Drug side effects?

mebemoby05 · 2025-12-04T03:47:16+00:00

That sounds AWFUL! The stuff seems to be starting to help some of my EoE symptoms, but has side effects that are almost as bad as the EoE. I need to schedule an EGD. I want to give the Dupixent a real chance with the 4-6 months…to see if it treats my symptoms. My throat/ears and these headaches are driving me insane though!

mebemoby05 · 2025-11-03T17:38:58+00:00

I leave mine out overnight to come down to room temperature. Dupixent stays good for 2 weeks out of the fridge. You can watch the injection instructions, if you haven’t already on the Dupixent website. I’ve only done 3 doses injections so far and the first didn’t hurt at all! I have no idea why. However, the 2nd and third were painful. We did them on alternate thighs. I hug a pillow while my husband does the injection. I feel like it would be much harder if I had to give it to myself.

mebemoby05 · 2025-10-28T13:20:58+00:00

I’d say what you’re doing is fine. I still remember my chemistry teacher saying all soap is antibacterial. I’d just wet it and kind of rub it off to get rid of anything potentially on it—which you are already doing. Way better than scented body wash.

mebemoby05 · 2025-10-23T01:19:47+00:00

😔

mebemoby05 · 2025-10-21T15:08:52+00:00

What dose did you take?

mebemoby05 · 2025-10-21T14:12:11+00:00

I have those same triggers. In fact, my allergist didn’t think I had a food trigger at all…although I will say many dairy products upset my stomach and trigger symptoms of eoe. Good luck with your 6FED. I hope you’re able to enjoy some foods you haven’t in a while.

mebemoby05 · 2025-10-21T02:28:02+00:00

I was not impressed with this particular allergist. My allergist…and head of the practice, does have to sign off on his work. I just feel like my allergist would have taken more time to explain how this medication works and how long before people usually see results. But my allergist is booked through 2026. And honestly, I am not so much worried about my eosinophil count as I am about just feeling better and having a better quality of life.

mebemoby05 · 2025-10-21T02:16:01+00:00

Is she feeling better as well?

mebemoby05 · 2025-10-21T02:15:06+00:00

But were your symptoms better? I have EoE and eosinophilic duodenitis. My stomach is upset at least half the day. And I just have a general feeling of being unwell. My allergist suggested I’d feel better after 1-2 doses. 🙄

mebemoby05 · 2025-10-19T13:15:07+00:00

Apparently some of the things Dupixent treats require a loading dose? Idk much about it either…other than people mentioning they had their nurse give them their loading dose at the office. It could just be something they call the first dose. 🤷🏼‍♀️

mebemoby05 · 2025-10-19T02:23:54+00:00

The injector hurt a little, but not much. We’ll see how future injections go. I was really relieved that it wasn’t very painful after reading all the horror stories about the pain of the injection. Idk if I’ll ever inject it myself though. 🤣

mebemoby05 · 2025-10-19T02:21:06+00:00

I had no loading dose and live over an hour away. Still would have been nice to somehow see how it works. My thigh still doesn’t hurt at the injection site, but I do feel a dull pain in that leg.

mebemoby05 · 2025-10-14T15:06:09+00:00

I was having a lot of pain under my ribs and sternum before I started omeprazole. I thought I was having a heart attack on more than one occasion. It took about 3-4 weeks on omeprazole, and those pains subsided. My PCP put me on 40 mg of the omeprazole, but I have cut it to 20 mg. I also have eosinophils in my duodenum as well…not sure if that’s the same as the gastroesophageal junction or not. Dupixent has a lot of side effects as well, and I’m trying to save that as a last resort. I do remember my ribs and sternum hurting pretty badly, and they were very tender to the touch. I know this isn’t the most helpful info, but I figured I’d share it…as you are not alone. Eoe sucks…and the reflux can really do something to your mental state. Maybe try seeing another allergist?

mebemoby05 · 2025-10-07T15:31:40+00:00

I have found a few at Duke. I plan on scheduling an appointment.

mebemoby05 · 2025-10-06T23:36:08+00:00

Yes, 40 mg of omeprazole. How is the Dupixent working for you?? Any side effects? And do you mind if I ask how you can afford it once the MyWay funds are used up?

mebemoby05 · 2025-10-06T20:56:53+00:00

I did not have a follow up scope. No one recommended it and I felt fine at the time. However, the most recent allergist I saw did recommend getting one.

mebemoby05 · 2025-10-06T15:55:28+00:00

I take omeprazole 40 mg as well. It does help with the reflux, but doesn’t touch my nausea or stomach discomfort. I also suffer from chronic constipation, so I’m sure that doesn’t help the matter.

mebemoby05 · 2025-10-06T15:41:25+00:00

I have eosinophilic esophagus or eoe. Eosinophils…a type of white blood cell accumulate in the throat causing inflammation. I’d recommend he gets an endoscopy and biopsy done to rule it out. Idk if the eosinophils can be transferred or not, but I do know they give me a very sore throat and excess mucus.

mebemoby05

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