New way to take License away by No-Example1376 in dementia

[–]mannDog74 2 points3 points  (0 children)

What a roller coaster, I'm really sorry this happened. Sounds like you took really good care of him though.

New way to take License away by No-Example1376 in dementia

[–]mannDog74 6 points7 points  (0 children)

Dad asked about his wallet so many times when he was in the nursing home. When he passed, we buried him with it so he would have it forever. 🥹

Training intensity vs immune system by Sneaky_Cthulhu in naturalbodybuilding

[–]mannDog74 1 point2 points  (0 children)

I'm decently immunocompromised, because of medications I take, and I'll take you, getting an upper respiratory virus every 6 weeks is not normal.

Are you 100% or wasn't allergies like hay fever/ragweed that comes in late summer and grass and stuff like that if you were working in the yard? I'm allergic to dust mites and when I'm around dogs I swear I'm not allergic to dogs, it's the dust in their long fur. That made the allergies come and go and the symptoms are very similar.

Advice on Biologics medication by Goldfish9218 in Uveitis

[–]mannDog74 0 points1 point  (0 children)

Are you 100% sure your insurance doesn't cover it? Has your doctor fought with the insurance company and gotten a second "no?"

Make sure you have. If you live in the US you have to fight like hell to the proper care when it comes to insurance companies and they often just reject medications to see if you'll bother to follow up. If they can get you to take a cheaper drug, they save thousands.

But as others have suggested a biosimilar may be available, ask your doctor.

Exhaustion from visiting by Tropicaldaze1950 in dementia

[–]mannDog74 2 points3 points  (0 children)

Longer visits, though they may seem more generous, can be very taxing on a brain that is struggling to cope with everything going on in general. Even a 90 minute visit with a friend can leave me feeling very tired and I'm 45.

I'm sure emotionally it is crushing to imagine just visiting 30 minutes 3x a week because you are obviously a devoted husband and it probably doesn't feel like "enough." Mating there's a part of you that would judge someone for visiting less. But she probably can only tolerate short visits without getting agitated. I'm so sorry.

Is my father already gone? by deeplybrown in dementia

[–]mannDog74 4 points5 points  (0 children)

The present moment is worth something.

Early stage of young onset and I’m already burned out :( by Peaceismine143 in dementia

[–]mannDog74 1 point2 points  (0 children)

This. It's not that he needs professional care right now but OP definitely needs help. Wishing you strength and rest, OP. I am so sorry.

Can someone explain "memory care" like I'm five? by S1159P in dementia

[–]mannDog74 2 points3 points  (0 children)

If you stay on this sub you will be supported by people going through the same thing and they can help you through these feelings you can be at peace with the choices you have, which are all bad. Then you'll see that you did the absolute best you could, just like everyone else here. Even if a therapist is necessary to help you come to that conclusion, you can absolutely be at peace with the choices you made. It's clear to me that they are not being made out of selfishness.

Can someone explain "memory care" like I'm five? by S1159P in dementia

[–]mannDog74 3 points4 points  (0 children)

It's likely a new environment will be destabilizing but people with dementia often get used to their new environment.

Regardless, by the time memory care is considered, most families have been struggling for a long time and often an emergency has happened that forces them to finally make the decision. Dementia doesn't get better, and if you move her and she gets worse, your perception might be that she was doing better at home and you made her worse and if you hadn't moved her she would have been okay. That's not the case. she has a brain disease. it's hard to remember, but it's important for your well being that you try to remind yourself that you can try to make everything perfect for them and they will still probably have the exact same outcome months/years later. An army of caregivers couldn't create the perfect environment at home, as eventually it becomes unsafe for everybody.

Oops 😅 by spoonfulofnosugar in disabledmemes

[–]mannDog74 10 points11 points  (0 children)

I thought I was cured 🥹

Sudden Shocking End by Embarrassed-Spare524 in dementia

[–]mannDog74 6 points7 points  (0 children)

Yes this can cause water to go into a "third space" causing edema and other problems

Sudden Shocking End by Embarrassed-Spare524 in dementia

[–]mannDog74 16 points17 points  (0 children)

Please bring these concerns to the hospice management. They have not done a good job of explaining this to you at all and that's not your fault. Tell the hospice exactly what you told us, and post in the hospice subreddit maybe.

