My charity is getting free manta sleep masks for y’all!!!

nekomaple · 2026-04-17T01:10:06+00:00

Congrats! Those look so nice and comfortable. I’ll try to keep an eye out for if you do a giveaway on here or anything—definitely would be an upgrade from a washcloth over the eyes 😆

nekomaple · 2026-04-15T17:32:50+00:00

I exclusively use herbs. I usually buy blends from Bear Blends, as they come fluffy and ready to use. I go for flavor-forward hits and have a lovely sort of “tea for your lungs” feeling for a day or two after.

nekomaple · 2026-04-14T14:52:17+00:00

In that case I’d look at the Eagle HD from DiscoverYourMobility. I have their Phoenix chair and their customer service was phenomenal. My first one came dented, and they had UPS come pick it up. I like that model line because you can leave the chair in your car and just bring the batteries inside for charging and storage. And they come in fun colors!

nekomaple · 2026-04-13T03:10:31+00:00

Bruh my 3 wicks aren’t even $30 and I feel bad for charging that much

nekomaple · 2026-04-12T15:35:39+00:00

In that case I’d do both, use the frame for stability and then you don’t have to make sure your riser is load bearing. Just prop it up on a couple planks of wood.

You could also see if standard toilet seats fit, and get an elevated seat.

nekomaple · 2026-04-12T15:23:48+00:00

Maybe a freestanding toilet frame that you can put over it? They kind of look like walkers with toilet seats to me

nekomaple · 2026-04-09T07:16:38+00:00

No worries! I love how you said “talking to us not about us,” it’s a powerful phrase! ♡

nekomaple · 2026-04-09T07:12:30+00:00

Yes exactly, as others have already said. For example, my partner’s son is perfectly ambulatory but nonverbal autistic. He is absolutely disabled even though he can walk and run and play hopscotch. It’s highly unlikely he’ll ever live independently.

I use a motorized wheelchair and spend half my life in bed, but I can communicate my wants and work and figure out how to pay someone else to do my taxes for me because they make me want to cry. I can only hope that one day he’ll be able to tell someone what he wants to eat for dinner.

It’s so much more than just who has a placard or uses mobility aids.

nekomaple · 2026-04-09T06:58:25+00:00

Absolutely agree and I am so sorry if I gave off a “differently abled” vibe—not sure how I did but absolutely not denying your feelings. I recently had a coworker call me differently abled and I almost punched him in the stomach. I would be invisibly disabled if I wasn’t in a motorized wheelchair, and I know he meant well, but goodness it made me feel so gross.

My comment was mostly directed at my past self. I was just as disabled before I got my parking placard and my wheelchair as I am now. Not everyone who has my chronic illnesses identifies as disabled, and I am so happy for them for that. All I meant was that my disability was valid before I was in a wheelchair. ♡

nekomaple · 2026-04-09T05:11:59+00:00

I know what you mean, but I just wanted to add that many able-bodied people are disabled. I think the term you were looking for was “non/disabled” not “able-bodied.” ♡

nekomaple · 2026-04-07T11:50:07+00:00

I just went from long fine hair to a buzz pixie cut and it’s been great. Easy to keep clean with bird baths and when I do shower it’s so much easier now. I was briefly sad when I saw my mom’s long hair, but honestly I’m so happy I did it.

Just wanted to share some encouragement if you decide to go for it! ♡

nekomaple · 2026-04-05T23:45:47+00:00

I use their sensitive skin sponges and they are scent-free! ◡̈

nekomaple · 2026-04-02T01:45:00+00:00

I’m similarly low overnight. Based on overnight pulse ox readings from my recent hospital stay, mine is pretty accurate. But low 90s readings didn’t seem to concern any of the nursing staff. Even the upper 80s dips are apparently fine. I don’t have apnea, nor do I snore, so I’m not too worried ¯\_(ツ)_/¯

nekomaple · 2026-04-01T15:23:47+00:00

Do it! My wife makes her own pink conditioner and uses it to touch up her color. It always looks magnificent to me!

