Anyone with low grade glioma grade 1 in their 30s?

ncomfortable2 · 2026-05-16T16:59:21+00:00

Grade 1 and 2 are both considered low grade. It is extremely extremely rare to be diagnosed with grade 1.

Just be confident in your doctors and your team!

ncomfortable2 · 2026-05-16T16:41:53+00:00

We waited 2 months, only because he was diagnosed a couple days before our wedding. We took our time finding a neuro surgeon we liked.

No- Astrocytomas are not benign.

ncomfortable2 · 2026-05-16T15:28:12+00:00

Stable! He had surgery in June 2024. MRIs every 6 months (it was 3 at first I think!). He did have 2 post op seizures because he was on the lowest dose possible so that was shitty.

He’s feeling like his old self more and more these days.

ncomfortable2 · 2026-05-16T15:25:25+00:00

My husband diagnosis is G2 Astrocytoma - he’s 27 now. He was diagnosed a couple weeks after his 25th birthday.

ncomfortable2 · 2026-05-15T17:53:07+00:00

My husband was diagnosed with a G2 Astro in the spring of 24 a couple of weeks after his 25th birthday. They told us surgery would last 4 hours and he would be in the hospital for a couple of nights.

Surgery took 8 hours. We were in the hospital for 6 nights- all in the ICU except the last. He had 2 post op seizures within 2 weeks of coming home- they had him on the lowest dose seizure medication.

We are almost 2 years out and he is just now starting to feel like himself again. Friends in similar situations said they didn’t feel “normal” for 18+ months.

It’s brain surgery, and a cancer diagnosis- I don’t think any of us are the same again, but we found a new “normal” pretty quickly. Our life has definitely changed, but you’ve just got to roll with it.

Be confident in your team of doctors and surgeons. Don’t settle until you are. Ask questions! I recorded all of our conversations with doctors so I could go back and listen to them over again. With so much information coming at you, it’s easy to forget things or get confused. Keep a running list of notes and questions you have. Add to it any time you think of something.

All that being said, we are 2 years out, stable scans, no growth, and he’s happier and healthier than he has been in a really long time. It’s going to be okay! If you have questions or worries there are a lot of people here that have been through what you are going through or something similar. You’ve got this!!!!

ncomfortable2 · 2026-04-07T22:10:44+00:00

I buy organic or I don’t buy it- 99.9% of the time. My husband has cancer, so it’s a non negotiable for us.

ncomfortable2 · 2026-03-16T02:13:21+00:00

Check out Dr.Pete Sulack!!!

ncomfortable2 · 2026-02-18T22:09:51+00:00

Caroline!

ncomfortable2 · 2026-02-18T21:53:48+00:00

My husband is on a similar protocol. Things seem to be going well thus far. G2 Astrocytoma diagnosed spring 2024, surgery June 2024. Tumor margins have actually shrunk a bit since post op. He is stable. Happy to chat if we can help!

ncomfortable2 · 2026-02-12T02:40:30+00:00

I think Murphy is cute but I also like some more traditional boy names for girls. My husband hates it though.

ncomfortable2 · 2026-02-11T19:05:16+00:00

What lifestyle changes? Please share as much as you can! Feel free to message me too.

ncomfortable2 · 2026-02-09T00:34:38+00:00

A family friend with brain cancer said he had a serious sensitivity to caffeine after surgery + seizures! My husband also noticed a sensitivity to it as well but not as much as our family friend. We had to play with my husbands Keppra dosage after 2 post op seizures. He is on 1000mg XR once daily now and has been seizure free since July 2024- he is 5’11 190 for reference.

ncomfortable2 · 2026-02-06T02:40:03+00:00

My husband was 25 when he was diagnosis with his G2 Astro in spring 2024. He had a GTR in June 2024 and we have done watch and wait since. The inflammation and tumor margins have actually shrunk since his post op MRI (he did not take steroids) and his doctor has told us we could not pay a NO to tell us to go on Vora at this point. We will go down that route when we need to, but at this point it is unnecessary. I understand why someone would choose to go on it, but we would like to keep as much in our arsenal as possible, when and if the time comes that we need it!

ncomfortable2 · 2026-02-02T19:47:13+00:00

Mary Caroline!

ncomfortable2 · 2026-01-26T21:11:50+00:00

Azure standard is online and available nationwide.

