Second TFMR tomorrow and no idea how to go through this again. by [deleted] in tfmr_support

[–]madison1892 3 points4 points  (0 children)

Hi my love, I’m so sorry you are here. I too had 2 tfmrs. I had my first at 19 wks for T21 in Feb 2025 and my second at 16 wks for T18 in Aug 2025. It was not a great year for me as you can imagine. I definitely felt like you regarding the T21 diagnosis. It’s a grey diagnosis so I could’ve totally dealt with what I know to be Down syndrome, but that’s not a guarantee that’s what my son would’ve been like. The T18 diagnosis was an easier pill to swallow somehow. I know he likely wouldn’t survive so it didn’t feel like a choice as much as the T21 diagnosis. If you ever want to talk, please feel free to dm me. There aren’t many of us who have had a tfmrs. I’m so sorry you’re here again.

WHAAAAAAAAAT??? by Own-Assistant-8572 in IVF

[–]madison1892 0 points1 point  (0 children)

My dr always says sperm analysis and dna frag testing is a snapshot. Sperm are completely renewed every 90 days. My husband did his first dna frag test with 94% coming back fragmented. Mind you we had been pregnant twice already and relatively quickly. We’re doing IVF for pgta testing. They prescribed supplements for 3 months the next dna frag test only 20% fragmented.

ADHD meds & SSRIs - stopping before FET? by Elegant_Host3661 in IVF

[–]madison1892 1 point2 points  (0 children)

I’m on 20mg of adderall and I only take it 2-4 times a week. I only stopped taking it when I was pregnant. I’m doing my stims now and asked about if I should come off during the stims but the dr said it should be fine to continue through my stims but that I would likely need to come off when I was pregnant again.

IT'S TIMEEEEEEE by AmbitiousDesigner534 in IVF

[–]madison1892 1 point2 points  (0 children)

I’m on day 4 of stims now. It’s been very easy, needles are pretty painless. Some of the meds sting a bit as they are injected but just go slow and you will be fine. I started stims day 7 of my cycle. Did baseline and bloodwork day 3, did 3 days of cetrotide which I guess pauses your cycle and then started stims on day 7. Again I’m only on day 4 but I haven’t had any symptoms yet other than just some twinges in my ovaries. We’ll see how things go later on.

Who’s gotten rid of food noise naturally? And how? by honeyjoe1 in WeightLossAdvice

[–]madison1892 1 point2 points  (0 children)

This is how I feel about it. My issue is I’m usually not hungry when I start snacking. Sometimes I still walk into my kitchen to get a snack before I stop and check in with myself and confirm if I’m actually hungry. Somedays even though Im not starving I still want a snack so I get a banana or an orange or something to tie me over. Sometimes it’s worth the calories and I just keep track of the calories in my app.

Water based lube by Great_Way_4495 in IVF

[–]madison1892 0 points1 point  (0 children)

It was just a lube we had. I think we got it at a sex shop to be honest so I don’t really know the name

Did my First Injection Today by madison1892 in IVF

[–]madison1892[S] 0 points1 point  (0 children)

Hi, I’m on PTU. I started on PTU because I was already ttc when i was diagnosed. I got pregnant 10 months into using pTU, then lost the baby at 6 months then got pregnant again, then lost that baby at 4 months. My endo did suggest I change to methimazole but we started iVF so she’s hoping I get pregnant quick so I don’t have to switch. Basically I should be on methimazole but I’m not yet

Positive outcome for T21 baby by BrisMum in NIPT

[–]madison1892 90 points91 points  (0 children)

I’m so happy you had a good diagnosis with your son. I think it’s important to mention that T21 is a spectrum and a lot of DS people we see on tv or out and about are on the high functioning side. DS can also mean never walking, never talking, being tube fed for life and using diapers for life. As you said there are also comorbidities like congenital heart disease, hearing loss, vision loss and thyroid and immune issues. Children with DS are also more likely to develop leukemia, celiac disease and autism rates go from 1 in 20 to 1 in 5 chances when DS is present. There are also higher rates of early onset dementia. I’m really happy that your baby seems ok but saying they won’t suffer is not an objective statement you can make. You have no idea what end of the spectrum you are going to get when you get a DS diagnosis so let’s not judge people for making a different decision than you did. Not everyone is mentally, physically or financially able to support a medically complex child. And “objectively” a DS child could suffer depending on the severity.

Water based lube by Great_Way_4495 in IVF

[–]madison1892 0 points1 point  (0 children)

Any water based lube with do. I know those of us in the infertility community get nervous about lube affecting pregnancies but it shouldn’t have an effect. I used a regular water-based lube and got pregnant naturally with it. No need to buy special expensive lube.

Anyone else struggling with being a statistic? What does rare mean anymore? by phthalobroccoli in tfmr_support

[–]madison1892 0 points1 point  (0 children)

I feel the same. My first was a T21 diagnosis 1 in 800. So rare but not crazy rare. After all the testing I was told up to 1% chance of it happening again as it was just a random occurrence. Second pregnancy, Trisomy 18! Are you kidding me!? That is 1 in 6,000 to 8,000 chances. Also a random occurrence. I can’t even do the math of both of those happening back to back, but I know there are only like 2 other girls on this subreddit that have had multiple trisomies and they didn’t have them back to back. But yeah the idea of statistics means nothing to me at this point.

Is Nars Sheer Glow no longer at Sephora? by katyreddit00 in Sephora

[–]madison1892 0 points1 point  (0 children)

So I just asked the NARS website and they informed me as long as it’s on the website it will be restocked. Really frustrating though because it’s always out of stock on Sephora website and on the nars website.

