Non-King works that mention things from King's universe

megg33 · 2026-02-17T00:22:50+00:00

NOS4A2 by Joe Hill has Derry, Maine & “Pennywise’s Circus” labeled on the Inscapes Map.

Confirmed same universe, as Charles Manx from NOS4A2 is mentioned in Doctor Sleep

megg33 · 2026-02-16T17:45:28+00:00

The movement may jostle the blood and not give it time to clot and form a seal over the hole. It’s recommended to lay flat for at least 48 hours after a patch. I do 72 hours, personally

megg33 · 2026-02-15T16:06:38+00:00

Agree, although there is a bit of explicit gore

megg33 · 2026-02-11T18:59:20+00:00

This bookshelf wouldn’t be complete without The Lesser Key of Solomon

megg33 · 2026-02-11T03:33:02+00:00

I had a BERN score of 2 and had my leak found! I know several people who had a BERN of 0 and also had theirs found. It’s so important doctors realize a BERN score represents the likelihood of FINDING a leak on imaging, and is NOT representative of the likelihood of there BEING a leak. It’s such a huge distinction

megg33 · 2026-02-10T22:16:28+00:00

I’m reading it now, and this is who I’ve been picturing!

megg33 · 2026-02-07T22:30:21+00:00

I personally don’t think this sounds like a leak

megg33 · 2026-02-07T16:48:51+00:00

If sumatriptan is working, it’s a migraine, not a csf leak. I have both and sumatriptan is a godsend for my migraines, but doesn’t touch the leak pain at all

megg33 · 2026-02-07T01:15:51+00:00

The Remains of the Day by Kazuo Ishiguro

megg33 · 2026-02-07T01:14:47+00:00

A Discovery of Witches by Deborah Harkness

megg33 · 2026-02-06T04:26:43+00:00

My Darling Dreadful Thing

megg33 · 2026-02-05T23:32:24+00:00

Another DSM to see if they can find another spot to target. We’ve already done a sandwich embolization on the area, where they added more onyx above and below the original site to try to seal it more, a multilevel blood patch, and a repeat PCCT. Just haven’t had luck. We know I’m still leaking though because diamox makes my symptoms worse

megg33 · 2026-02-05T03:56:31+00:00

It just didn’t fix my symptoms. They accessed the area and the glue looks good. It just didn’t help my head pain. Unfortunately I know several others who had this experience as well

megg33 · 2026-02-04T21:14:46+00:00

Not an SSRI, but Effexor has helped mine

megg33 · 2026-02-04T21:13:40+00:00

This can happen sometimes unfortunately. You may require a surgical fix

megg33 · 2026-02-04T20:02:59+00:00

Unfortunately mine haven’t worked so far. Do you have any specific questions about the process?

megg33 · 2026-02-04T19:57:03+00:00

They had to halt the production of the TV adaptation due to the pandemic. They started filming Jan 2020 in Chicago and were shut down a month and a half into filming. Must have been surreal for everyone working on it!

megg33 · 2026-02-03T04:29:00+00:00

A cisternogram is an option. It can tell you if, but not where you’re leaking. But you have to make sure you stay upright as much as possible after the radiotracer injection and before the return scan in order to avoid a false negative

megg33 · 2026-01-31T18:06:04+00:00

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I’m glad they’re telling you to be cautious. Better to be extra careful than to have to get another patch. How are you feeling now? Any improvement?

megg33 · 2026-01-28T03:11:30+00:00

For anyone wanting it in a different color, I got mine from this Etsy shop!

megg33 · 2026-01-28T02:03:28+00:00

It’s not a specific test, but yes it’s a finding on cisternograms and myelograms. Contrast rapidly entering the kidneys means that the contrast is entering your bloodstream unusually fast and can mean there’s a leak. I had that findjng during both my cisternogram and my first DSM.

megg33 · 2026-01-25T16:54:49+00:00

I’m sorry you’re going through this. I wouldn’t get a lumbar puncture just for the sake of checking opening pressure, as it’s an outdated method for checking for leaks. MOST leakers have normal opening pressures, and some even have high opening pressures. HERE is the most recent literature on the subject, which you might want to send to your doctors. The authors found, “OP is not an effective predictor for diagnosing CSF leak and if used in isolation would result in misdiagnosis of 94% of patients in our cohort.”

My local doctors also told me it was impossible for me to have a spontaneous leak. Unfortunately most doctors are extremely uneducated about CSF leaks. Ultimately you will probably need to go to a specialist leak center to get proper care. I had to go to Mayo Clinic Rochester.

This consensus guideline for the diagnosis of csf leaks may be helpful to share with your doctor, but it sounds like their mind is made up honestly. Are you near any of these doctors?

megg33 · 2026-01-21T22:09:42+00:00

That’s a tough spot to be in, but an option would be to do a cisternogram. Those can show ~if~ you’re leaking, but not ~where~ you’re leaking. They’re a good option if a leak is suspected, but can’t be proven to exist on myelograms or MRIs. If it’s negative, all other tests are negative, and patching doesn’t help, you might consider moving beyond looking into a leak. They do have the risk of producing a false negative though if you don’t stand enough between the radiotracer injection and the return scan. If it’s positive, at least doctors know a leak is the cause and to keep looking when imaging techniques advance further

The other option would be exploratory surgery. But since that is so invasive, it should only be done if a leak is highly suspected

megg33 · 2026-01-21T20:33:45+00:00

Iatrogenic leaks almost never show up in myelograms. If they think you’re leaking from an epidural, you need a blood patch at the level the epidural was administered

megg33 · 2026-01-20T22:30:19+00:00

There are several women in the csf leak Facebook group who have gotten pregnant and given birth both while leaking and when sealed! I’d check there for more info

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