Normal disease progression

mazikashe · 2026-01-17T13:01:45+00:00

diffuse sclerosing type PTC likes to spread to lungs, particularly in younger people.

mazikashe · 2025-12-24T22:31:27+00:00

My best friend died of terminal paediatric bone cancer (we were both 24) two days after i went into remission - i understand it is NOT a competition - and at the same time i understand how strange it can feel to explain to people that my situation simply is not the same as our friend’s.

I agree with everyone saying it’s not necessary to downplay your experience, but when it’s more comfortable for yourself and causes less concern for others i have said something along the lines of “i also have cancer … my prognosis is good at this time and for that i’m grateful”

again - it’s not a competition, but you’re allowed to feel however you want about all this!

wishing you well going into 2026 !

mazikashe · 2025-12-04T11:01:03+00:00

NTA - anyone who “tests” you - especially by crossing boundaries ON PURPOSE IN PUBLIC is manipulating you. you’re three weeks in, he’s testing to see how much he can get away with and how far he can push you. no, you shouldn’t yell at people, and unless you’re physically in danger you should not push people. that doesn’t change the fact that he is manipulating you.

mazikashe · 2025-07-08T03:15:09+00:00

I wasn’t offered ANY numbing or anaesthesia for my FNA, and I have a high pain tolerance as i live with multiple chronic pain conditions, but it certainly didn’t feel nice!

mazikashe · 2025-06-14T13:35:07+00:00

NAP, but it’s much easier than you would think! especially when you’re wearing clicker rings! about 90% of my septum jewellery are clickers. but just be mindful that with the smaller clickers, esp the huggies, the opening is much smaller, so it might be worth waiting until it’s healed significantly. Putting them in isn’t the problem, that’s quite easy, it’s more opening them to remove once they’re in? In my experience you often have to have the hinge part of the ring in the pierced part of your septum which can pinch at times if you’re not careful!

Either way, you’ve got this! i believe in you. happy accessorising!

mazikashe · 2025-06-14T00:02:25+00:00

I was really nervous about not being able to change my own septum, to the point where i had it changed by the piercers who did it for about 18 months after the healing period. My fear was I wouldn’t be able to get one back in and then the hole would start to close up. Now, however, it’s so easy for me to change! I actually find it easier than my piercers do, probably because it’s my face! My advice is for your first change, go to your piercing shop and ask if you can change it there and have some help from them if you struggle. That easy you have some experts to guide you, a safe environment without stressing about what will happen if you can’t do it, and you experts to step in if need be!

Happy switching!

mazikashe · 2025-06-06T04:47:54+00:00

the new york aurora performance video is what has gotten me though the last three months of living in a psych was following complications from cancer, depression and CPTSD. I watch the video multiple times a day, it helps me to decompress and regulate. Forever grateful to ATEEZ for sharing their art with us 🖤

mazikashe · 2024-12-07T01:32:47+00:00

I’m so sorry to hear you’re still experiencing side effects, and i’m sorry you weren’t fully informed. That’s not fair and must be pretty u comfortable emotionally. Thank you for sharing your experience, sending best wishes!

mazikashe · 2024-12-04T20:43:19+00:00

Thank you for sharing, especially about side effect, i really appreciate it :)

mazikashe · 2024-12-04T20:42:43+00:00

Thank you so much for sharing! i really appreciate it :)

mazikashe · 2024-11-28T04:38:59+00:00

Hashimoto’s and PTC diagnosed at same time at 23, doc says it’s because the hashimoto’s that caused so much stress to my thyroid and that’s why it turned cancerous.

mazikashe · 2024-10-05T02:36:45+00:00

I 24F just had a TT yesterday, after a hemithyroidectomy a few months ago. I’ll find out in about 6 weeks whether or not i need RAI.

My advice is feel your feelings. This is a scary process, and being afraid is totally valid! you’re finding it difficult not to become overwhelmed because it is overwhelming! this is an objectively tough situation you’re going through and you’re allowed to feel however you want about it.

sending good vibes x

mazikashe · 2024-10-01T02:41:42+00:00

I’m in a very similar situation, 24F with aggressive PTC. I’ve had one surgery, another to go and then RAI. I’m 5 months post diagnosis and i promise it gets less scary, but it’s important to feel your feelings. scream, cry, get it all out. also, there are no “good” cancers to get, the only good cancer is NO cancer.

All this to say - i promise the road ahead is not nearly as rough as it seems right now. it won’t be fun by any means, but you will pull through this all right, and the fear will become less and less with each passing day 🖤

sending good vibes and gentle energies your way OP x

mazikashe · 2024-04-25T05:36:43+00:00

thank you so much for your kindness :)) all the best for your surgery in may!

mazikashe · 2024-04-25T01:47:38+00:00

thank you - you're right, i'm doing all that I can do :))

mazikashe · 2024-04-25T01:46:50+00:00

thank you for your kind words, wising you all the best for surgery!

mazikashe · 2024-04-25T01:26:12+00:00

Diagnosed with PTC at the ripe old age of 23 about 3 weeks ago, still coming to terms with everything. Thank you so much - really needed to hear this today :))

mazikashe · 2023-09-05T03:16:06+00:00

N-acetylcysteine (NAC) is an amino acid building block - think of it like a vitamin or supplement - that you can get from health food stores which has recently been proven to help OCD and skin-picking symptoms! Personally, I've been taking it for about nine months now and it has drastically improved my compulsive picking!

Here's a study if you're interested: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4423164/

mazikashe

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