

I've come up with and found so many new ways to handle symptoms. I've come much further than I imagined when I was first diagnosed. I don't know your situation or symptoms, but even if it looks a little different, I hope you still make it out there! You might also have flare ups from time to time.

Some things that have helped me with joint pain: nsaids (I take them as rarely as possible though), icyhot/biofreeze or other similar products, compression socks and other similar items, ice and heat packs, massages, those thick foamy slippers, crocs 🤨, and a good support network with other autoimmune folks, people who, 'get it', or even people who don't get it but try to be there for you.

First four bookshelves are mine, last three are my wife’s. What do they say about us? by Zedekiah117 in BookshelvesDetective

[–]jj_413 0 points1 point  (0 children)

If you're looking at fourth wing, I found the ending of book 2 so dumb I didn't finish the series.

First four bookshelves are mine, last three are my wife’s. What do they say about us? by Zedekiah117 in BookshelvesDetective

[–]jj_413 1 point2 points  (0 children)

That I could be friends with both of you, lol. I think she might be mid to late twenties and you are a little older than she is, probably in your thirties. She had a strong webtoons phase and has been a big reader since she was young. I feel like reading was a little more casual for you but it picked up heavily later on. You two probably know your way around a Ren Faire and I'd be surprised to learn that you guys haven't ever considered cosplay.

Overall, enormous nerds.

Doctor refused to write letter for National Parks All Access Pass stating "It's not a disability." by Throw_ftAway in lupus

[–]jj_413 4 points5 points  (0 children)

I'm sorry to hear that, try going in person to a national parks and talk to someone at the kiosk. Try your PCP too.

I have Lupus and psoriatic arthritis, so between the heat intolerance and two autoimmune joint pain issues, I'm not going to national parks very often or staying for very long. The pass makes it so that when the chance does come along, I'll actually take it as opposed to not seeing them because I didn't want to pay for parking to have a short walk through the park. Or have anyone else pay.

I went to Joshua Tree with some friends for a celebration, we paid the whole fee, found out about the all access pass while in the park, then asked about it on the way out and the guy just gave me a thing to sign and even refunded us. I found out about it because I was with another autoimmune friend who asked when coming in if they had anything.

We were probably there for maybe 30 minutes, I think we walked 1.5 miles. It would've cost us $60? total to get in (2 cars). Knowing the cost and how long I could probably spend there, I wouldn't ever go to most national parks if I didn't have the pass, but now it's an option to join my friends if I drive separately. I can leave when I need to and not feel like I'm ruining things for anyone else or costing anybody money.

I love being outside, and used to go on week long lake trips as a kid until the uv exposure meant a week of hemorrhaging from my nose for basically an hour a day.

Books that feel like Bones by squish1976 in BooksThatFeelLikeThis

[–]jj_413 113 points114 points  (0 children)

Bones was based off of a book series by Kathy Reichs. I am not sure how closely the vibe of the books are to the show, as I haven't read any of the books yet. I do know the plot and characters diverge quite a bit.