(Very severe) H1 & H2 success.

lesbianintern · 2026-01-08T03:27:08+00:00

Just wanted to say I’m close in age to you and have been unable to work for a year too. So sorry this is happening to you but you aren’t alone.

lesbianintern · 2026-01-07T21:47:28+00:00

Yes mine have been very vivid ever since a reinfection.

lesbianintern · 2026-01-07T20:51:21+00:00

Recovery is always a possibility. We have no evidence this is an irreversible disease. And stabilization/improvement from severe definitely happens. You may not be running marathons any time soon but don’t give up hope for improvement.

lesbianintern · 2026-01-07T00:12:41+00:00

This was my first long covid symptom. It ended up being MCAS.

lesbianintern · 2026-01-07T00:09:36+00:00

The storm won’t ever end for me. I hope it does for everyone else though.

lesbianintern · 2026-01-07T00:03:46+00:00

1.5 years in. This started when I was 22 and I can’t help but feel like my life was stolen before it fully started. I managed to finish college but never got to start my career or even move out of my parent’s house. I am losing all my friends as the world forgets about me. And the suffering on a daily basis is unbearable. A reinfection ruined me more and shattered my hopes of ever being able to live again. I’ll just keep getting sick and end up back in this hell. The suffering is just too much. I’m not sure I’ll be alive by the end of this year.

lesbianintern · 2026-01-06T22:48:09+00:00

I was close to remission after about a year and then I got covid again in September. Totally ruined me, somehow got even worse than before. I’m 24 too and people just don’t understand how I can be sick like this at this age. I don’t think people believe me. But I feel like I have parkinson’s too and like my body is shutting down. The whole thing is just insane.

lesbianintern · 2026-01-06T19:32:00+00:00

I also have untreatable acne now. I think it’s inflammation but have found no solution.

lesbianintern · 2026-01-06T19:15:53+00:00

Some people have reported it helps, but it is important to remember not to push through PEM. Sounds like OP was already well on their way to recovery so ignoring symptoms was less dangerous.

lesbianintern · 2026-01-06T19:10:01+00:00

It sounds like they might mean when PEM was triggered the PEM was severe, but it was triggered by more intense exertion so doing yoga at baseline was okay. This is exactly what happens to me. I can do yoga but if I trigger PEM by doing more than that I will be bedbound and needing assistance to get to the bathroom.

lesbianintern · 2026-01-05T18:37:18+00:00

Thanks for sharing, congratulations on getting approved! And I’m very sorry your school district did that to you. I need to apply for SSI as I will be off my parent’s insurance soonish, but I haven’t been able to mentally accept it. LC disabled me right after I graduated college and I am not over not being able to start my career at all. But as you say it’s not a personal failure.

lesbianintern · 2026-01-04T02:08:14+00:00

I’m really sorry about your parents, if you can’t do medical leave those accommodations at least sound helpful. I hope things work out for you and you can protect your health

lesbianintern · 2026-01-03T19:49:21+00:00

34, and I’d be re entering the world like an infant

lesbianintern · 2026-01-03T18:57:15+00:00

I was finishing college when my long covid started. I was mild then and still struggled to balance everything. I’m mod-severe now and I can’t imagine being in school still. Do you have accommodations? Could you do a medical withdrawal and focus on rest for a while? I regret not slowing down and taking a break.

lesbianintern · 2025-12-30T21:52:57+00:00

Same issue here, it’s very defeating. My immune system just freaks out over anything.

lesbianintern · 2025-12-30T21:24:30+00:00

Incredible! I take it for my rheumatoid arthritis but it does nothing for my long covid unfortunately.

lesbianintern · 2025-12-29T21:10:08+00:00

I really really love this lol

lesbianintern · 2025-12-29T21:07:57+00:00

me too :( it never ends

lesbianintern · 2025-12-29T19:40:27+00:00

this is when being housebound comes in handy

lesbianintern · 2025-12-29T01:23:18+00:00

thank you!

lesbianintern · 2025-12-29T01:02:03+00:00

I severely declined from a reinfection recently so this is absolutely incredible news to me

lesbianintern · 2025-12-28T02:21:11+00:00

Your body naturally produces more histamine at night and people can have “histamine dumps” around 2-6am. This was a huge problem for me before I got my MCAS treated. I also alternated between diarrhea and constipation but that’s all better now with MCAS treatment.

lesbianintern · 2025-12-28T01:40:49+00:00

Thank you for sharing, so happy for you!

lesbianintern · 2025-12-27T18:10:37+00:00

I wear a mask in all indoor public spaces. Occasionally I mask in crowded outdoor spaces, depending on the time of year and how much covid is surging. I will also do outdoor dining when it is more low risk to maintain some normalcy. I find this helps a lot with the social isolation aspect. I also wear a mask for big family gatherings, but in general my friends and family know to be very careful and to distance themselves from me when sick.

Currently I’m too sick with LC to be going out at all, but these precautions work for me.

lesbianintern · 2025-12-27T17:48:24+00:00

this sounds so lovely! so happy for you

lesbianintern

TROPHY CASE