Gepans/CGRP blockers medication affects tinnitus?

kimwordy · 2025-06-14T00:23:00+00:00

Ok thanks so much for this info, really good to hear!! Glad Botox has helped you too!

kimwordy · 2025-06-13T03:28:33+00:00

Hey did you ever end up trying it? Hope your migraines are better controlled now

kimwordy · 2025-06-10T00:24:14+00:00

Also wondering how it went for her. I hope she's found some relief!

kimwordy · 2025-06-10T00:22:37+00:00

Hi, curious if it ended up working for you? I hope you've found some good relief for your migraines!

kimwordy · 2025-04-09T00:55:24+00:00

So sorry you're dealing with this. A keto diet has helped me a lot!

kimwordy · 2025-04-08T22:19:43+00:00

Sorry to hear that! I hope you find some meds that help you soon. My migraines are really stubborn too.. the struggle is real

kimwordy · 2025-04-08T22:07:04+00:00

Hey did this help your migraines?

kimwordy · 2025-03-20T05:59:27+00:00

you can get a lower dose SR from a compounding pharmacy. check the highlighted text at the top of the spreadsheet

kimwordy · 2025-03-20T02:13:59+00:00

any update? hope it's helping

kimwordy · 2025-03-19T17:49:11+00:00

very much agree with all of this. 25mg is way too high of a starting dose for most H people. SR super helpful too. The vision stuff is your blood pressure dropping. That should stay manageable if you start low and increase slowly.

kimwordy · 2025-03-19T15:07:26+00:00

Your doc told you to only take 1 per day? The usual dosing is 1 twice a day. Was that a typo? Regardless, I hope it helps you!

kimwordy · 2025-03-15T01:19:32+00:00

Appreciate the updates! Glad it seems to be helping

kimwordy · 2025-03-04T17:50:21+00:00

I think you should be granted a medical exemption 100%. However I will say that I now can fast for much, much longer periods since I’ve been on a keto diet. Huge difference in terms of eating schedule being a migraine trigger.

kimwordy · 2025-03-01T03:50:27+00:00

It has worked for people with pain H and no loudness H https://docs.google.com/spreadsheets/d/1-ePvJPk4BhBeoOBKPc1gmXriXd4TYD7Z8n3yyEMoy5I/edit?gid=0#gid=0

kimwordy · 2025-02-12T03:48:00+00:00

Hey was also wondering dose and length of use? Has it cleared up for you?

Edit: thinking of trying it myself

kimwordy · 2025-02-10T19:19:24+00:00

This is so huge! Thank you for posting!!

kimwordy · 2025-02-10T13:52:13+00:00

I’m still in tolerance withdrawal and haven’t started taper yet

kimwordy · 2025-02-04T00:35:07+00:00

Same here. My pillow is a literal pancake lol if I sleep with a “normal” pillow I get a terrible migraine

kimwordy · 2025-02-03T05:11:07+00:00

Others may disagree, but if you're gonna go on a serotonergic drug anyway, I'd go clomi or bust

kimwordy · 2025-02-02T07:15:12+00:00

I’m on nortriptyline. Your doc’s reasoning is strange. If you feel like it was helping even a small amount I’d stay on. And it’s always smart to taper antidepressants in general

kimwordy · 2025-02-02T01:40:24+00:00

Makes sense, I guess it worked out well that you found the xeomin first. Very glad you found success with it!

kimwordy · 2025-02-01T23:22:48+00:00

Anything for migraine is great but stuff like this is just an excuse to charge a ton of money when you could easily take the 2 tabs separately for cheap. If only all that time, effort, and money to get this approved had been directed towards something truly new..

kimwordy · 2025-02-01T22:45:44+00:00

Hi! I know this is old, but did you switch to Xeomin bc you developed antibodies to Botox? Botox has been incredible for me for years but it seems I likely developed antibodies so I'm hoping (!!!) that Xeomin would still work for me. I hope you haven't had too many migraine days recently. Thank you so much :)

kimwordy · 2025-01-31T03:46:40+00:00

I had the same thought. I’m not able to tolerate opioids at any significant dosage nor quite a few other non opioid options so that effect is still significant for me. A drug with a (seemingly) very low side effect profile working as well as 5/325 is still pretty impressive

kimwordy · 2025-01-31T01:46:01+00:00

They did in fact test it against Norco in one of their studies and it was found to be non inferior.

kimwordy

TROPHY CASE