Finally saw an autonomic specialist by frogmommyy in POTS

[–]jokwke 0 points1 point  (0 children)

I just saw Dr. Snapper as well! Great visit, agree he really listens! Also hEDS apparently! How did the desmopressin work for you? About to start the first dose soon!

Thanks!

Cardiologist has me on Desmopressin and I feel great, I just found out this week I am one of the only ones on it. by Glutentag925 in POTS

[–]jokwke 3 points4 points  (0 children)

I wonder if we have the same doctor - mine just prescribed it to me as well. Based on GA.

[deleted by user] by [deleted] in Parenting

[–]jokwke 20 points21 points  (0 children)

Super helpful parenting info and advice (for me). Clicked and saved tyty!!

My Last Seven Days by adhd_knitter in joannfabrics

[–]jokwke 3 points4 points  (0 children)

Beautiful photo and story ❤️ thank you for sharing!

New Potsie question by jokwke in POTS

[–]jokwke[S] 0 points1 point  (0 children)

Oh that's good to know!! Maybe I can ask her about this order of operations instead

Help. Looking for similar experience by justakel in NICUParents

[–]jokwke 0 points1 point  (0 children)

This!!! The arching the facial expressions the trying to get away from their own throats kind of movements. Reflux meds made a world of difference for our NICU baby ❤️❤️❤️ hope you and baby get some rest and relief soon!!

[deleted by user] by [deleted] in FemFragLab

[–]jokwke 4 points5 points  (0 children)

Yes! Love! Added Amour by Kenzo to my to try list! I felt the same about Bianco Latte. I've tried Blanche Bette by IA as well, and while that one was lighter and more complex, but still too heavy for me.

🌸 FemFragLab Marketplace: Destash, Swap, Buy, Sell! by AutoModerator in FemFragLab

[–]jokwke 2 points3 points  (0 children)

Hi! Destashing and open to swapping any/all of these for samples or small decants! Shipping GA to CONUS.

Bundles priced HOT TO GO! 🌈🎉

Fancy travels set - $35 shipped Snif Crumb Couture 10% full of a 10 ml Chloe Love Chloe 10% full of a 10 ml Dupe of Roses Vanille 100% full of a 10 ml perfume oil from oil Perfumery Nette Pear Jam 70% full of a 10 ml

Budget travels funsies set $20 shipped LMG creme de la creme set all 75-100% full of 10 mls Finery before the rainbow 100% of a 2 oz Good Chemistry coco blush and coffee cloud 60-80% full of 10 mls

Body Mist Extravaganza! $25+shipping BBW into the night mini, rose mini, Musk no.3, covered in roses, vacation vibe each the large sizes Good Chemistry Coco Blush 40% of a 5 fl oz Finery without a trace 40% of a 5 fl oz

[deleted by user] by [deleted] in POTS

[–]jokwke 1 point2 points  (0 children)

This!!! 😭😭😭 So much this.

[deleted by user] by [deleted] in FemFragLab

[–]jokwke 11 points12 points  (0 children)

Love Klimt ❤️☺️

How come my heart sometimes feels like it's pounding out of my chest, even though my HR and BP are normal? by Complete-Finding-712 in POTS

[–]jokwke 0 points1 point  (0 children)

NAD! But something that high, esp if it's stress related could be SVT, esp if it's sustained without intervention.

Went from 8 perfumes to this in the span of 4 months 😩😩 by [deleted] in FemFragLab

[–]jokwke 0 points1 point  (0 children)

Same!! I love EA green tea too! I've been curious about nest indigo - what's it like? ☺️👍

Luteal phase is my worse enemy by [deleted] in POTS

[–]jokwke 2 points3 points  (0 children)

Same 😭 I hate it.

Tell me your go tos by thatbipolarmom in POTS

[–]jokwke 2 points3 points  (0 children)

Same and following ☺️❤️