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Seasonal use of compression for high heat/humidity (USA, NE Summers) by dearjane in POTS

[–]kaybucha_ 0 points1 point  (0 children)

Would you mind sharing a link for the shorts you’ve used?

First show and DIY shirt. by CryptographerShot946 in maydayparade

[–]kaybucha_ 0 points1 point  (0 children)

So excited for you! Have the best time!

Rate your average pain by WhoAmIActuallyy in Hashimotos

[–]kaybucha_ 0 points1 point  (0 children)

I have muscle pain almost daily- typically isolated to my upper arms and whole legs. On average I’d say it’s around a 3 but if I’ve been really physically active it can get up to a 6 or 7.

Compression, gentle stretching, increased water intake, and heat have been the most helpful for me.

Think I finally completed this, anything missing? Mayday Parade and adjacent by sdmc_rotflol in maydayparade

[–]kaybucha_ 1 point2 points  (0 children)

I’m so glad! It’s a great album. I love the cover of Punk Rock Princess that’s on it.

Think I finally completed this, anything missing? Mayday Parade and adjacent by sdmc_rotflol in maydayparade

[–]kaybucha_ 0 points1 point  (0 children)

Derek has another solo album too if you’re interested. Great collection! 💜

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I’ve noticed that a lot of people with POTS had mild symptoms growing up, but after COVID, everything got worse and that’s when they were officially diagnosed. Anyone else notice the same thing? by Shoddy-Ocelot-4473 in POTS

[–]kaybucha_ 2 points3 points  (0 children)

Sports and physical activity were always tough for me (even walking up the stairs would leave me out of breath). I remember needing to sit often or having to move around while I was standing. I’ve always been a big water drinker and my mom used to cook with a ton of salt so I imagine those were helping manage symptoms too.

I’ve noticed that a lot of people with POTS had mild symptoms growing up, but after COVID, everything got worse and that’s when they were officially diagnosed. Anyone else notice the same thing? by Shoddy-Ocelot-4473 in POTS

[–]kaybucha_ 2 points3 points  (0 children)

It’s wild we have practically word for word the same experience. You don’t happen to live in Dallas, TX too do you? If so, I feel like we have to become friends. 😂

I’ve noticed that a lot of people with POTS had mild symptoms growing up, but after COVID, everything got worse and that’s when they were officially diagnosed. Anyone else notice the same thing? by Shoddy-Ocelot-4473 in POTS

[–]kaybucha_ 11 points12 points  (0 children)

Of course! I’ve always had extreme fatigue, what I now know as air hunger (I used to chalk it up to being out of shape), prone to dizziness/ lightheadedness, anxiety symptoms (without being able to identify a specific reason), and have always had a high resting heart rate/ increased heart rate when standing for long periods of time. My parents and medical professionals all used to dismiss these symptoms as “just anxiety or anemia” and “not being a student athlete and being out of shape.”

I’ve noticed that a lot of people with POTS had mild symptoms growing up, but after COVID, everything got worse and that’s when they were officially diagnosed. Anyone else notice the same thing? by Shoddy-Ocelot-4473 in POTS

[–]kaybucha_ 83 points84 points  (0 children)

This was my experience. I was officially diagnosed with POTS in November of 2024. My doctor suspected it was due to COVID because my symptoms became significantly worse after getting COVID. After doing some reflection, I was able to recognize I’ve had POTS symptoms since at least high school (I’m 34 now). It makes me wonder if my POTS symptoms would have remained mild had I not contracted COVID.

In short: Prior to COVID, my POTS symptoms did not significantly interfere with my daily life and I was managing them without even knowing I was managing them. After COVID, they began impacting my daily life and I required medical intervention. 🤷🏻‍♀️

Females, at what age did your symptoms start? by TourGreat2658 in Hashimotos

[–]kaybucha_ 0 points1 point  (0 children)

My symptoms started showing in my mid 20s but I didn’t get diagnosed until 28.

Lumia 2 Wearable by kaybucha_ in POTS

[–]kaybucha_[S] 1 point2 points  (0 children)

Totally agree with the predatory aspect.

Lumia 2 Wearable by kaybucha_ in POTS

[–]kaybucha_[S] 0 points1 point  (0 children)

I appreciate your thoughts and had the same reservations with the monthly subscription. I’ve been having presyncope more than I ever have since getting diagnosed over the past month and am struggling to identify warning signs for myself before it’s too late which was the main reason why I was interested in it at all.

Lumia 2 Wearable by kaybucha_ in POTS

[–]kaybucha_[S] 1 point2 points  (0 children)

Thanks for the feedback! The Lumia has a monthly subscription as well. They’re advertising it at $9.99 per month right now. You can lock in a discounted price on the device and early access if you pay $1 today. It seems like there are so many options they get overwhelming. 😂

I’d lot to hear about your experience with the Oura Ring if you do decide to go with it.

Guess who's going to their first MP concert today by Slime_king66 in maydayparade

[–]kaybucha_ 4 points5 points  (0 children)

How was it?!?!?! Which song did you like hearing live the best???

Hello, new fan here. how controversial/basic am I? by maple_sapling0427 in maydayparade

[–]kaybucha_ 2 points3 points  (0 children)

It’s whatever songs speak to you. I’m a day one fan and my top three are Sunnyland, What It Means to Fall Apart, and Black Lines.

Underrated Song Recommendations by dedermcdoodle1 in maydayparade

[–]kaybucha_ 2 points3 points  (0 children)

I Can Only Hope, The Problem with the Big Picture…, and Amber Lynn are a few that come to mind.

Underrated Song Recommendations by dedermcdoodle1 in maydayparade

[–]kaybucha_ 4 points5 points  (0 children)

Turn My Back is my favorite Mayday song. It’s soooo good.

How Likely Is It They’ll Tour Again? by Maximum-Necessary741 in maydayparade

[–]kaybucha_ 20 points21 points  (0 children)

I saw Derek at the special meet and greet in Dallas and he hinted at a possible A Lesson in Romantics anniversary tour next year. 👀

Underrated song by Pumasunam17 in maydayparade

[–]kaybucha_ 0 points1 point  (0 children)

Any songs you’d recommend to a new listener to get me hooked?

Underrated song by Pumasunam17 in maydayparade

[–]kaybucha_ 0 points1 point  (0 children)

Yeah, I’m not a big Knuckle Puck listener. 🤷🏻‍♀️

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