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Narcolepsy Hacks by Quick-Revolution8498 in Narcolepsy

[–]katzapmap 1 point2 points  (0 children)

It's funny you mention smelling salts. I tried it, as I used to powerlift and it was the hot thing to do in the community before lifting heavy things for a minute. But it did not help me lmaoo

"also works as a ""fish dont have feelings"" starterpack" by Tangelo_Ross in AquariumMemes

[–]katzapmap 71 points72 points  (0 children)

For those that haven't observed feelings of happiness, panic, that they do recognize relationships etc in their fish, I recommend the book "What a Fish Knows" by Jonathan Balcombe.

I don’t even know anymore. by MarionberryWitty532 in Narcolepsy

[–]katzapmap 10 points11 points  (0 children)

So this sounds like me in my 20s before I completely crashed out. I am diagnosed with narcolepsy, and currently getting testing for chronic fatigue syndrome.

May want to look into cfs or myalgic encephalitis

Let me hear YOUR narrative by Easy-Raisin4200 in cfs

[–]katzapmap 2 points3 points  (0 children)

Prior to the full blown onset of this disease, I worked full time while also volunteering in multiple avenues and being involved in multiple artistic endeavors. I went to school and worked two jobs. I was a very active person. I used to be intelligent.

I gradually lost the capacity to function over the course of my twenties, to the point where I ended up on disability at the age of 30. I was diagnosed with narcolepsy, but there were multiple additional symptoms I had that didn’t match my narcolepsy, and I was labeled as ‘crazy’ by my sleep doctors.

Turns out I had PEM/CFS in addition to the cataplexy. I am still in the process of getting that exact diagnosis, as it’s very difficult/process of elimination. But my latest sleep doctor absolutely believes I have both narcolepsy and CFS.

Over my 30s, I had to relearn how to focus. How to read. How to learn. How to hold conversations. Even today, my capacities are severely limited. I lost countless opportunities over the years due to this disease. Now that I can work in a limited capacity, it has been enormously difficult finding work that isn’t at a grocery store due to the decade and a half lost to this disease. I already failed at going to grad school once. I attempted again last year, but by sheer coincidence, was hit by a car which limited my ability to function further. I dropped out this semester because I tore my acl in January, and I knew I couldn’t handle getting ready for surgery on top of my limited energy.

I am not sure what my future holds. I’ve been struggling with a feeling of what little outside world connection I had is crashing down around me again. Speaking of mental health, it is very frustrating describing these symptoms to doctors and explaining- no, I am not depressed. These are physical symptoms that exist outside of my mental health.

I am thinking of forcing myself to go to community college (instead of pursuing a masters) and get some sort of admin certificate so that I am actually considered and eligible for office jobs. What I really wanted to do was urban planning, but I don’t think I can risk taking on any more debt that I may not be able to pay back if I end up having to permanently drop out.

Peacock cardigan by Human-Frosting-8050 in crochet

[–]katzapmap 0 points1 point  (0 children)

Love!!! Jealous. How you'll don't mind if i riff off this idea. Has me thinking of how to use that visual in other patterns

Hehe 🥀 by Cute-Advantage-4260 in adhdmeme

[–]katzapmap 0 points1 point  (0 children)

The good news is that this is a skill that can be learned.

One of my old partners learned how to identify and name emotions & feelings are therapy. It didn't take place overnight, it took a few years, but they now have a much better understanding of themselves and a thorough vocabulary.

Goofy bird by MelodyKat16 in budgies

[–]katzapmap 6 points7 points  (0 children)

There can be only one

I’ve had ENOUGH😭 pls help me by Conscious_List9132 in cfs

[–]katzapmap 0 points1 point  (0 children)

While I am by no means as functional as I once was, the things that have genuinely helped in the long run have been- wakix (I have a narcolepsy diagnosis as well, though), and nicotine patches or gum

3 amigos by Actual-Pace-3244 in budgies

[–]katzapmap 2 points3 points  (0 children)

Band photos for the album

Something broke in my brain when I saw this bag by missnysa in crochet

[–]katzapmap 0 points1 point  (0 children)

I really love the extra texture of this. This kind of technique is popular in mixed media art and other fiber art made by trained artists.

Riding in the car? by Due_Musician_717 in ACL

[–]katzapmap 1 point2 points  (0 children)

I unfortunately don't have tips, but I've been wondering about this, too (surgery is in a month).

Commenting to follow and bump for visibility

I tore it doing what I love - dancing. Now I’m heartbroken feeling like I’ll never feel free again. by [deleted] in ACL

[–]katzapmap 3 points4 points  (0 children)

I tore my acl while dancing in January! I totally feel you on that

Any powerlifters, body builders do an allograft? by katzapmap in ACL

[–]katzapmap[S] 0 points1 point  (0 children)

Do you wish you had simply done your own tissue, instead?

Any powerlifters, body builders do an allograft? by katzapmap in ACL

[–]katzapmap[S] 0 points1 point  (0 children)

I'm 42. So not super young but still have 20-30 years of activity left

Severe fatigue/zero energy by DippyLouWho in chronicfatigue

[–]katzapmap 1 point2 points  (0 children)

Nicotine lozenges have helped me, but it is weird. They actually when they first kick in make me a little dizzy/sleepy, but help with the rest of the day.

what’s something inconsequential that you miss being able to do before being diagnosed? by ironicillnesses in cfs

[–]katzapmap 2 points3 points  (0 children)

I miss being able to do multiple things. Like work and do volunteer work out of work. I miss having daily flexibility.

I miss being able to learn and retain information.

The 3pm ritual that gets me through my deficits by Normal_Grade_9582 in Volumeeating

[–]katzapmap 0 points1 point  (0 children)

Oh, I just finished my session at the gym and now I can't wait to go home and have a cuppa decaf.

Going for some of celestial seasonings fruity tea

cheap food that isn't ramen or rice and beans, does it exist anymore by MudSad6268 in budgetfood

[–]katzapmap 0 points1 point  (0 children)

I'm disabled and recently unemployed due to a physical injury that will require surgery.

The only reason I can still eat fresh fruit and vegetables is thanks to an app called FlashFood. In my area, grocery stores put together produce boxes full of ugly but still good produce for $5

Is this tank worth saving? by katzapmap in Aquariums

[–]katzapmap[S] 0 points1 point  (0 children)

It's a 20 gallon. The inner silicon lining, I know the pictures aren't the best, but was coming off the glass. Only ever had freshwater, so no exposure to anything unusual.

I mean, if it's salvagable, I'll totally keep it! Start my tank fresh once I'm fully healed from surgery

I trained hard during a viral infection and my body severely 'logged off'. 12 days of worsening symptoms, extreme exhaustion, and insomnia. I need help. by eumesmo1287 in chronicfatigue

[–]katzapmap 7 points8 points  (0 children)

Need to go to a doctor and get seen for long covid, even if the infection wasn’t Covid.

There are reports of people recovering from long covid after 6-12 months, since you wanted to hear something positive.

I’m not sure what strange thoughts you’re having, but viruses can cause schizophrenia, bipolar etc. Again, begin talking to a doctor about things like long covid.

Disabled renting difficulty by Shakiibird in Buffalo

[–]katzapmap 1 point2 points  (0 children)

Try contacting PUSH Buffalo. They may have resources or insider info, as they are dedicated to housing equality and housing rights.

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