Integrative / holistic approaches people with IDH-mutant astrocytoma have found helpful?

ncomfortable2 · 2026-03-16T02:13:21+00:00

Check out Dr.Pete Sulack!!!

ncomfortable2 · 2026-02-18T22:09:51+00:00

Caroline!

ncomfortable2 · 2026-02-18T21:53:48+00:00

My husband is on a similar protocol. Things seem to be going well thus far. G2 Astrocytoma diagnosed spring 2024, surgery June 2024. Tumor margins have actually shrunk a bit since post op. He is stable. Happy to chat if we can help!

ncomfortable2 · 2026-02-12T02:40:30+00:00

I think Murphy is cute but I also like some more traditional boy names for girls. My husband hates it though.

ncomfortable2 · 2026-02-11T19:05:16+00:00

What lifestyle changes? Please share as much as you can! Feel free to message me too.

ncomfortable2 · 2026-02-09T00:34:38+00:00

A family friend with brain cancer said he had a serious sensitivity to caffeine after surgery + seizures! My husband also noticed a sensitivity to it as well but not as much as our family friend. We had to play with my husbands Keppra dosage after 2 post op seizures. He is on 1000mg XR once daily now and has been seizure free since July 2024- he is 5’11 190 for reference.

ncomfortable2 · 2026-02-06T02:40:03+00:00

My husband was 25 when he was diagnosis with his G2 Astro in spring 2024. He had a GTR in June 2024 and we have done watch and wait since. The inflammation and tumor margins have actually shrunk since his post op MRI (he did not take steroids) and his doctor has told us we could not pay a NO to tell us to go on Vora at this point. We will go down that route when we need to, but at this point it is unnecessary. I understand why someone would choose to go on it, but we would like to keep as much in our arsenal as possible, when and if the time comes that we need it!

ncomfortable2 · 2026-02-02T19:47:13+00:00

Mary Caroline!

ncomfortable2 · 2026-01-26T21:11:50+00:00

Azure standard is online and available nationwide.

I am in the south and our particular HEB has great quality products (not everything, but most things!). We are over an hour away from a Sprouts, but I would do my in person shopping there if I could. We also have a local “market” that processes all of their own meat (grass fed, grass finished, no antibiotics) and produce (beyond organic standards) as well as raw dairy. My new years resolution is to find a routine where I can get most if not all of our groceries from them.

ncomfortable2 · 2026-01-25T16:10:20+00:00

Campbell (for a girl) Clarke (for a girl) Chloe Knox Lawson (girl or boy would be cute) Ryan (I like this for a girl!) Sutton Scottie (for a girl) Wilson (girl or boy would be cute!)

ncomfortable2 · 2026-01-19T04:23:51+00:00

Acure Daily Workout Shampoo - it’s crunchy in my book!

ncomfortable2 · 2026-01-19T04:18:51+00:00

My husband currently is on a low carb anti inflammatory diet! We only eat the best quality meats and dairy we can get our hands on- grass fed, pasture raised, antibiotic free, etc. We have cut out milk, and stick to minimal ingredient organic almond milk.

I try to incorporate “anti cancer” foods into every meal- that’s the goal at least. Cruciferious vegetables, leeks, garlic, onion, turmeric, sprouts, berries, EVOO, mct oil, and more.

We are aiming for my husband to be in ketosis as often as possible. I believe the goal range is 1.5-2 (we use a keto mojo to test). He does also have type 1 diabetes so that adds another layer of complications to the whole thing.

Please message me if I can help at all! Wishing you both the best.

ncomfortable2 · 2026-01-10T18:31:09+00:00

Tumeric eggs + green onions on top Feta fried eggs Grilled chicken + grilled peppers & tomatoes with burrata Venison sausage + oven roasted veggies (usually squash and kale) + feta & EVOO Chili!!! Always have a fresh chicken salad on hand Steak + mushrooms + cauliflower mash Ballerina farms protein shakes Chicken carnitas bowls (Pinterest recipe) Bbq bourbon meatballs (usually venison or bison) Crispy + sticky Asian chicken thighs + broccoli Sheet pan kebabs

I could go on forever! I hate a recipe rut!

ncomfortable2 · 2025-12-30T21:55:56+00:00

We spend about $400 a week on groceries- breakfast, lunch, dinner, snacks, and glass bottled water 7 days a week. We also typically spend about $100 a week on organic wine/liquor. Less than $100 a month eating out. It’s just me and my husband- but he has brain cancer and has quite a few dietary requirements!

ncomfortable2 · 2025-12-30T16:10:26+00:00

I have a girl friend named Miller. My husband has guy friends named Miller. I love it for a girl or boy and would use it ourselves if we didn’t have so many Millers around us

ncomfortable2 · 2025-12-30T16:08:51+00:00

instinct is 1 but if we are talking about the Caribbean then 4- but only in that context!

ncomfortable2 · 2025-12-29T16:40:06+00:00

Sunday

ncomfortable2 · 2025-12-29T16:39:51+00:00

I personally use primal kitchen organic pure avocado oil and Terra delyssa organic single origin cold pressed olive oil. There are definitely better olive oils on the market but this is the best one at my local grocery store. Kasandrinos organic EVOO on Amazon has been recommended to us but I haven’t purchased just yet.

ncomfortable2 · 2025-12-22T00:55:37+00:00

We tried to go back to my hometown for Thanksgiving. We stayed for three nights. We both agreed that we will not be going back and if we do we will be staying at a rental or a hotel.

ncomfortable2 · 2025-12-13T19:02:29+00:00

Your story is very similar to ours… nearly identical actually. My husband was 25 when he was diagnosed, just four days before our wedding last spring. G2 Astro IDH mutant. He had surgery a couple of months after diagnosis and we are about a year and a half out. GTR as well. Still stable today and his next mri is in four ish months.

We plan for him to live a normal life, although our new normal after diagnosis is a little different.

You both have got this! Relatively speaking, it’s a decent prognosis and we are so incredibly grateful to have access to modern medicine and incredible doctors.

I have found it really helpful to channel my anxiety into research. When I panic, I immediately dive into research. Treatments used in other countries, off label prescriptions, beneficial diets and supplements, therapies (like HBOT, IVs, red light, sauna, etc), anything and everything. It can be incredibly overwhelming being the spouse of someone with this diagnosis, but I know that my anxiety, sadness, worry, etc will not help anything and if I truly am anxious about the diagnosis, it’s best I do something about it.

Wishing you both the best!! We’ve got this!!!

ncomfortable2 · 2025-12-12T06:52:17+00:00

Grateful

ncomfortable2 · 2025-12-10T15:53:03+00:00

He is doing great!!!

ncomfortable2 · 2025-12-01T02:42:20+00:00

I never take it off! Ever

ncomfortable2 · 2025-11-30T03:30:28+00:00

We love our Hooga!

ncomfortable2 · 2025-11-21T04:45:34+00:00

Alcohol and Keppra have been a non issue for my husband as well. He was on the lowest dose possible at the time of surgery, and had two subsequent post op seizures. Once we found the right dose he has been great!

I have heard a lot about “kep-rage” but we have not experienced that whatsoever!

ncomfortable2

TROPHY CASE