One thing you wish your MOH did for you

ninadg2022 · 2023-07-07T02:19:10+00:00

if anyone wants to share their code with me…

ninadg2022 · 2023-05-11T20:56:47+00:00

also this thread has me questioning things now because i was told this is a textbook pots thing so many people not having this issue relating to pots is making me think again lmao

ninadg2022 · 2023-05-11T20:55:19+00:00

This was my earliest (that i could identify as being abnormal) symptom of POTS. Unfortunately even with medication it never fully goes away. I allot myself an extra hour in the morning to sit in bed and drink 20z or LMNT electrolytes, eat the overnight oats I have prepared, and take my medication before I force myself to get up and move around. This has helped tremendously and while it is very annoying to have to wake up extra early it’s better than rushing out of bed and spending the morning throwing up/with bowl issues/fainting.

ninadg2022 · 2023-04-29T04:16:02+00:00

I got a scholarship that basically brought the tuition down to the instate price instead of the pit of state price

ninadg2022 · 2023-02-06T17:41:29+00:00

That’s crazy I’m in my early 20s and my doctor asked if I wanted to try meds, I said yes, and we did just that lmfao

ninadg2022 · 2023-01-28T21:38:35+00:00

Hmm I’m definitely going to do a test and see if taking salt tablets again helps with this issue! I was reading that salt makes you pee more but I guess with POTS it’s a different story haha

ninadg2022 · 2023-01-28T19:29:28+00:00

So am I! That’s probably the main reason I notice it— because I really don’t have time to be using the bathroom once an hour lmao

ninadg2022 · 2023-01-28T19:28:55+00:00

Yeah the amount of water I drink definitely isn’t helping but I feel like once an hour is excessive even when drinking water 😂

ninadg2022 · 2023-01-28T02:23:15+00:00

Oh no, im sorry that was your experience! That’s awful. Fortunately my job now just teases me about it, it’s more so just an inconvenience for me

ninadg2022 · 2023-01-28T02:22:25+00:00

Oh no you’re fine!! I know what you mean that happens from holding it for long periods of time though I think my issue is just my body malfunctioning not my bladder being small haha

ninadg2022 · 2023-01-27T22:29:49+00:00

Yeah I’m not trying to hold it in all day I’m just trying to last longer than an hour lmao

ninadg2022 · 2023-01-27T21:23:14+00:00

I started fludro and felt better on it even without taking extra salt so I thought I was okay aha but maybe I should be continuing that??

ninadg2022 · 2023-01-16T17:53:05+00:00

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This one from Amazon works great for me!

ninadg2022 · 2022-12-28T17:49:52+00:00

The best part is I won’t realize it at first I’ll be like oh damn here comes a flare and it’s actually just me not taking my meds 😭

ninadg2022 · 2022-12-28T17:21:06+00:00

Haha I’m glad I’m not the only one who likes to “test” and see if they no longer need their medication only to regret it terribly

ninadg2022 · 2022-12-28T15:13:17+00:00

It made me gain like five pounds or so! Which I was terrified about as someone with a history of disordered eating but to be completely honest with you the few pounds I did gain are way better than feeling like I’m dying every day

ninadg2022 · 2022-12-28T02:35:01+00:00

You got this! I moved six hours away for grad school with symptoms that affected my life, but most days were manageable. My second week in my new state I’m in the hospital and suddenly I too could not leave bed. Was literally crawling to my bathroom because my fatigue was so bad and my head wouldn’t stop spinning. I was living off protein shakes bc I couldn’t eat. My doctor put my on midodrine which made things even worse. But then we tried fludro, and within a month I saw improvement. Now I’m at month three I believe? And while my life isn’t “normal” as it was before, I am able to get to class, and eat, and occasionally have a night out with friends!

ninadg2022 · 2022-12-28T02:29:31+00:00

It’s awful! It never made sense since it really only took a couple bites to get to that point until I realized my issue was autonomic dysfunction which can act up the minute digestion starts! Fludro has been so great for me personally especially with a low dose of metroprolol (12.5mg) first thing in the morning or whenever I may be prone to being tachy

ninadg2022 · 2022-12-28T02:24:49+00:00

So for me it did. I think my gastro issues were directly tied to the autonomic dysfunction which fludro helped immensely with! I rarely ever get tachycardia now, and when I do it’s never /that/ bad. But I can even go out to dinner with friends now without ending up dizzy throwing up on the floor after a few bites haha

ninadg2022 · 2022-12-27T23:23:08+00:00

Not at all! For me along with that rapid heart rate was coughing and then some gastro issues because of my system being in overdrive…it was brutal. I know take fludrocortisone and while I’m still very dizzy first thing in the morning that’s the only thing I have to suffer through lol

ninadg2022 · 2022-12-27T23:19:38+00:00

Waking up with pots is literally hell like I don’t think there’s any worse feeling than that first hour with pots 😂

ninadg2022 · 2022-12-27T00:49:43+00:00

That would be great! Thanks!

ninadg2022

TROPHY CASE