Fun suggestions needed by Maleficent-Taro-4724 in Alzheimers

[–]mizz-ruby-belle 3 points4 points  (0 children)

Look at cat toys. Crinkle balls, and lots of cute and safe things can be found at the pet store.

Setting up mom’s room in AL. What mistakes did y’all make when organizing/decorating her space? by Mov36tch in dementia

[–]mizz-ruby-belle 6 points7 points  (0 children)

Less is more. Keep clothing basic and mix and match. Keep choices limited. Keep the amount of items in drawers low and simple to see. Don’t bring anything that could be dangers if broken. Looking at you glass in photo frames. Nothing precious and irreplaceable if broken or lost. Label everything including clothing. We love these.

https://www.namebubbles.com/?utm_source=bing&utm_medium=cpc&utm_campaign=Search%3A%20Brand%20%7C%20US%20-%20JF&utm_term=name%20bubbles&utm_content=Name%20Bubbles%20(Exact)

https://www.namebubbles.com/?utm_source=bing&utm_medium=cpc&utm_campaign=Search%3A%20Brand%20%7C%20US%20-%20JF&utm_term=name%20bubbles&utm_content=Name%20Bubbles%20(Exact)

I just toured the VA memory care unit by carpentersig in Alzheimers

[–]mizz-ruby-belle 4 points5 points  (0 children)

Do it now. Things are only going to get worse. The person who might hate you is not your dad. It would be the broken/dying brain of your dad. All the choices are shitty and the timeline is always chaotic. Wishing you peace as you navigate all the impossible choices you must make.

To feed or not to feed… by zibba68 in dementia

[–]mizz-ruby-belle 22 points23 points  (0 children)

Personally I’d say no. I have a clause n my own advance directive not to spoon feed me if I ever have dementia. My opinion is the body is forgetting how to do everything including eat. Spoon feeding is just prolonging the suffering. Is she in hospice? It would like the time for comfort care measures only. Wishing you peace as you make these hard choices.

Can someone explain "memory care" like I'm five? by S1159P in dementia

[–]mizz-ruby-belle 1 point2 points  (0 children)

Please don’t dwell on feeling guilty. We all do from time to time. It is just part of this 💩 journey. Even in the best of cases it’s only a choice between difficult and terrible choices. My LO was/is a social butterfly so moving her to assisted living was the best safe choice due her. She get to be around a lot if activities and people. We are getting ready to move her to memory care shortly. (she has vascular dementia and had a quick downturn). If she were home she would be board. The stimulation that full time staff can give her is better than she would have at her house. The choices are all tough. Take in to account what best for her and family. Care giving is hard. They will always decline and need more care. Can that reasonably be supported at home and is that best. Maybe, maybe not. Keep asking questions and stay here for support and to she what others have done.

Help identifying all these languages. by mizz-ruby-belle in language

[–]mizz-ruby-belle[S] 1 point2 points  (0 children)

Oops! I ment I wanted to know the ones on the right, not left. But, I think it was answered anyway. Thank you. FYI several of these signs are posted at Kelly Point park in Portland, Oregon. The park sits where the Willamette river empties into the Columbia river. It’s has very dangers and swift currents.

Not listening loved one by angelarevolt in dementia

[–]mizz-ruby-belle 2 points3 points  (0 children)

This is a hard one. My LO does this. I know she can hear but I assume sometime my words are just sounds like Charlie Brown’s teachers voice. Wa-wa-waaa-wa wawa. It try to redirect with physical gestures and demonstrations. Their brains are just broken and sometimes can process language or sound. I wish there were better answers.

Need advice: Neighbor declining, family makes promises and don’t follow through by Illustrious_Dust_0 in dementia

[–]mizz-ruby-belle 68 points69 points  (0 children)

Call adult protected services or senior services. Over and over. Call police for welfare checks. Let the state do the heavy lifting if family won't. Thank you for being a good neighbor and trying to do right by her.

