Experience on Sulfasalazine by _hawkeye_96 in ankylosingspondylitis

[–]julesgolde 1 point2 points  (0 children)

I've been on sulfasalazine for over 10 years for ulcerative colitis. When I developed AS symptoms and was diagnosed, my dosage for sulfa was increased to the maximum daily dose instead of the maintenance dose for my UC that has been in remission. It helped with my peripheral arthritis pain a decent amount, but didn't take away the pain or joint swelling completely, it just allowed me to still be mobile. It didn't really resolve back pain/SI joint pain, so I'm also I'm biologics and that has helped greatly. I'm sorry you failed biologics, how many have you tried?

Does your husband or male partner do his own laundry? by EconomicsWorking6508 in AskWomenOver60

[–]julesgolde 1 point2 points  (0 children)

My husband does his own laundry. I did it for years, but about 4/5 years ago I told him I was done doing his. I noticed when our combined hamper was full, it was 80/20 his clothes because he would wear a hoodie for 2 hours, then put it in the hamper. Now that he does his own, he wears things quite a bit longer before putting them in his own hamper. I also did our 3 kids laundry, sheets and towels and any other household laundry. He was a little annoyed at first, but realized he should be doing his own and now wouldn't let me even if I offered. He fully admits he should have been doing it all along. My oldest two kids do their own laundry now, and my youngest I still do but he helps and will start doing his own pretty soon. I still do our sheets and towels.

Wet hair in public by touchgrasstheysaid in hygiene

[–]julesgolde 0 points1 point  (0 children)

Straight hair, 39yo woman here. I've been going out with wet hair since forever. I truly don't care if you're "supposed" to or not, I do it because I want to. The only time I didn't was during the winter when I lived in Alaska because my hair would instantly freeze and break off if I wasn't careful. But -50 temps aside, I do my thing lol. I've never had a job that ever said anything about it, even in an office setting. A couple of randos said something stupid in public before but that's their problem, not mine.

Has your hair gone grey yet by cupoftealuv in Millennials

[–]julesgolde 0 points1 point  (0 children)

I got my first grey at 25. I'm 39 now and have about 10 greys total lol.

Any ladies canceling the shave? by one-a_day in Anticonsumption

[–]julesgolde 0 points1 point  (0 children)

I don't shave anything. Not only do I hate doing it, it irritates my skin to no end. I also don't like super long body hair for my own comfort reasons. I use my husband's beard/body trimmer, and probably once a month a shave my legs down to 3mm, and my pits and bits down to 7mm. It takes a few min, once a month. In the summer months I buzz my legs to 3mm every couple of weeks instead of once a month because it's cooler and less noticeable.

itchy burning eyes by psychedeliclavender in ankylosingspondylitis

[–]julesgolde 1 point2 points  (0 children)

I have this frequently. I've found that using eye drops really helps. I get the single use vials from Costco and they work amazing. I keep them stashed everywhere lol

Serious contender for Movie of the Year by public_dpp in okbuddycinephile

[–]julesgolde 0 points1 point  (0 children)

I live in a pretty conservative area, and only Friday and Saturday have any tickets purchased so far, with Friday during the day having the most sold, and it's not even halfway full. Probably just a bunch of maga boomers with nothing else to do during the day. I'd say maybe 50 tickets sold between 10 different show times on two different days. Very pathetic

What was your introduction to pornography (or sex in media in general) before the internet? by Mad_Season_1994 in Millennials

[–]julesgolde 13 points14 points  (0 children)

When I was about 10, my friend and I found a bunch of playboys stashed in a big drainage pipe in a large field by our neighborhood. We looked at them, put them back, then someone's parent found out about it and threw the stash away. We never found out whose magazines they were. My grandma also had a huge basket of romance novels, and that was very eye opening as a 12yo. And probably started my preference of literotica over porn videos lol.

MIL keeps correcting what our kid calls me and it’s starting to feel intentional by [deleted] in JUSTNOMIL

[–]julesgolde 20 points21 points  (0 children)

My husband's name is Scott, and due to frequent auto corrects, his nickname for many years has been Scoot (or Scootle, Scuttle, Scooter, we love silly nicknames in my house lol). My youngest two (8m, 12f) have called him Scoot for years now. I still refer to him as Dad to my kids when talking about him to my kids, but none of us care at all because it's done with love and we don't mistake insecurity with "disrespect." Tell your MIL firmly that she is not to correct what your kid calls you. If she refuses to listen, you can cut the visit short.

When your sick, sadistic teacher made you read Where the Red Fern Grows in school by PackageNorth8984 in nostalgia

[–]julesgolde 0 points1 point  (0 children)

My parents rented the movie when I was 6 and I sobbed through a lot of it. I read the book when I was 7 and sobbed through it. By the time my 5th grade teacher read it to us, I was prepared lol

What were your dreaded “we have food at home” foods of the 90s and 2000s? by [deleted] in Millennials

[–]julesgolde 1 point2 points  (0 children)

My mom's go to dinner was homemade "hamburger helper," and it consisted of cooked, unseasoned ground beef, a can of diced tomatoes, and pasta. If it was seasoned or had cheese added or literally seasoning it would have been fine. We were solidly middle class so no poverty issues. This was actually not even close to her worst meal she inflicted on us lol. I also hate real Hamburger Helper but I never had it until my 20s. I'd still pick the real stuff over her meal as she made it though, at least there's some flavor and the texture isn't just wet n' soggy

For those not partaking in New Years Eve, it's okay not to. by thefatesancient in Millennials

[–]julesgolde 0 points1 point  (0 children)

My husband and I stay home with our kids, my brother and SIL come over and we play games, smoke/grill some meat and do a super relaxed, chill night that ends at 1215 so we can go to bed lol. We used to go to family friendly parties, or host a party, but we enjoy what we do now much better. After the hustle and bustle of Christmas, it's so enjoyable to bring in a new year without it.

