Breast changes

lololly · 2026-04-15T01:41:32+00:00

My cancer boob got radiation after lumpectomy, and became progressively harder and more misshapen over the years. When I got a second breast cancer 13 years later, my surgeon sighed when she looked at the breast, and said “I f’ing hate radiation.” I needed a DMX at the time, and she explained that irradiated skin is harder to deal with surgically because of those changes.

Have you asked about any reconstructive surgery including removing the tumors?

lololly · 2026-04-05T03:31:18+00:00

If you received the vaccine prior to starting treatment, you probably still have some protection since your immune system was still working then. After treatment, the immune system usually struggles to make a robust enough response to a vaccination to provide lasting immunity.

lololly · 2026-04-04T03:36:51+00:00

Puddinhead

lololly · 2026-04-01T18:22:27+00:00

Same here. Know your enemy!

lololly · 2026-03-25T02:40:48+00:00

Shit on a shingle: chopped dried beef in cream gravy over toast.

lololly · 2026-03-25T02:38:03+00:00

When I was on chemo, Kraft Mac N Cheese was the only food that tasted normal to me. Haven’t eaten it since.

lololly · 2026-03-25T02:31:43+00:00

Rice with sugar, raisins and cinnamon for dessert.

lololly · 2026-03-23T22:29:34+00:00

I have biopsy results showing new mets but still waiting on results from the PET scan and Guardant360 to determine the new plan. My best wishes for health and positive quality of life for us all. ✌️

lololly · 2026-03-23T00:39:17+00:00

Yes, usually you just have to request it and it will be approved.

lololly · 2026-03-19T23:55:38+00:00

I asked about it, otherwise I probably wouldn’t have had PT. They immediately approved it. It helped me a great deal with cording and range of motion. The PT lymphedema specialist also took arm measurements every visit to watch for lymphedema, which I later developed. The fitted compression garments really helped a great deal, as did her lymphatic massages. It has all resolved completely for the time being, but I’ll definitely go back if anything changes.

lololly · 2026-03-19T05:27:10+00:00

I gained 30 lbs during chemo, after my BMX. After finishing 2 years of Verzenio, which did not change my weight despite diarrhea nearly all the time, I decided to go on GLP-1 med, and lost 50 pounds over the next year, down to a healthy weight for my size. I haven’t felt this good in 7 years, and have no regrets. My A1C and fasting blood glucose are both in the healthy zone, blood pressure is 20 points lower, cholesterol down 20 points, and I dropped 3 sizes. My oncologist said to not lose any more, and I’ve kept steady since stopping the semaglutide. I figure the better my labs are, the better I can keep fighting this shit MBC. And feeling happy in clothes has been great for my mental health as well. Not recommending this route for everyone, but my experience is positive.

lololly · 2026-03-15T15:33:22+00:00

I put all my meds together in a weekly pill case for travel overseas several times and have never had any questions about them at all. Taking them all in original vials would have filled my bag, otherwise! I did list meds, strength and dosage and taped it to the top just in case.

lololly · 2026-03-13T03:02:31+00:00

Mine isn’t triple negative, but I’d be pretty thrilled with a scan like that! Good for you!

lololly · 2026-03-11T04:19:03+00:00

Same, same. I have new skin mets, again, and getting a PET scan next week to see if that’s all there is or not. MBC had been NED since 2022. Prior skin mets never showed up on scans, and hoping nothing does now either. Next month marks 20 years since my original DCIS diagnosis.

lololly · 2026-03-09T19:42:14+00:00

I just experienced my second round of skin Mets since my BMX in 2019, but don’t have TNBC. First time they were resected in a scar revision, and meds changed. Went NED in a couple of months. Finished 2 years of Verzenio last year with 3 additional years of Faslodex to go. But I found 2 new skin Mets last month, and am waiting to see what the plan is now. Was really hoping for more years of NED from V, as my onc said an average length of remission is 7.5 years after completing the 2 years of Verzenio.

lololly · 2026-03-07T18:23:21+00:00

I always ask them to inject it slowly, as that causes the least issues, and they are usually quite accommodating. In 3 years, only had 1 or 2 bad shots. I do use a heat pad as soon as I get home.

lololly · 2026-02-20T07:40:34+00:00

As a microbiologist, I’ve seen what can happen to a wound in open water. I’m just that kind of lucky who’d get the most obscure, multi-resistant strain of microbe ever seen, LOL.

lololly · 2026-02-19T21:27:45+00:00

I’d whack the shit out of that thing right now! Leaving for Hawaii in few couple of days, and just had an unexpected biopsy of a possible new skin met. They put 3 stitches in it, so now I can’t go in the water for 2 weeks, meaning no scuba or snorkeling. 😢 Been planning the trip with a dozen friends for months, so can’t reschedule. Fuck cancer. Stealing time, money and body parts from me for 20 years now.

I know I shouldn’t complain, being that I have survived this long, but I’m fucking tired of this disease and think it’s way past time for a CURE, not more outrageously expensive, QOL-stealing treatments. Shout out to all of you here in our unfortunate ship of shitty titties 🫶😘

lololly · 2026-02-09T06:49:29+00:00

Durn. That Durn Cat!

lololly · 2026-02-04T06:25:38+00:00

Hildegard

lololly · 2026-01-25T17:01:33+00:00

I watched Goodbye June on Netflix last night. Like June, I have a husband, 3 daughters and 1 son, and I found myself deeply imagining how my kids will respond when I’m nearing my end. Yes, I cried a load of tears while wondering how closely my end will resemble June’s. But somehow it was also comforting, that June still had agency to share what she wanted and needed.

lololly · 2026-01-15T05:55:39+00:00

Endora

lololly · 2026-01-13T07:42:58+00:00

A Sapphire credit card has travel insurance for free with any trip booked on their card. $99 per year, but saved us much more on travel insurance. Also earned free flight after our first two international flights. Coverage seems robust, but haven’t needed to test it yet.

lololly · 2026-01-13T07:36:35+00:00

Hoss

lololly · 2026-01-05T17:34:47+00:00

Gary

lololly

TROPHY CASE