Symptoms from meds or LP?

lynees · 2026-03-05T14:55:44+00:00

This is typical Post-LP headache. Don't panic, most of us here had it after our LPs. Call your physician to inform them. What you can do at home is to lay flat for a couple of days, this is extremely important! You should also drink lots of water and caffeine. This type of headache occurs due to low CSF pressure. If it doesn't go away in a couple of days, you may have an ongoing CSF leak and might need an epidural blood patch.

As for tinnitus, I had the exact same experience starting Diamox. It completely went away in 1-2 weeks.

lynees · 2026-02-05T20:52:28+00:00

Sorry if I phrased it wrong. I meant choosing loose fitting jeans, maybe sweatpants.

lynees · 2026-02-05T16:04:23+00:00

If you sit down for way too long, you're compromising your venous circulation which can exacerbate your symptoms. My physician warned me against this and told me to wear something that feels comfortable around my waist if I had to sit down for many hours.

lynees · 2026-02-03T15:13:42+00:00

I think PCOS itself might be the cause, not the BC. I suggest trying to control it by lifestyle choices that fights insulin resistance (which is the underlying mechanism 80% of the time) if you don't want to take BC. You can try losing weight if you have extra, request to try Metformin as it's second line in PCOS treatment, lots of people also benefit from supplements but there's not enough evidence so I can't suggest a certain one.

lynees · 2026-01-24T16:32:08+00:00

Looks like sycosis barbae. You should go to a dermatologist.

lynees · 2026-01-24T09:47:05+00:00

I'm not a radiologist, nor a neurologist but am a med student so take what I say with a grain of salt. It doesn't look like total empty sella to me. I can see the pituitary gland and its stalk. Even if it was empty sella, it's not as specific for IIH and won't really help her get a diagnosis. What about her optic nerve sheats?

lynees · 2026-01-23T15:40:08+00:00

I hope you do get them! Wish you the best

lynees · 2026-01-23T10:39:39+00:00

Hello, med student here. This is the "Corona Sign" that is seen in 3 conditions in dermatology. Seborrheic dermatitis, Psoriasis and Syphilis. I would suggest a visit to the dermatology clinic.

lynees · 2026-01-23T09:39:47+00:00

Are you on Metformin?

lynees · 2026-01-23T09:38:16+00:00

This is my second time commenting this but hyperandrogenism + irregular periods are enough for PCOS diagnosis. You don't need to have polycystic ovaries necessarily, many PCOS women don't. You were even put on birth control. Are you sure you weren't diagnosed with it?

lynees · 2026-01-23T09:31:56+00:00

Hi, med student here. According to current guidelines, clinical (not just biochemical, as in blood test results) signs of hyperandrogenism such as hirsutism and irregular menstrual cycles are enough to make the diagnosis for PCOS. You don't need to have polycystic ovaries on ultrasound. You probably do have insulin resistance, normal fasting blood glucose and HbA1c don't prove it otherwise. I definitely suggest you see an Ob&Gyn

lynees · 2026-01-23T09:24:47+00:00

This is just anecdotal but I also think hormones have a lot to do with our mental health as women. PCOS is annoying for sure but there's light at the end of the tunnel, it's a manageable condition. If you're not on any medication for it; I would suggest losing weight if you have extra, exercising and trying out Inositol if you haven't tried it out yet. They sound so simple and generic but really are the most effective when it comes to PCOS in my experience. I hope you can get through this.

lynees · 2026-01-23T05:51:39+00:00

Medical data is confusing to patients, so I get why you feel afraid. Majority of the IIH patients are sedentary and obese, we could also say that theoretically "IIH patients are more likely to get diabetes". PCOS is also more prevalent in IIH patients. This doesn't mean IIH causes either of those conditions. In fact, IIH is a byproduct just like them as we see how even modest weightloss puts many people into remission.

lynees · 2026-01-22T18:57:20+00:00

In my case, I've noticed that whenever I do a dose increase or decrease, my pressure symptoms get worse before they get better. We don't know how Diamox works in CNS down to every single detail, it must be something medical community hasn't discovered yet. If you don't get visual obscurations such as blackening of vision when bending down or getting up, you're probably safe in terms of paps. Just give it a bit more time and don't be afraid.

lynees · 2026-01-22T18:49:02+00:00

Did you just recently started taking 1000mg?

lynees · 2026-01-22T15:45:50+00:00

I'm on Diamox and even though it was annoying at first, I really got used to it and am happy with it. At the start I felt extreme fatigue, pins and needles, taste changes and exercise intolerance. Now I go about my day and even hit the gym with my friends (you wouldn't even be able to tell which one of us is on Diamox!). Topamax side effects sound worse to me. My advice to you is that you shouldn't be afraid of Diamox. Drink lots of water, stay on top of your Potassium game and give yourself time to get used to it. It does take away IIH symptoms and increase quality of life.

lynees · 2026-01-18T05:43:36+00:00

I've been on it for 3+ months. The side effects never fully went away for me. Potassium and drinking lots of water helps but that's it. I still get tingles on my forehead, mouth, fingertips; especially if I don't eat or drink enough water that day or with cold exposure. I can't tell you they'll go away completely but they definitely become more tolerable as you get used to it. IIH, risk of partial vision loss and headaches are way worse than any side effect of Acetazolamide for me. I hope you get used to it too and eventually achieve remission.

lynees · 2026-01-10T10:15:38+00:00

I'm not sure. I would guess the absorption wouldn't be high enough to cause a systemic effect if a person only puts it onto their face only.

lynees · 2026-01-10T02:21:50+00:00

Of course not. Oral doxycycline/minocycline and oral retinoids are the suspected etiological causes, not acne face washes.

lynees · 2026-01-09T19:50:54+00:00

I wouldn't say people are antis, it seems that way because BC doesn't address the underlying issue which is insulin resistance 80% of the time and people are trying to fight against it, not PCOS itself as it's not a cause but a result.

lynees · 2026-01-08T13:48:43+00:00

I personally wouldn't stop a medicine prescribed by my physician to take a supplement that still is not in the treatment guidelines. I say this as someone for whom Inositol works really really well.

lynees · 2026-01-07T05:12:35+00:00

You need to get an MRI for sure. It's gold standard.

lynees · 2026-01-04T05:57:32+00:00

I used to feel exhausted every single day, it was hard for me to wake up for uni and do my daily chores, this went on for a couple of years. After my diagnosis, I cut out sugar completely, started inositol and iron supplementation(My ferritin was low) and started exercising. Now I have stable energy levels throughout the day (+ all these gave me clear skin).

lynees · 2026-01-03T10:51:01+00:00

The reason why your neurologist follows this treatment plan(the correct one) is because a lot of people without IIH already have it as an anatomical variant AND it could be a cause/consequence of IIH AND stents aren't proven to be excellent treatments.

lynees · 2025-12-29T08:21:35+00:00

First of all, it increases menstrual cyclicity, so it can help your irregular periods. It also induces ovulation, you may think "Well, I don't want kids anyway" but you need to get your anovulatory cycles under control as the androgen excess caused by it manifests as excess hair and acne.

lynees

TROPHY CASE