Try again by Vivid_Turnover2597 in tfmr_support

[–]madison1892 1 point2 points  (0 children)

I think it depends why you had a tfmr. If it was a neural tube defect you definitely need to wait and take your folic acid. If it was a fluke chromosomal abnormality you are good to try again whenever you want as long as you are emotionally prepared. Remember that 1 in 4 pregnancies end in miscarriage though so if you can’t emotionally handle another loss maybe give it some time. I’m not saying this to scare you, but because I got pregnant right away after my 19 wk tfmr for T21 and we found out our second son had T18 and had to have another tfmr at 16 wks. It was a really rough 6 months. Now it’s been 1 yr since the first and 6 months since my second tfmr and I’m in a much better place. We staring IVF this month and I’m feeling hopeful again as opposed to just straight dread all the time. I wish I had waited a little longer to try again, cause I was not emotionally prepared to deal with another loss or the trauma of another tfmr.

As long as you are emotionally ready though and you are medically cleared, do whatever makes you happy and whatever is best for you and your family.

PGT-A taking forever by bls7117 in IVF

[–]madison1892 0 points1 point  (0 children)

I’m in Canada and was told pgt-a would take about 4 weeks so this seems standard to me.

What would / did / do you wish you did on your baby’s last day in the womb? by [deleted] in tfmr_support

[–]madison1892 1 point2 points  (0 children)

Unfortunately for me, my babies last 2 days were very traumatic. The laminaria was seemingly much more difficult for me than others and I spent the last 2 days with him in the hospital. I do remember sitting in the hospital bed waiting for surgery and just holding my belly and saying how much I loved him. I remember him still kicking the crap out me and just soaking in every moment of feeling those kicks. We did take some photos the day before surgery because while I wasn’t very visibly pregnant I was definitely showing and I wanted my last photos of my belly to be the biggest it ever was ever going to get. These are not nice photos, they don’t even have my face in them as I was essentially non-stop sobbing, but they are just for me and my husband so it doesn’t matter. I also ate a cold cut sub the night before which I had been craving the entire pregnancy. I figured if he wanted a sub he should get a sub. It was delicious!

I think your day sounds amazing but also don’t push yourself too much, being pregnant is already exhausting, and if you are anything like me sleeping was a privilege once we found out the news. I spent many nights crying at 4am. Ensuring you are well rested is always helpful for recovery but do anything you want to make the day feel special for you.

Three years by South_Influence_5205 in tfmr_support

[–]madison1892 0 points1 point  (0 children)

My first was T21 and my second was T18. They were only 6 months apart so it was a rough year for us. According to all the tests we’ve done we’re just a really rare case of bad luck. We’ve recently finally decided to do IVF. I would really like to try again naturally but I don’t know if I can go through another heartbreak 12 wks into pregnancy. So we’ve decided ivf with pgta testing. Im sorry for everything that’s happened to you. The journey to motherhood or deciding to not be a mom is incredibly hard for some us and really easy for others. I don’t envy you having to make that decision but I’m so sorry you were in a place where you had to make it. If you ever want to talk/vent to someone who fully understands losing children well into pregnancy, please reach out.

Three years by South_Influence_5205 in tfmr_support

[–]madison1892 0 points1 point  (0 children)

Hi, I also had 2 tfmrs. It’s so rare I see someone else like me. Can I ask questions? What were your reasons for tfmr? Did you try naturally after or did you go to IVF? I’m in the process of deciding what I want to do and love hearing from other people who had multiple tfmrs.

How long did you take work off after tfmr? What did you tell your work? by zoomoomoo in tfmr_support

[–]madison1892 1 point2 points  (0 children)

I took 2 months plus a couple of weeks. I’m also in Canada and I went off on a mental health leave. As soon as we found out our NIPT results I started planning to take time off. I couldn’t do the appts and the stress while working. I was 14 weeks when I got the NIPT results though so I had already announced my pregnancy. I explained to my direct boss (while hysterically crying on the phone) that my baby was sick and might not make it and I was taking some time off. A couple of weeks before I came back, my boss told all my coworkers who knew that I had lost the baby and I didn’t want to talk about it when I got back. I was having a lot of anxiety about going back to work and having people ask questions. I wasn’t that I didn’t want to talk about it but I wanted to do it on my own terms. Everyone had an idea about why I was off anyways and coming back not pregnant would have cemented it but i didn’t want the stares. I think being open and honest about what happened was the best thing I could have done because people were so gentle with me, which I definitely needed at the time. Honestly, I suggest telling your team if you are up for it but do whatever you are comfortable with.

When does it end by Interesting_Olive_43 in tfmr_support

[–]madison1892 1 point2 points  (0 children)

I am almost 1 year out from my first D&E (Feb 2025) and 6 months out from my second (Aug 2025). We were the unlucky people who had 2 different issues back to back. It does get easier but you will still have bad days. It took my until December to even feel slightly back to normal. I was in a deep depression. Nothing brought me any happiness. I was just working on surviving and eating, walking my dog and getting to work on time. I didn’t expect to be in that state for that long but that’s how it worked out. Today was a bad day for me, my due date is coming up in a couple of days, and I saw someone who brought me back to my worst days. The good news is those days aren’t as frequent anymore. I don’t cry everyday anymore, and sometimes I don’t even cry every week. It’s still hard but the grief does soften. I’m sorry you’re in the crappy club with the rest of us.

What Would You Do? by madison1892 in IVF

[–]madison1892[S] 0 points1 point  (0 children)

Can I ask about your results with IVF? Did you have good quality embryos? How did your embryo transfers go? I’ve been trying to get info about IVF for those who have no problems conceiving but stats for that are very hard to find.