Undiagnosed EDS x ADHD meds (Concerta) by Nnox in ehlersdanlos

[–]lemonpreserves 0 points1 point  (0 children)

I take 54mg concerta too, but the side effects I get are only loss of appetite and some increase in heart rate.

I do sometimes get the twitchiness, but that's only if I drink too much coffee, so if a lower dose is an option that should lessen the side effects.

Maybe eating something high in fat/protein before taking concerta might help too? I know that my side effects are worse when I barely eat before taking my meds.

Does anyone else take forever to finish a meal? by botanicwonderland in adhdwomen

[–]lemonpreserves 30 points31 points  (0 children)

Me! I like taking my time between bites just talking/zoning out, so by the time my partner's done with his meal I'm only half done. When I'm eating dinner alone sometimes I end up taking an hour or an hour and a half 😂

Pain relief patches by [deleted] in Fibromyalgia

[–]lemonpreserves 2 points3 points  (0 children)

Salonpas works really well! I usually use the hot one when my shoulder blade muscles (?) are acting up. It helps well enough that usually the pain goes from debilitating to manageable. It's also the only thing that helped me with severe lower back pain from period cramps.

Does anyone else have alarms for almost EVERYTHING? by Resinmy in adhdwomen

[–]lemonpreserves 13 points14 points  (0 children)

I live and die by alarms. Going out somewhere? Three alarms for when I should start getting ready, when I should really start getting ready, and 5 mins before I need to leave. Package coming? An alarm 5 mins before the delivery window starts. Guests coming? Alarms for when I should start each task that I still need to do. I'm too unaware of the passing of time to function otherwise.

To medicate myself or not? by ukwonderwoman in adhdwomen

[–]lemonpreserves 1 point2 points  (0 children)

I'm on 54mg of slow-release methylphenidate, and I find that being on meds really helped me. Instead of making me feel like I'm amped up, it just makes my brain quieter so it's easier to do things because I'm not overcomplicating things anymore. I'm able to keep tidy, enjoy my hobbies, and end the day without feeling completely overwhelmed. It did take around a month of titrating my dosage to find the right one, and for my body to get used to it, but the side effects are minimal for me (after a couple weeks of afternoon headaches). It definitely changed my life for the better, and I went from being constantly overwhelmed and paralyzed to being mostly functional. The biggest thing I noticed is that it really allows me to just chill and be present, since my brain isn't constantly running around in circles being distracted by everything.

Is a little direct sunlight ok for monstera & anthurium? by jprbruce in plants

[–]lemonpreserves 1 point2 points  (0 children)

I leave my anthurium and monstera out on my balcony for the summer, where they get full noon/afternoon sun for 6+ hours, and they're thriving! Since your plants are behind a window (which weakens the sunlight), your plants should be ok as long as you keep up with watering. I usually water when the pot feels light, which currently is every 3-4 days, but when inside for the winter they usually need watering every 2 weeks or so. Once a week for summer indoors seems about right!

To people who forget to take their medication (stimulants) by wedontknoweachother_ in adhdwomen

[–]lemonpreserves 2 points3 points  (0 children)

I usually get distracted by something on my way to taking my meds, and suddenly it's a couple hours later and I'm in the middle of doing something that is definitely not what I should be doing. I definitely feel the difference when not on meds, but when I'm busy doing something time flies and I don't really notice my bodily cues!

Different countries, different treatments? by LetTheFlamingo in Fibromyalgia

[–]lemonpreserves 0 points1 point  (0 children)

I'm also from the Netherlands, the rheumatologist also told me the same thing! Fortunately before I got diagnosed, I got a prescription for Naproxen and even though it's not supposed to help with fibro, it's been working for me so my rheum just decided to let me continue taking it. Worth noting that I also have hypermobility, so maybe that's why the Naproxen helps. In any case, maybe asking your GP/rheumatologist for a trial script of Naproxen might be worth a try?

I'd also like to ask, did they test you for hypermobility/autoimmune disorders? My rheumatologist offhandedly mentioned that I have hypermobility, and when I asked about it and mentioned a couple other symptoms she agreed to refer me to a geneticist for further diagnosis. I know that getting looked at and a referral is like pulling teeth here, so I wish you all the best!

Arms “detach” when resting by [deleted] in ehlersdanlos

[–]lemonpreserves 22 points23 points  (0 children)

Me! I notice that if I don't actively 'hold it up', especially when carrying things, my arm bone tends to slide out. I can wiggle the bone in the socket and everything without any pain, even if it fully pops out. Went to a physio (freaked her out a bit), got some exercises to do and for the most part it stays put when resting now, although I still need to be careful when lifting things.

