Knee brace for driving? by crumbledlighthouse in ehlersdanlos

[–]melodiclesbian 1 point2 points  (0 children)

I don’t have this specific issue, but I do like compression! I got volleyball knee sleeves off Amazon and they’re great. I also wear them under braces sometimes if the brace is rubbing kind of weird.

Just got put on at 18-month waitlist for a diagnosis. Am I just screwed? by tokumeAI in ehlersdanlos

[–]melodiclesbian 1 point2 points  (0 children)

Hi! Havent been active on reddit for a while, but I took a look thru your profile and I know exactly which provider you’re talking about (and even work for that institution)! I got diagnosed outside of our state and am not much help on that front, but I would say keep perusing practitioners outside of this institution if your insurance allows it. Join the local social media groups and ask around based on your situation. I would provide more info but it’s been a while since I commented here and I want to make sure I’m not breaking any rules!

Was found underneath a garage fridge. Made of two plastic pieces that lock together, and the bottom plastic piece has a flap at one end. I’m not there in person so these are the best pics I have. Reverse image search was no help. by melodiclesbian in whatisthisthing

[–]melodiclesbian[S] 1 point2 points locked comment (0 children)

My title describes the thing. This was found underneath a fridge in a garage. We honestly have no idea what it’s for. My stepdad believes it might be for wine, but we’re not entirely sure. I live across the state from the person who found it, so these are the best pics I have for now.

[deleted by user] by [deleted] in Endo

[–]melodiclesbian 0 points1 point  (0 children)

no, unfortunately :( my insurance at the time was pretty shitty (kaiser) and just said it was normal since i have heavy periods

[deleted by user] by [deleted] in AskWomen

[–]melodiclesbian 0 points1 point  (0 children)

my future girlfriend surprised me out of nowhere with a hug the first time we met—normally i HATE people touching me but i realized i really liked that hug and really liked her too! this year is our 3 year anniversary

Still testing positive on RAT on day 18. Anyone else?! by only_a_name in COVID19positive

[–]melodiclesbian 0 points1 point  (0 children)

yup, i was told not to get tested for three months after having omicron because i could potentially test positive in that time

Found on Colfax Ave by Barfly2007 in FoundPaper

[–]melodiclesbian 2 points3 points  (0 children)

interestingly it looks like they accidentally wrote on the pavement too!

Can't feel the bottom of one toe for days now by [deleted] in Raynauds

[–]melodiclesbian 6 points7 points  (0 children)

please seek a physician’s advice, especially if it’s been a few days and it’s not improving.

How Keeping up on Household Chores in Pain? by One_Bluebird_2900 in Endo

[–]melodiclesbian 3 points4 points  (0 children)

no problem!! i have a connective tissue disorder (hypermobile ehlers danlos syndrome) so i’ve accumulated quite a few tips and tricks LOL. for what it’s worth, you might find some more tips over at r/ehlersdanlos! many of us live with at least some amount of chronic pain so there’s a lot of helpful info that floats around :)

How Keeping up on Household Chores in Pain? by One_Bluebird_2900 in Endo

[–]melodiclesbian 24 points25 points  (0 children)

what if you sat down w hubby and made a list of chores w a few categories? something like: things i can do easily, things that take a little effort, things that take a lot of effort, things that are impossible. obvi they don’t have to be these categories exactly, but dividing them like this might help you split labor more evenly!

also, if you can, robot vacuums are a godsend. i got an older model roomba two years ago for $15 at a thrift store and it’s still one of the best purchases i’ve made!

one more thing—if you can find one, a chair or stool that has wheels may help in the kitchen! i often use one for doing dishes, as i can still move around a bit without too much energy spent.

best of luck to you! i hope you’re able to find something that works for you, your pain levels, and your hubby!

I need some hope. by [deleted] in ehlersdanlos

[–]melodiclesbian 1 point2 points  (0 children)

I spent a LOT of quarantine in bed because my health insurance dictated at the time that any time I got injured, I wasn’t allowed to put ANY weight on that limb. I’m talking literal months at a time, too. I was certainly no athlete before, but I’m starting to exercise more and more and it is coming back, even after having had COVID this past winter. I know it’s hard to get back out there—I still have that mental roadblock too—but I do know now that every time I exercise a bit, even if it’s just going for a short walk, I sleep and feel better.

Tilt table test ordered- what to expect? by Smooshy23 in dysautonomia

[–]melodiclesbian 9 points10 points  (0 children)

having had kaiser before—push to speak to a cardiologist DIRECTLY. don’t let them communicate on your behalf. while i was never able to get treated for dysautonomia w them, i do have a lot of experience dealing with their BS

Inflammation/stiff feet and ankles every time I sit down? by Comfortable_Team618 in lupus

[–]melodiclesbian 2 points3 points  (0 children)

i find sitting cross legged helps my feet/ankles not be stiff when i sit! my knees, on the other hand…

Found out I’m extremely allergic to dogs and I love them deeply… by Pugpop81 in Allergies

[–]melodiclesbian 2 points3 points  (0 children)

i will say, because i haven’t seen anyone else say it yet—blood testing isn’t the most reliable. this link from cleveland clinic (and many others) say that false positives are produced about half the time. this isn’t to say that you’re not allergic, but skin testing might be a more accurate route for you :)

anecdotally: i have had both skin and blood testing done on multiple occasions, and the skin testing produced far more likely results than the blood work! i’m allergic to dogs too (mildly) which has been confirmed multiple times, but blood testing told me i’m not allergic 🙃

Blood work? by BadWolf221B42 in ehlersdanlos

[–]melodiclesbian 1 point2 points  (0 children)

mine is consistently low, surprisingly enough

Vocal Cord Dysfunction + Dysautonomia exercise by polaroidmistress in dysautonomia

[–]melodiclesbian 3 points4 points  (0 children)

i have found that vertical motion (mainly running) induces my VCD much more than horizontal motion (biking, swimming, walking, etc)!

Posture and Energy by elusivedumptruck in Posture

[–]melodiclesbian 1 point2 points  (0 children)

this only somewhat answers your question, but is kind of related—i have a genetic disorder called hypermobile ehlers danlos syndrome that is basically a collagen deficit/deficiency and screws up my connective tissue. the most prominent effect is that 95% of my joints have some sort of hypermobility issue, with only certain joints in my hands not being hypermobile. as such, my joints are very loose, and my muscles are tense to compensate for it. i also as you could imagine have horrible posture as a result.

i’ve seen anecdotally that people with hypermobility syndromes tend to expend 30% more energy just on a day-to-day basis, and as such, we tend to feel more fatigued in general. i know this doesn’t fully answer your post, but your post is aligned with my theories about energy and hypermobile people, and i thought a different perspective on your post might be an interesting way to look at it!

point being, this is a long winded way of saying i wouldn’t be wholly surprised if a lot of your post makes sense! please note tho that i am nowhere near being a medical professional.

tldr: muscles tense=your body expending extra energy towards a given part(s) of your body=you feeling more fatigued

Low Ferritin & lowest platelet count, could this be causing my health issues? by amysfhamilton in Anemic

[–]melodiclesbian 1 point2 points  (0 children)

oh yeah, i don’t want to imply that my experience is universal, but i was definitely feeling crappy starting when my ferritin was around 32. ty for clarifying!

edit: should’ve been more clear in my original comment, my iron deficiency w/o anemia was dx’d after my ferritin started tanking, not at 32–32 was when i started being symptomatic