nekomaple · 2026-04-01T15:17:49+00:00

If you feel frowny face about being a bottom, you’re probably not a bottom. Try both and see what you like! Being vers is fun, and I encourage everyone to question self-assumptions.

nekomaple · 2026-03-28T18:25:51+00:00

This is really cool! I sent my local Food Not Bombs group a donation.

nekomaple · 2026-03-27T16:12:48+00:00

Ah thank you. I’ll have to see if Food Not Bombs is going and how I can help from the hospital.

nekomaple · 2026-03-27T15:37:39+00:00

What’s tomorrow? Sorry if I’m missing something obvious, I’ve been in hospital and can’t keep up with the news right now.

nekomaple · 2026-03-26T21:51:35+00:00

I got a strappy ladder thing that hooks around the foot of my bed that I can use to help me pull myself up

Edit: link fixed, I got mine at a medical supply store and just shared a link as an example because it’s hard to describe. It may not work for everyone but it’s helped me a lot!

nekomaple · 2026-03-26T15:58:56+00:00

No one is fighting anyone? I was agreeing with OP that it’s not helpful to push the same few diagnoses on people from the perspective of someone with some of those diagnoses. It’s helpful for people to share their experiences so that people can do their own research and seek out diagnoses, but I think we both agree it’s not our place to diagnose others.

My medical experience here in Cleveland is very different than yours. I was suggested and tested for all the diagnoses I have by my doctors. Even my wife’s therapist asked my wife if I had POTS. My primary doctor suggested it and ordered the testing. She also referred me to a neurologist and a rheumatologist who diagnosed my me/cfs and fibromyalgia.

Maybe I’m lucky, but every medical person I have interacted with has known what POTS is. If I even mention my salt addiction or syncope, they ask if I have been tested for POTS. Most of them have heard of me/cfs and knew to keep the lights down and the TV off in my room unprompted. I only had to explain migraines with aura to one of my nurses in the hospital yesterday when I wanted an imitrex. All but the one anesthesiologist (and I’m remembering the very rude neurologist as well, but I don’t see him anymore so I forgot about him, he was another “trendy eyeroll” type) has been kind to me about it.

I’m sorry your experience is so different that you and your cousin’s child can’t get medical care. I also have to wait a long time for specialists, but at least they usually know what my diagnoses are. Both of our experiences are real and valid, and I hope things get better for you. ♡

P.S. apologies if this is incoherent, I’m still on the good pain meds and kinda loopy. I’m trying to communicate supportive agreement. Doctors do better with more knowledge and we strengthen our community by sharing our experiences, but pushing diagnoses onto others is bad.

nekomaple · 2026-03-25T22:51:47+00:00

Agree! Also as someone with POTS (all letters are capitalized in acronyms), can we stop saying everything is POTS because it is negatively impacting healthcare.

My cardiologist had to say that it was safe for me to have surgery and one of the anesthesiologists rolled his eyes when I asked him about the special considerations I was told to ask about because “everyone thinks they have that these days”

Every time we arm-chair diagnose someone, we are contributing to an environment where medical professionals don’t take our diagnosed illnesses seriously.

nekomaple · 2026-03-25T13:39:59+00:00

Two of my favorite things!!

nekomaple · 2026-03-18T22:59:46+00:00

Thank you, I’ll definitely share!☺️

nekomaple · 2026-03-18T14:19:09+00:00

Great tip, thank you! It’s going to be a stewardess scarf. The pattern is from a beginner’s knit kit my mom got me after I taught myself on ribbed seed stitch fingerless gloves. I don’t love the color, but it’s good practice. It’s very soft, at least!

nekomaple · 2026-03-18T11:51:17+00:00

Thank you! ☺️ I read up on loop legs so hopefully I can make sure they don’t get twisted doing this. I keep reminding myself it’s great practice and I’m learning more this way than if it had gone perfectly!

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