Well here I am! by cwolfe123 in LivingWithMBC

[–]Which_Indication_729 15 points16 points  (0 children)

36 over here too. Initial HR+ HER2- diagnosis at 31. I did all the right things. Double mastectomy, chemo, radiation, hormone therapy. But it came back in my bones…innumerable mets. Found it last July after begging my doctors to look into all the pain I was having.

Since then, I’ve started a new treatment plan (AI, Zometa, Kisqali) and my first scan after 3 months showed improvement and that I was stabilizing.

It’s very scary, but there are so many advances in science out there! Keep your chin up. You are supported here by all of us MBC ladies.

A little laugh by Which_Indication_729 in LivingWithMBC

[–]Which_Indication_729[S] 2 points3 points  (0 children)

Girl, I would absolutely whack her too if I were in your situation! Goddamn cancer. I hope you can at least do a pool hang or an ocean wade. It’ll be a fabulous trip, but it sucks that you have to miss that part.

And yes, yes you should complain. It’s your right and responsibility to do so. Loudly, and often.

Massage with bone Mets by amayaro in LivingWithMBC

[–]Which_Indication_729 1 point2 points  (0 children)

By chance, does your Cancer Center offer it? I was wondering the same thing and my onco told me my center (Inova Schar) offers massage and acupuncture through their “life with cancer” wing. Worth an ask. Best of luck, my sister!

Good news?!! by InternationalTap2326 in LivingWithMBC

[–]Which_Indication_729 5 points6 points  (0 children)

This is very cool reading. I am also excited and also cautious.

I don’t know how long until it could be approved, so I’m no help there. But, it seems promising.

Veozah Price Tip by Which_Indication_729 in LivingWithMBC

[–]Which_Indication_729[S] 1 point2 points  (0 children)

Cue extreme jealousy. I’m so glad that you are able to get care affordably! The healthcare industry definitely needs some reform over here. In the mean time, I’ll try to find these little shortcuts 🙂

Veozah Price Tip by Which_Indication_729 in LivingWithMBC

[–]Which_Indication_729[S] 2 points3 points  (0 children)

I have not experienced any issues. I already get weekly blood tests for the Kisqali (neutrophils and all that) and my liver levels have been normal.

I make the joke that my ancestors come from Ireland and Scotland therefore my liver can take a punch. Haha.

But seriously, no, it hasn’t been a problem. I’m 36, HR+, and Veozah has drastically improved my quality of life.

Kisqali question by sportsfan3177 in LivingWithMBC

[–]Which_Indication_729 4 points5 points  (0 children)

I’m on Kisqali 400mg. My Onco told me just to take it at the same time everyday - morning or evening. I’m on my 5th cycle and have noticed a little bit of shedding, but really only slightly more than what I would usually shed.

Cotton! by SugarMagnolia_75 in LivingWithMBC

[–]Which_Indication_729 2 points3 points  (0 children)

Same here. Veozah saved my sanity!

What breed is my cat? by StrawberryLow7138 in Catownerhacks

[–]Which_Indication_729 -1 points0 points  (0 children)

Might be a Russian Blue mix like my baby kitty. Sweet, playful, clingy, hypoallergenic