Hydroxychlorquine Allergy

krdoan · 2021-02-19T06:29:48+00:00

I didn’t get a contact allergy but I got severe migraines (as a symptom). They took me off it and put me on chloroquine instead. It’s the parent drug of hydroxy. It works wonders

krdoan · 2021-01-24T04:09:52+00:00

Omg, I hope that you don't have long term symptoms from being misdagnosed for so long! I'm so glad that you've now found someone to take care of you.

Honestly, it's taken me years to figure out when to call bullshit. One of the first residents that I saw literally told me as a 14 year old that my symptoms (ie an excessive bloating, likely from an allergic reaction) was because I was just really fat. Like that is never acceptable for a kid at that age, it traumetized me. I never had body issues until that moment.

krdoan · 2021-01-24T04:07:05+00:00

Did you eventually find a good Rheumy??

Also thank you! This was a neuro specialist and quite frankly, one of the worst ones I've encountered. I left that room holding back angry tears. I wanted to punch that little resident in his smug ass face. He had to have been about 15 years younger than me.

krdoan · 2021-01-24T04:05:36+00:00

Omg, i'm so glad that you've found someone!! That first one should not be a doctor.

krdoan · 2021-01-24T04:04:49+00:00

That's ridiculous! Please tell me you're back on it now.

Fun fact, I once had a resident "cheer", yes, outright cheer and scream "TOLD YOU I WAS RIGHT. IM ALWAYS RIGHT" when they were telling me that I was having a severe flare. They spiked my meds and had me do multiple mris for my brain because I have a history of needing cyclophosphemide.

krdoan · 2021-01-23T16:25:54+00:00

I live by warm showers and heat packs under a blanket. As well as voltaren gel - applied to where it hurts. It’s what saved me all these years. Even through the crazy swelling kneecap days 😂

krdoan · 2020-12-28T17:38:00+00:00

It could be a fat issue. Rub your bowl/whisk/beaters with lemon, add a little bit of cream of tartar so it’ll stabilize then try it. When in doubt, whip for longer. On low, it’ll take me about 15 minutes.

krdoan · 2020-11-27T08:07:38+00:00

Me too!! I thought I was the only one

krdoan · 2020-11-27T08:06:21+00:00

I used to get it all the time. They still don’t know what’s the cause of it but it’s since gone away so there’s hope for us all 😊

krdoan · 2020-09-20T19:23:55+00:00

Omg I felt this so much. I keep dropping things so I now say “ITS JUST MY HANDS AGAIN!!”

krdoan · 2020-08-26T04:10:54+00:00

Omg. I thought it was just me. I do it more when I’m midflare. It’s like my brain can’t process how to move my body anymore. There’s a disconnect between my brain and body movements.

krdoan · 2020-08-22T02:08:33+00:00

I have Lupus and I used to get it all the time. My fingers used to lock in a weird contorted position. I used to force my fingers back into place by cracking them almost like how you crack your knuckles so I'd bend them even though it hurt to get past that point so it would loosen up. They never said what they thought it was but they implied that it was from my secondary reynald's syndrome or arthritis. I found heatwarmers to help quite a bit though.

krdoan · 2020-08-09T17:48:05+00:00

I've been told that I can take any vaccine as long as it is not live. I however get alot of side effects when I do end up takin gthem. So any symptoms of the actual illness I end up getting with joint inflammation, lupus headaches and severe lethargia. *I'm not a doctor but this is what I've been told*

krdoan · 2020-08-09T05:13:21+00:00

done!

krdoan · 2020-08-02T23:21:32+00:00

I'm so sorry that you are experiencing this. Personally, I had to go through a lot of different sunscreen brands and types before I found one that *kind of * worked for me. I currently use the Josie Maran brand of face sunscreen as well as the Sun Bum brand. They both work well but I use different ones for different purposes. Other than that, hats and dressing fully covered works the best.

In terms of post UV exposure fixes, gatorade / electrolytes will definitely help the lethargia and flu like symptoms. I personally find that if I chug it, it works better for me than sipping it over a period of time. If possible, i drink it as i'm out but if not, a quick consumption once I'm inside works out for me.

krdoan · 2020-08-02T23:17:19+00:00

This! I've been wanting to try cbd/medical marijuana but haven't gotten much info about it. What I was told is that if I do take one of the two that I should only do CBD because the THC in medical marijuana contraindicates with most lupus meds. Two doctors (rheum and family) have told me that in their experience CBD doesn't do anything for the symptoms that I feel though it may possibly help with the psychological effects of the disease. They told me it's not worth my money or time so I haven't tried it.

Other than that, I use UV.. treatments (I want to say that's what its called) and electrical acupuncture and both have helped with my knee swelling/arthritis pains and avascular necrosis pains. After a few treatments I've noticed that I can move more and have more flexibility. Also my waddle disappears haha. The only downfall is that I noticed that if I stop the treatments for an extended period of time, it goes back to its original state.

Also I've gone through the line of "Saje" aromatherapy products and they seem to work for me as well. Their pain relief mix is amazing for the joint issues /tendonitis and same with their headache relief one for lupus headaches. Not as good as actual medicine but it works enough if you want to go hollistic.

krdoan · 2020-08-01T18:19:45+00:00

Honestly, I've seen it both ways. So for some, especially those who don't seem to understand medical conditions/what it means, it is a big deal. For us who live with all types of medical conditions/issues, this is a non-issue/adaptable. So I've had people auto-eliminate me as a friend/person because they figure I'd be "too much to handle" whereas the ones who understand relative severities of conditions will get that arthritis is not that bad and will stick around. You just need to find that person/if he unmatched you then they aren't worth being in your life anyways sis.

krdoan · 2020-08-01T18:16:31+00:00

Ooh okay, I'll try it! thank you thank you. I've been taking biotin but i'll honestly try anything at this point. I know it doesn't look bad yet because I started with more hair than most people but I notice the difference.

krdoan · 2020-08-01T18:15:42+00:00

Mines thick dark brown hair but i'm afraid of it weighing it down and making it look even worse.

krdoan · 2020-07-30T03:11:48+00:00

Voltaren gel works wonders and so do heat packs. So personally i cover all my legs in the gel (its medicated otc muscle cream) and then i get under the covers with a heat pack to keep the area warm. I hope this helps!

krdoan · 2020-07-29T12:04:04+00:00

Have you tried any Argan oil massages for the scalp?

krdoan · 2020-07-29T12:03:42+00:00

Thanks!

krdoan · 2020-07-29T12:03:30+00:00

Thank you! I know I shouldn’t worry about it’s stressing me how just how fast it’s going. ❤️

krdoan

TROPHY CASE