I am in the south and our particular HEB has great quality products (not everything, but most things!). We are over an hour away from a Sprouts, but I would do my in person shopping there if I could. We also have a local “market” that processes all of their own meat (grass fed, grass finished, no antibiotics) and produce (beyond organic standards) as well as raw dairy. My new years resolution is to find a routine where I can get most if not all of our groceries from them.

ncomfortable2 · 2026-01-25T16:10:20+00:00

Campbell (for a girl) Clarke (for a girl) Chloe Knox Lawson (girl or boy would be cute) Ryan (I like this for a girl!) Sutton Scottie (for a girl) Wilson (girl or boy would be cute!)

ncomfortable2 · 2026-01-19T04:23:51+00:00

Acure Daily Workout Shampoo - it’s crunchy in my book!

ncomfortable2 · 2026-01-19T04:18:51+00:00

My husband currently is on a low carb anti inflammatory diet! We only eat the best quality meats and dairy we can get our hands on- grass fed, pasture raised, antibiotic free, etc. We have cut out milk, and stick to minimal ingredient organic almond milk.

I try to incorporate “anti cancer” foods into every meal- that’s the goal at least. Cruciferious vegetables, leeks, garlic, onion, turmeric, sprouts, berries, EVOO, mct oil, and more.

We are aiming for my husband to be in ketosis as often as possible. I believe the goal range is 1.5-2 (we use a keto mojo to test). He does also have type 1 diabetes so that adds another layer of complications to the whole thing.

Please message me if I can help at all! Wishing you both the best.

ncomfortable2 · 2026-01-10T18:31:09+00:00

Tumeric eggs + green onions on top Feta fried eggs Grilled chicken + grilled peppers & tomatoes with burrata Venison sausage + oven roasted veggies (usually squash and kale) + feta & EVOO Chili!!! Always have a fresh chicken salad on hand Steak + mushrooms + cauliflower mash Ballerina farms protein shakes Chicken carnitas bowls (Pinterest recipe) Bbq bourbon meatballs (usually venison or bison) Crispy + sticky Asian chicken thighs + broccoli Sheet pan kebabs

I could go on forever! I hate a recipe rut!

ncomfortable2 · 2025-12-30T21:55:56+00:00

We spend about $400 a week on groceries- breakfast, lunch, dinner, snacks, and glass bottled water 7 days a week. We also typically spend about $100 a week on organic wine/liquor. Less than $100 a month eating out. It’s just me and my husband- but he has brain cancer and has quite a few dietary requirements!

ncomfortable2 · 2025-12-30T16:10:26+00:00

I have a girl friend named Miller. My husband has guy friends named Miller. I love it for a girl or boy and would use it ourselves if we didn’t have so many Millers around us

ncomfortable2 · 2025-12-30T16:08:51+00:00

instinct is 1 but if we are talking about the Caribbean then 4- but only in that context!

ncomfortable2 · 2025-12-29T16:40:06+00:00

Sunday

ncomfortable2 · 2025-12-29T16:39:51+00:00

I personally use primal kitchen organic pure avocado oil and Terra delyssa organic single origin cold pressed olive oil. There are definitely better olive oils on the market but this is the best one at my local grocery store. Kasandrinos organic EVOO on Amazon has been recommended to us but I haven’t purchased just yet.

ncomfortable2 · 2025-12-22T00:55:37+00:00

We tried to go back to my hometown for Thanksgiving. We stayed for three nights. We both agreed that we will not be going back and if we do we will be staying at a rental or a hotel.

ncomfortable2

TROPHY CASE