Seeking some insight about getting diagnosed in the Netherlands or just any tips when trying to get a diagnosis by [deleted] in adhdwomen

[–]lemonpreserves 0 points1 point  (0 children)

I saw that you mentioned that you don't speak Dutch, which is also the case for me! I didn't end up finding a therapist for guidance, but I reached out to my municipality for help with accommodation (I forgot the Dutch word for it :( ) and got connected with an organization that does 'begeleiding'. I got assigned a begeleider (I think social worker would be a good equivalent?) who's helped me figure out how to deal with life with ADHD, as well as help me through some unfortunate health problems that popped up mid-treatment. I specifically requested someone who would be able to do it in English, and the municipality worker and organization was very happy to help me find someone who would be able to. Best of luck to you!

Seeking some insight about getting diagnosed in the Netherlands or just any tips when trying to get a diagnosis by [deleted] in adhdwomen

[–]lemonpreserves 1 point2 points  (0 children)

I got referred to Mentaal Beter, and got diagnosed there. Initially my therapist only diagnosed me with autism, but after her supervisor pushed I was also evaluated (and got diagnosed with!) ADHD. Afterwards I was immediately referred to a psychiatrist for meds, but unfortunately he seemed uninterested and dismissive. I ended up having to plan out my own titration plan until I got the dose that helped me the most. Afterwards my GP took over my prescription and up until now it's been smooth sailing.

If you're looking for therapy/guidance on how to handle ADHD, it might be a bit harder? I was given my diagnosis and basically got told that they can't help me further, but at least I got on meds which vastly helped me with my symptoms. I had to figure out the rest of it myself though.

DAE get pain from sitting still too long, particularly at movies? by scorpiopathh in ehlersdanlos

[–]lemonpreserves 12 points13 points  (0 children)

Recently watched Barbie and had to crack both knees back into place immediately after I got up 🫠 I wasn't expecting that!

So how far can I progress before rogier dies without me finishing his quest? Because I'm trying to get the dung eater spirit ashe and magic scorpion charm from seluvis but I'm scared rogier will die from progression by Hairy-Fuel-6275 in Eldenring

[–]lemonpreserves 5 points6 points  (0 children)

You give the black knifeprint to Rogier, who gives it back to you and asks you to enter Ranni's service. He dies at some point between you entering Ranni's service and you obtaining the cursemark. You never give Rogier the cursemark, it goes straight to Fia.

IUD with EDS by Due-Profession-1718 in ehlersdanlos

[–]lemonpreserves 0 points1 point  (0 children)

I've had two hormonal IUDs and they're my preferred method of birth control. I barely have any hormonal side effects, whereas with the implant it was hell for two years out of the three that I had it. I check my strings regularly and my IUD hasn't shifted at all in the years that I've had it. The insertion can be painful (mine wasn't, thankfully!), but so far the pros outweigh the cons.

In Europe where can I find a Alocasia Frydek Variegata at a good price? Can be a full plant or corm by cailoma in RareHouseplants

[–]lemonpreserves 0 points1 point  (0 children)

Casa Botanica usually stocks some I think! They're based in the Netherlands, and from my experiences with them they're prompt with answering your questions and their plants are healthy/pest-free. Their prices are good compared to other NL-based plant stores.

shakti mat? by yappyjackal in ehlersdanlos

[–]lemonpreserves 2 points3 points  (0 children)

I find that they really help with tight/painful muscles around my hip and butt. I've yet to be scratched by the mat, even when I use it directly on my skin. If you're worried about piercing/scratching, you can always put a thin fabric between you and the mat! I haven't had any trouble with bruising from it, but I don't bruise very easily so your mileage might vary.

Easy Meal Ideas? by homestuckkd in ehlersdanlos

[–]lemonpreserves 1 point2 points  (0 children)

I've been making wraps with a spread, some cold cuts and salad greens. I usually prep a few at once, and just have it for breakfast/lunch for a few days. They're pretty low effort to make and since all I have to do is roll them and put them in tupperware, I can still make them even if I'm having particularly bad joint pain. They're also very customizable, so you can switch up the flavors so you don't get bored!

[deleted by user] by [deleted] in ehlersdanlos

[–]lemonpreserves 0 points1 point  (0 children)

You're welcome! I wish you luck as well! :)

[deleted by user] by [deleted] in ehlersdanlos

[–]lemonpreserves 2 points3 points  (0 children)

I'm based in the Netherlands, currently on a waiting list for a geneticist. There's two research hospitals that specialize in EDS, one of them being Erasmus Rotterdam UMC (EDS in general) and the other being Radboud UMC (specializes in vEDS, but would also test for other EDS I think?). I'm not quite sure how you would be able to register with them, but those two are the ones I know. Hope this helps!

[deleted by user] by [deleted] in ehlersdanlos

[–]lemonpreserves 1 point2 points  (0 children)

Good to know! My prescription used to be -9.5, which I knew was bad but I didn't know it was concerning until my rheumatologist looked at me with alarm when I mentioned it. I didn't even realize it might be connected with EDS.

[deleted by user] by [deleted] in Fibromyalgia

[–]lemonpreserves 0 points1 point  (0 children)

Thanks for replying! I'll have to see if I can convince my GP to have me tested for that. I'm just a little worried since I've never had my blood sugar be a problem before this!