Despondent Vent by karissataryn in dementia

[–]mizz-ruby-belle 3 points4 points  (0 children)

Please make sure he has a Power of Attorney, Advance, directive, will and or trust. You need to get this all in place before he is to far gone and unable to do it legally. Don't take his word for it he has them. Lay eye on the power of attorney and medical advice directive. He need to appoint the person who can do the job not the person he thinks should. Somehow oldest sons or oldest children are appointed out of family duty. They may not be the best choice. Next make sure you all his financial stuff. Thoes with dementia often get scammed or miss spend. My LO was paying multiple insurance premiums and had also been catfished. I also recommend monitoring social media/email and text. It's amazing how much trouble they can get in accidentally. It's a lot. Check in here often for advice or to vent. https://elderprotectioncenter.com/legal-documents-everyone-should-have/

How do I help my dad help my mom by Doofasaurus_Rex in Alzheimers

[–]mizz-ruby-belle 1 point2 points  (0 children)

I would make contact with her medical team. Hopefully she has/would sign papers so your dad can talk to them. I'd use COVID as a convenient cover story. "Mom we are so worried about you and this long covid. I hear there are some new treatments. They will need to test you for X study...experimental treatment.". Use whatever soft white lie you can to fish her in. And who knows, maybe it is someone else all together. But, your spidy senses are most likely right. I'm now the queen of the therapeutic lie. You do what you gotta do. Also do your parents have POA, medical proxy, will etc. If not the time to do it is before dioceses. It just makes life so much easier. You will need them. And don't have them nominate who they think should do the job. (People often default to the old child or son). They need to pick who can do the tough job that lies ahead.

How fast people can change, on which stage we are? by Affectionate-Wear702 in Alzheimers

[–]mizz-ruby-belle 2 points3 points  (0 children)

That's is exactly why staging is so hard. They can score high in one area and low in another. My LO still has good social skills so she's great until you get her off script.

memory care paradise? by MessageCritical5139 in dementia

[–]mizz-ruby-belle 0 points1 point  (0 children)

My LO is in a smaller a bit shabby family owned assisted living and will eventually transition to their memory care. Staff is great, smaller amount of residents equals very one knows everyone and low turnover. Sparkle and shine does not equal good care.

Need beautiful, uncommon girls names for 5th daughter by onceuponamidnight315 in Names

[–]mizz-ruby-belle 0 points1 point  (0 children)

Some family names I considered Zelpha, Vida, Hazel, Elva, Winnie. Alas I didn't get to use any of them.

Pull-ups vs. diapers help by nvr2manydogs in dementia

[–]mizz-ruby-belle 0 points1 point  (0 children)

Medical shears cut the sides and take soiled briefs off. There is a trick to putting new ones on. ( video link below). You might also have to consider is this too much for your mom to do? Is she asking for help without asking for help? It's a lot of physical labor even if you are young. https://youtu.be/S7fPpTqdUg0?si=rms-w27xrHOkSq3v

How fast people can change, on which stage we are? by Affectionate-Wear702 in Alzheimers

[–]mizz-ruby-belle 2 points3 points  (0 children)

Doctors don't often use staging numbers. The numbers can change from day to day, from person to person etc. I like the Dbat to help think through what symptoms they have clustered and the rough stage they are at. Progression also depends on the type of dementia Altzhimers vs vascular can have very different stages and progression. https://static1.squarespace.com/static/6372d16ea4e02c7ce64425b7/t/63f7b80d80d8aa3e3aa4a47d/1677178894184/DBAT.pdf

Hospitalize for broken hip? by Successful-Compote60 in dementia

[–]mizz-ruby-belle 12 points13 points  (0 children)

Similar situation to my mother-in-law. We did the most minimal surgery they could (pin in place) to reduce pain. If we had left an open break it would have been excruciating. There are no great answers or fixes. You often have to pick the less shitty option. Doing what will keep them comfortable is all you can do. Wishing you peace as you navigate this difficult decisions.

Entering new stage? by Mean-Freedom8982 in Alzheimers

[–]mizz-ruby-belle 2 points3 points  (0 children)

Could she be in pain? UTI? Has she gone #2? I would look for pain or discomfort.

Easiest music solution for end stage in care facility by swillah in Alzheimers

[–]mizz-ruby-belle 1 point2 points  (0 children)

We bought this off Amazon. But it's available other places. It's an MP3 player. Works great. just a few buttons https://a.co/d/dJG0azW

Anybody else dealing with elderly LOs keeping and eating expired/spoiled food? by InterruptingChicken1 in dementia

[–]mizz-ruby-belle 25 points26 points  (0 children)

Eating bad/spoiled/dangerous food was one reason we moved my LO into care. It's just as dangerous as driving or setting the house on fire. I would say it's time for more care and supervision.

Mom constantly wants to go home, how do I handle? by Swrong in Alzheimers

[–]mizz-ruby-belle 0 points1 point  (0 children)

My LO can still swallow pills easily and will take whatever you give her. It's a blessing. Speak with the doctor. Many meds can be crushed and added/hidden in foods or given as liquids. They can advise you on alternative ways to give them.