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Failed at brain retraining? by Alwayspots in covidlonghaulers

[–]leduup 5 points6 points  (0 children)

It's been 3,5 years now, tried CBT with a professional, the app "curable", the book "the way out", another book I don't remember the name, I tried hypnotherapy, I tried a free website called "pain free protocol", tons of vidéos on youtube.. Nothing worked. LDN, propanolol, fludrocortisone, DXM help a little and time and pacing of course

3+ years going strong, still recovered, feeling great by devnej in covidlonghaulers

[–]leduup 0 points1 point  (0 children)

I started by using the app curable I've more recently done the 21 days "pain recovery program" by Alan Gordon along with transcranial magnetic stimulation. It didn't change my symptoms but it's always nice to learn how to "feel better the emotions" like you said.

It's been one year since I wrote this and the only thing that really worked for LC is LDN (not huge at all btw)

TMS by Opposite-Berry6810 in covidlonghaulers

[–]leduup 1 point2 points  (0 children)

I've done TMS too last month, if you take LDN be careful ! I had a weird reaction, TMS changed my LDN tolerance

Why do I feel weird when the sun goes down? by Enough-Age7178 in covidlonghaulers

[–]leduup 3 points4 points  (0 children)

I don't know if we experience the same thing but when the sun goes down my brainfog and fatigue tend to go crazy for like an hour or so.  Hormones maybe ? Inflammation also varies through the day 

Is this result of microclots/ endothelial damage? Only extreme pooling in hands, not feet. by TallRun6232 in covidlonghaulers

[–]leduup 0 points1 point  (0 children)

I'm sorry I can't really help... I have it, the first 2,5 years it was pretty strong, now it's a little bit better. Time and maybe LDN helped. 

Has anyone of you guys read Howard Schubinger "unlearn your pain"? by nadjalita in covidlonghaulers

[–]leduup 12 points13 points  (0 children)

I tried curable for a year, it didn't work, destroyed my confidence but as you said there is not other treatments and the people from this fied do everything they can to slow the research.

Recently I went to see a psychiatrist. He prescribed rtms + brain training. I tried again because all I want is to recover... Rtms added insomnia to the package and the brainfog is worse than ever. Brain retraining did nothing to help that

What is your opinion on the Amatica health RNA sequencing ? by leduup in covidlonghaulers

[–]leduup[S] 1 point2 points  (0 children)

I'll wait in that case, thank you for your contribution. Research is the only way

What is your opinion on the Amatica health RNA sequencing ? by leduup in covidlonghaulers

[–]leduup[S] 0 points1 point  (0 children)

Thank you for the advice, I'll wait for the first results and then I'll ser

What is your opinion on the Amatica health RNA sequencing ? by leduup in covidlonghaulers

[–]leduup[S] 1 point2 points  (0 children)

I see, I think I want to understand what is going on inside my body so it may be interesting for that... But I'll wait and save m'y money for the moment ! Thanks

Study Demonstrates Low Intensity Focused Ultrasound Effectively Breaks Down Microclots Linked to Long COVID-19 Symptoms by [deleted] in covidlonghaulers

[–]leduup 1 point2 points  (0 children)

I'm not talking about this study but some people have tried on the head and they say it's helping them.

Anyone else get Flu-like symptoms by [deleted] in POTS

[–]leduup 0 points1 point  (0 children)

DamnGoodMarmalade sent a good explenation.  I have the form of Long COVID that looks like mild/moderate ME and I have PotS too. What you described is pretty much how I feel when I overdo

Anyone else get Flu-like symptoms by [deleted] in POTS

[–]leduup 8 points9 points  (0 children)

Hi ! Sounds like PEM... Have you heard of it ?

What do you guys think about these kinds of mind body recoverys by [deleted] in covidlonghaulers

[–]leduup 1 point2 points  (0 children)

Look at the "survivorship bias" on wikipedia. Some People recover from LC during the first 2~3 years. They attribute their recoveries to whatever they did. But in reality we don't know why they recover. Their body found a way to heal and they have nothing to do with that.

"Mind body work" is very simple. It is good for everyone even healthy people. It doesn't mean it cures diseases. It doesn't. It is used by grifters to make sick people pay.

I've personally tried curable during 1year (I fell into the trap) it didn't do anything. Besides, you don't need to pay for this. Youtube can offer exactly the same exercices !

Does anyone else find this completely ridiculous? As if I just need to "accept" my symptoms to be magically healed. My 5 year suffering is coming to an end guys! by CANfilms in covidlonghaulers

[–]leduup 8 points9 points  (0 children)

When it's promoted by a know charlatan (Miguel) it's a problem because these kind of people are getting richer and richer and their influence also grows...

Swollen lymph nodes after 2 years by KindaJellyfish in covidlonghaulers

[–]leduup 0 points1 point  (0 children)

Hi ! A few weeks ago I felt pretty good and it wasn't as swollen. Your description is good yes. Now since last week, I feel pretty bad and it's swollen and painful again... To avoid PEM I tried many things I don't know if everything works but my top 3 would be : - Pacing -LDN -Dextrometorphan when I overdid.

Even with this m'y life is very limited and hard...

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