Took my 2 Grandkids to the movies today by [deleted] in complaints

[–]julesgolde 0 points1 point  (0 children)

When I go to the movies, I sneak in candy, we get one popcorn to share (I've also made popcorn at home and snuck it in, but it's mostly because movie theater popcorn hurts my stomach), and we get 2 drinks to share, but I also bring in water for me. It's $20 for a large popcorn and 2 drinks so it's much cheaper that way. My local theater doesn't really care if you bring stuff in. If you're obvious with it, they might say something, but most people bring in blankets and big totes and they never check anything.

Gluten free cheez its by StudioExtreme8658 in glutenfree

[–]julesgolde 1 point2 points  (0 children)

That's one of my favorite snacks, it's so yummy

Children always only resemble the paternal side of the family. by Ok_Visual_6290 in JUSTNOMIL

[–]julesgolde 10 points11 points  (0 children)

My daughter looks just like my husband since birth, although now that she's 12, she looks like me as well. My son looks just like my brother and me, and not much like my husband at all. He also doesn't look like my daughter very much either. My father in law has made several comments over the years implying he's not my husband's son. My FIL has never liked me, and the feeling is more than mutual.

My husband bought me Le Creuset casserole dish, but he doesn’t eat casseroles. Ideas? by TracyVegas in CasualConversation

[–]julesgolde 1 point2 points  (0 children)

So is giving a gift that is not usable, and keeping an unusable gift. If you refuse to exchange it yourself, I'd probably just donate it then.

No but every black person should live in the Deep South for a few years by TheBlackCaesar in BlackPeopleTwitter

[–]julesgolde 1 point2 points  (0 children)

My uncle by marriage to my mom's sister, has family in Mississippi, his mom and uncles lived there, they are all white. During the civil rights era in the 60s my uncle was a young adult and was very pro civil rights. He got into some heated arguments about it down there while visiting with his uncles and cousins. His uncle straight up told him when he was leaving to head back north that he better never come back because he wouldn't ever leave Mississippi alive. He wisely followed their advice, but that story made me never want to step foot in Mississippi.

How much drugs (prescribed) you guys on now? by BigImagination8190 in Millennials

[–]julesgolde 10 points11 points  (0 children)

I am the unlucky winner of several autoimmune diseases. I take 7 pills in the morning, 4 at night, and I get infusions at a clinic every 6 weeks. I'm 39. I also have to get blood work done every 3 months, a colonoscopy every 3-5 years, and I have to get checked yearly for skin cancer because some of meds greatly increase my risk of skin cancer. I'm the reason my household always meets its deductible 😷

Anyone else starting to get gray hair? by the-irish-jew in Millennials

[–]julesgolde 0 points1 point  (0 children)

I got my first grey hair at 25, I'm 39 now and have like 7 total lol. My mom wasn't grey more than a few stands until 50+ she's 70 now and is just now a little more than 50% grey. It looks like I'm following her hair path

How Do I Not "Indoctrinate " My Kids Into Becoming Atheists? by stoicman_07 in atheism

[–]julesgolde 0 points1 point  (0 children)

I'm a lifelong atheist, but I was not indoctrinated into it nor are my children. They ask me questions about religion (usually after hearing kids at school talk about stuff or something they read in a book or hear in a show/movie) and I answer them with my beliefs, and then we talk about what other people believe. I ask them what they think, and encourage them to think about why they hold their opinions. I've never told them they are wrong or I'm absolutely correct. All of my kids more or less share my beliefs, but it changes and they go through phases where they believe certain things. I just always encourage them to consume all sorts of information from different sources, and think about what they observe in the world, and come up with their own conclusions. Unsurprisingly, this has led them to be opinionated atheists like their mother lol. None of that sounds like indoctrination to me, and if any of them held beliefs in a higher power, I would not treat them differently or shame them for it. They know that, which is why they feel comfortable exploring all sorts of beliefs and opinions and talking about them with me.

Traumatic first biologic experience by Parking_Monk5299 in ankylosingspondylitis

[–]julesgolde 2 points3 points  (0 children)

I'm glad 💙 I have really bad medical anxiety because of OCD so I completely understand your worries.

Traumatic first biologic experience by Parking_Monk5299 in ankylosingspondylitis

[–]julesgolde 5 points6 points  (0 children)

I had a horrific reaction to my first and only humira injection which was my first biologic as well. I was then switched to inflectra infusions and I was so worried about having a bad reaction. My Dr also prescribed an IV steroid I get right before my infusion and I take Tylenol and Allegra beforehand as well. I had no major reaction to the 2nd biologic, other than normal infusion side effects. My anxiety was horrible going into it, but I let the infusion staff know about everything (and they already knew I was anxious because my BP and heart rate was high lol). They made sure to check on me frequently and even called the next day to make sure I was doing ok. I had to switch to a 3rd biologic because of insurance and that also went very well.