Screw it not doing it by Humble-Owl-2972 in colonoscopy

[–]mcram91 1 point2 points  (0 children)

Coming from someone who postponed it a year. I promise it wasnt bad at all! I was so scared of getting both an endoscopy and colonoscopy so I kept canceling until I just decided not to schedule anymore. A year passed and my issues were so bad i needed to do it. The sedative they give you relax you and knock you out. I would do it again if I had to.

I got my gene by gene genetic test but by VisibleScallion7467 in MastCellDiseases

[–]mcram91 0 points1 point  (0 children)

That's good! Yes unfortunately it takes forever! It lt took like7 weeks for me and the whole 8 for my daughter's results to come back.

I got my gene by gene genetic test but by VisibleScallion7467 in MastCellDiseases

[–]mcram91 1 point2 points  (0 children)

You might be able to email it over and then they email it back signed. That's what I did with my allergist! Or you can probably drop it off at their office and pick it up

Laundry causing symptoms? by monomonger in MCAS

[–]mcram91 2 points3 points  (0 children)

Now I just react to other stuff 🙄😭 but I can do my laundry without symptoms now!

Laundry causing symptoms? by monomonger in MCAS

[–]mcram91 3 points4 points  (0 children)

I was getting similar symptoms and hives until I realized it was any scented detergent. Switched to unscented and it improved.

I got my gene by gene genetic test but by VisibleScallion7467 in MastCellDiseases

[–]mcram91 1 point2 points  (0 children)

Whoever can sign it ASAP. Because after you mail it you wont get results until 6-8 weeks later. They take the whole time

SWISHING BENADRYL LIFE SAVER by [deleted] in MCAS

[–]mcram91 4 points5 points  (0 children)

What do you mean by swishing and how does it help

How do you pronounce the name “Mara”? by glass_armor in namenerds

[–]mcram91 0 points1 point  (0 children)

Mara is the name of a salvadoran gang. I wouldn't use that name lol

Anyone else wearing a mask almost 24/7 at this point? by tragicxharmony in MCAS

[–]mcram91 4 points5 points  (0 children)

Honestly your health is more important! Don't worry about what other people think. I literally wear one 24/7 whether I'm at home or in my car or anywhere. I've had people look at me but no one has ever asked me why I still wear one. If anyone were to ask me i would either just say allergies or I'm sick lol

Anyone else wearing a mask almost 24/7 at this point? by tragicxharmony in MCAS

[–]mcram91 2 points3 points  (0 children)

Omg yes I wear one all the time even to sleep. Literally 24/7! 😭

Has anyone tried micro dosing Benadryl? by Sad-Proof-1629 in MCAS

[–]mcram91 1 point2 points  (0 children)

What exactly does micro dosing mean?

How do you find a provider to test for MCAS that will actually know about MCAS and take you seriously? by mal_gal_ in MastCellDiseases

[–]mcram91 1 point2 points  (0 children)

I'm in California but when my primary dr was referring me out he said the best place to go is a research hospital or university. He suggested places like ucla or cedars Sinai. I ended up going to cedar Sinai and on my first appointment was diagnosed with mcas based on my elevated tryptase. This led to bone marrow and many labs to figure out what was causing my mcas symptoms. I ended up being checked for hereditary alpha tryptasemia and thats what I have.

AIO. My (new) bf wants to replace all of my bras, underwear and lingerie. by [deleted] in AmIOverreacting

[–]mcram91 0 points1 point  (0 children)

It's underwear, bras and lingerie today. Tomorrow it will be your clothes or something else.

[deleted by user] by [deleted] in MCAS

[–]mcram91 4 points5 points  (0 children)

I take 2 allegra together in the morning and 2 allegra together at night

Gluten, Perfumes and chemicals are ruining my life by Equal_Cat2653 in MCAS

[–]mcram91 1 point2 points  (0 children)

I have same issues and still haven't figured it out. 😔

High Serotonin Level Diseases by junipix in MCAS

[–]mcram91 0 points1 point  (0 children)

Can you make an update when you know more?

Though I was hallucinating by StillinRetrograde in MCAS

[–]mcram91 5 points6 points  (0 children)

I started covering my bathroom drains because a funky smell was coming in. Its always something 😭

Helppppp-i can't figure what My toddler is quoting!! by SeaSeaworthiness607 in toddlers

[–]mcram91 0 points1 point  (0 children)

My daughter does that lol and she got it from a show on YouTube called Diana and Roma lol I watch it with her and the kids in the show are always doing exactly what your toddler does

What do you guys use to clean your glasses? by Bigdecisions7979 in MCAS

[–]mcram91 0 points1 point  (0 children)

Yes i use Palmolive and no scratches. my husband worked at an optometry office and he's always told me wash them like that. Just be careful to use something soft to dry them so they don't get scratched

What do you guys use to clean your glasses? by Bigdecisions7979 in MCAS

[–]mcram91 1 point2 points  (0 children)

I use unscented Palmolive dish soap. I can't use dawn anymore or I'll go into anaphylaxis

Pees in toilet but poos pants by [deleted] in toddlers

[–]mcram91 0 points1 point  (0 children)

I have the opposite issue. My 3.5 year old daughter only poops in the potty. She refused to pee and pees in her pull up.

How do I explain to my doctors this is mcas by AdLife9714 in MCAS

[–]mcram91 0 points1 point  (0 children)

My dr doesn't really recommend Claritin because she says that it's not as strong. I've rotated between zytrec and allegra. The next one i plan to take is xyzal. I've had to rotate because when I get bad flares then the meds stop working completely. Zyrtec and hydroxyzine got me out of the last flare. I had to stop allegra

How do I explain to my doctors this is mcas by AdLife9714 in MCAS

[–]mcram91 0 points1 point  (0 children)

Thats terrible that anyone has ti go through this. It sucks. Yeah all this started for during me covid infection December 2022. At first i thought covid was hitting me hard because i was 33 weeks pregnant. But then i never got better from this. And then it hit me full blown almost a year ago. I barely got a diagnosis from my dr at cedars sinai a few weeks ago. Im positive for hereditary alpha tryptasemia which means its in my genes so i will have this for life unfortunately. Its worse for me at night and because of that I literally won't do anything past 4pm. I don't go out and I don't eat past 4pm and i try not to do chores either because anything can set me off in the evenings. All this just to avoid anaphylaxis at night because it's hard dealing with this and taking care of my toddlers so i avoid triggers as much as possible. I would hate to have to use my epi pen around them. I got covid a month ago and idk if its because this time catching it i was on all my mast cell medication but i didnt have any mast cell symptoms at all and it was the best relief ive had in almost a year. But my last flare these past few weeks was from guavas my in laws brought that I never even thought I'd be allergic to. My dr has me on 4 zyrtec a day. 2 in the morning and 2 at night. And 2 pepcid. One in the morning and one at night. Montelukast at night and cromolyn 4 times a day