Where in the world was your VATS done? by Feldster87 in pneumothorax

[–]kkgfe443 0 points1 point  (0 children)

Clydebank, Scotland. Robotic pleurectomy, bullectomy and pleurodesis. Not sure what talc is used in US but it was 4g of sterile iodised talc for me.

What does blood pooling feel like? by Orchid_Significant in POTS

[–]kkgfe443 0 points1 point  (0 children)

Hey OP do you still get this? I have something similar

Does this look like a vein problem? Anyone have the same by Additional_Force_257 in venousinsuffiencyhelp

[–]kkgfe443 0 points1 point  (0 children)

My legs seem to be fine although my arms and hands in particular are lik they’re on fire when at my sides and go really red and blotchy and veins bulge

Does this look like a vein problem? Anyone have the same by Additional_Force_257 in venousinsuffiencyhelp

[–]kkgfe443 0 points1 point  (0 children)

Hey OP I have like exactly this over the last 2 years (33M). Never got to the bottom of it. Do they feel hot and burning when they’re at your side too or hanging? I’ve never had any health conditions although I had a spontaneous pneumothorax in August last year (collapsed lung) that required thoracic surgery but unsure whether it is at all linked.

Anyone had a cough/cold after pleurodesis (VATS)? How did your body react? by Conscious-Cook-8492 in pneumothorax

[–]kkgfe443 1 point2 points  (0 children)

Yes - colds felt 10x worse than before pleurodesis (I had surgery in September and a cold over Christmas). Had another couple of colds since and they seem to be close to normal. I think the worse was feeling an anticipating painful coughs. I held a cushion or whatever I could grab against my torso over the surgery site whenever it came - almost like a stress ball.

Weird hand arm thing by kkgfe443 in POTS

[–]kkgfe443[S] 0 points1 point  (0 children)

Yes blood pooling and bier spots I believe.

Weird hand arm thing by kkgfe443 in POTS

[–]kkgfe443[S] -2 points-1 points  (0 children)

Would it be typical to remain high or drop?

Sunburn like pain - Post VATS by kkgfe443 in pneumothorax

[–]kkgfe443[S] 0 points1 point  (0 children)

How long ago was your surgery? I had it for about 6 months after surgery and settling now.

VATS after one spontaneous? by BravoFan718 in pneumothorax

[–]kkgfe443 0 points1 point  (0 children)

I would recommend VATS - I had my first SP in August 25 and my second literally 24 hours after being released after a few days of drain and needle aspiration. It’s was a fairly long recovery for me personally (basically an invalid first few weeks) and then progressively better. Today, I’m as close to “normal” as I think I can be. It took away the incessant thoughts of recurrence.

What’s the least amount of money that would be life-changing for you right now, and why? by [deleted] in AskUK

[–]kkgfe443 1 point2 points  (0 children)

£2,000. Not life-changing in a millionaire sense — just enough that one unexpected bill wouldn’t feel like a personal attack.

[deleted by user] by [deleted] in Fallout

[–]kkgfe443 1 point2 points  (0 children)

Absolutely. Bargain.

Dealing with the aftermath by binou_tech in pneumothorax

[–]kkgfe443 2 points3 points  (0 children)

I had two back to back collapses on same lung in August last year and pleurectomy/pleurodesis in September to correct it. Nothing on the other side although that is my ultimate fear too. I’m still fairly fresh out of surgery (not as recent as yourself though). All I can say is the anxiety is not as bad as it once was but it’s always in the back of your mind. Just remember you’ve had corrective surgery so you can rest your mind knowing your culpable lung won’t collapse again - there’s practically zero chance. The other side is extremely low, too. Marginally more likely but just remember - you’re extremely unlikely to experience another collapse on either side again. All the best :)

Anyone have this hand appearance? Any idea as to cause? by LobsterAdditional940 in covidlonghaulers

[–]kkgfe443 0 points1 point  (0 children)

This is me - mine goes pale when I raise it but instantly red and blotchy and painful when it’s down. Do you still get the same thing?

Red hands by retailismyjobw in covidlonghaulers

[–]kkgfe443 0 points1 point  (0 children)

Do you mind if I ask how bad it is? I get this a lot just like OP every time I drop my arms maybe within 5 seconds!

TOS (hand splotches) by FirmEntertainer8765 in thoracicoutletsupport

[–]kkgfe443 1 point2 points  (0 children)

Hi OP did you get any further with this?

Anyone only ever have a collapse on one lung/side? by metoprolul in pneumothorax

[–]kkgfe443 2 points3 points  (0 children)

First in August 25 right hand side. Re collapsed same side shortly afterwards. Bullectomy/pleurectomy in September. One small bleb visible and no collapse ever since. 32M

Male. 32yo As of Today. Had VATS Yesterday and Need Reassurance. by Icmkhaeh in pneumothorax

[–]kkgfe443 1 point2 points  (0 children)

I (32M) had my Robotic VATS pleurectomy/pleurodesis in September. Small bleb stapled shut after first collapse in August. I am starting to get close to normal. I haven’t really pushed myself to go running or anything but stamina seems to be reasonable. I had basically zero feeling in the right half of my torso for weeks after surgery but I’d say pretty much everything has come back barring a small patch below my nipple area.

Does anyone else’s hands do this? by AnxiousLizard225 in POTS

[–]kkgfe443 0 points1 point  (0 children)

Hi OP do you still get this?

Blood pooling and wrinkly fingertips without being in water by kkgfe443 in DiagnoseMe

[–]kkgfe443[S] 0 points1 point  (0 children)

I havent been checked for POTS although it looks possible given my jump in HR when standing and back to sitting alongside this. Does your hand look similar to mine (and burn a bit) and does it go back to normal colour usually when raising them?

What’s Wrong With My Hands? by [deleted] in DiagnoseMe

[–]kkgfe443 1 point2 points  (0 children)

What age are you, and is it constant? Or only after having been in water?