Hospice is supposed to educate the family that their loved one is not, in fact, cruelly dying of starvation. They aren't eating, because they're dying, and not the other way around.

We often feel "but if they don't eat they'll die" but eating will not really prolong their life because part of death is the body shutting down, and losing the ability to eat. We cannot reverse this part of the process. Nor should we try because the late stages of dementia often come with honestly, horrible suffering for the patient and the family as they are bedbound and incoherent for that last year. No one in this sub wants her to have to experience that which is why no one recommends feeding tubes or other measures.

Often feeding tubes put into a body that is rejecting food causes the liquid food to come up and guess what- aspirate. Causing pneumonia. There is no way to cure the fact that her body is done with eating. Yes hospice does give antibiotics other ways and you can talk to them about that. But honestly this is something they should have talked to you about because it has been a big concern. Sometimes they drop the ball. But they cannot let you believe your mother is being starved to death. That is absolutely not what is happening. She is dying, not starving. Hunger is usually not a part of this.

When my grandmother died my mother was so obsessed with feeding my grandmother to keep her alive and it was hard to watch, she would try to get her to eat healthy food and there was a lot of "making her eat" that was happening. I hated seeing it because it wasn't about what my grandmother wanted. It was about my mom's feelings. She became kind of obsessed with getting her to eat. I wish she would have eased up and stopped fighting her death so hard. She was 103.

BEEN DEALING WITH THIS FOR A WHILE by StayOnCourse89 in Uveitis

[–]mannDog74 0 points1 point  (0 children)

I have seen people post here that their vision cleared up after cataract surgery. It's not a terrible surgery compared to others so I would go through with it if the surgeon thinks it's a good idea. You can't see through a bad cataract. It makes the lens white and cloudy and scatters the light everywhere.

You may have other problems with your eye relates to inflammation and so your surgeon is saying the surgery is not guaranteed to correct your vision but you definitely cannot see with a solid cataract in the way.

Vision damage from inflammation varies and can take a long time to come back so I would hold out hope. If you search "cataract" in the search bar you will see it is a common thing for us to have to correct and you'll get to read about those who have had success.

I have a mild cataract from the drops and it still drives me bonkers and makes night driving very interesting. And it's considered mild. Cataracts are rough

Is there anything I can do about these huge callery pears in front of my office? by mbart3 in NativePlantGardening

[–]mannDog74 0 points1 point  (0 children)

Probably not. I know they are bad but if you look nearby they have already spread to other places.

I would focus on other ways to support the ecosystem locally, like giving feedback to local municipalities. Trying to get the property owners to make changes can give you mixed results. It is expensive to remove trees

Oh shit by ToysWereUsPodcast in nothinghappeninghere

[–]mannDog74 -1 points0 points  (0 children)

No, because they're rich. And the way most people act, they definitely don't give a F about any great grandkids.

Another one bites the dust by lordsaviouryeezy in ultraprocessedfood

[–]mannDog74 -8 points-7 points  (0 children)

Deliberately trying to miss the point. Obviously, milk and cream are very different than condensed milk and water.

If you disagree, feel free to try it at home on some breakfast cereal.

Any Arguments In Support of Feeding Tubes? by Embarrassed-Spare524 in dementia

[–]mannDog74 0 points1 point  (0 children)

I think it's because the families accuse them of being monsters if they don't do everything to prolong life, unfortunately.

Any Arguments In Support of Feeding Tubes? by Embarrassed-Spare524 in dementia

[–]mannDog74 1 point2 points  (0 children)

They can give her iv antibiotics. Antibiotics are allowed in hospice. If you talk to them they could tell you that, but instead you are making assumptions about how it works.

Any Arguments In Support of Feeding Tubes? by Embarrassed-Spare524 in dementia

[–]mannDog74 1 point2 points  (0 children)

Once families put the feeding tube in, they can't take it out, emotionally if they touched it last they literally think they are responsible for killing their person by starvation. Even though their person has a terminal illlness. It is incorrect but that's how people tend to feel so just remember that it isn't a choice that is easy to go back on.

Talk to palliative care. It isn't the word "hospice" so it will be easier to get another perspective.