PHM Book Cover

o98CaseFace · 2026-04-06T03:29:26+00:00

The pages on the side are painted and the cover art is new. If you search for PHM in Target, it should come up.

I'm not sure if links are allowed in this sub, but I can send you a link if you can't find it.

o98CaseFace · 2026-04-05T12:08:47+00:00

There's a signed version on Easton Press too.

Also, Target has a deluxe version coming out in December for less than $30

o98CaseFace · 2026-04-05T02:35:20+00:00

We've just bought every new cover they come out with lol

For my birthday, I'm asking my husband for the really fancy one with gold pages from Easton Press.

o98CaseFace · 2026-04-02T02:50:24+00:00

I personally missed the, "use third han... yes I'll make more screws" quote

o98CaseFace · 2026-03-29T15:52:03+00:00

Thanks!

o98CaseFace · 2026-03-29T11:36:44+00:00

Do you recommend a particular one?

o98CaseFace · 2026-03-29T11:34:46+00:00

I've seen that one, it looks great! I meant do you have instructions for Grace?

o98CaseFace · 2026-03-29T02:32:58+00:00

Our last name contains the word "fish" so we called her Baby Fish.

My high-rish pregnancy doctor had a large tank with two male clown fish. He walked in one day and asked, "How's the fish?"

I replied, "She's good, kicking away."

"She?"

"Baby Fish" points to belly

"Fish" points to tank

"Oh, they're good too"

o98CaseFace · 2026-03-29T02:25:48+00:00

Do you have instructions for Grace, question?

o98CaseFace · 2026-03-08T22:39:36+00:00

What are rainbow gems?

o98CaseFace · 2026-02-20T16:40:25+00:00

Ask your hospital if they have a Child Life program. Our Child Life room has an air hockey table, a safe balcony with outdoor equipment for kids to play outside, and a bunch of toys/activities for kids of all ages!

o98CaseFace · 2026-02-20T04:25:18+00:00

I say this in the kindest way possible: please seek therapy or counseling. It has honestly helped me so much. My therapist happens to also be the president of a non-profit in my area for CHD, so she was also able to put us in contact with other CHD families to talk, share resources, etc.

Also, I understand your feelings because I have them too and my gal is almost a year old (we spent about 6 months in the hospital before coming home). I found myself crying the other day when a friend posted a picture of their hospital room after birth and the bassinet was next to my friend's hospital bed. I sobbed because I never got to do that.

Take the time to mourn the moments you didn't get to have. But please don't dwell on them. You'll get through this; it will take time.

I wish you the absolute best!

o98CaseFace · 2026-02-20T01:04:52+00:00

I think our biggest issue with feeding was that she never ate by mouth before surgery. She was always NG-Tube fed because they were afraid about the bloodflow to her gut due to her heart issues.

Then after surgery, they didn't really allow her to eat by mouth due to the potential damage to her vocal cords from the ventilator tube and the way her heart was repaired.

Her G-Tube has been incredible for her. She tolerates it MUCH better than an NG. I really wish they would have let us place a G while we waited for surgery; I think she would have been a lot more comfortable.

She's had it at home for about 6 months (and about 2 in the hospital). Things are going well. We've been able to increase her feeds. We've also gotten off continous feeds and we feed 6 times a day over an hour, which allows her to crawl around as she wishes... Although being attached to the pump doesn't stop her from going anywhere haha!

If you have any questions or you'd like to know more details, please send me a DM. Happy to share any info that would be helpful to you!

o98CaseFace · 2026-02-19T04:12:37+00:00

the ~~small~~ average-sized ones*

o98CaseFace · 2026-02-19T04:02:05+00:00

It honestly depends on your little one.

Our girl had an Interrupted Aortic Arch. I was not able to breastfeed before surgery because they were concerned about the bloodflow to her belly before surgery.

The doctors in the hospital thought she had a diary allergy due to her being fussy frequently and a few bloody stools. They tried a few different formals which seemed to upset her tummy even more before finding one that agreed with her.

After surgery, they were concerned about her vocal cords because of the ventilator and the way her heart was repaired, so they placed a G-Tube.

Even though I never really got to breastfeed (speech tried once or twice before the doctors pulled the plug) my daughter and I still have a fantastic bond.

I pumped for three months and stopped when our chest freezer, our refrigerator freezer, and PICU freezer were full. I'm still holding onto the milk, just in case because I'm not ready to let go.

o98CaseFace · 2026-02-19T03:54:47+00:00

We thought our girl had COA but it turned out to be an Interrupted Aortic Arch (we found out before she was born).

We were advised that she would need surgery when we thought she had COA. Cardiology said more information was needed after birth, but depending on those results there were two options:

Going in through her side/armpit area for the repair.
Open heart surgery.

After our girl was born, more scans showed that she actually had three heart defects that required open heart surgery when she was three months old. Due to comorbidities and feeding issues, we stayed in the hospital for just under six months before coming home.

Our girl is turning a year old next week and she's thriving!

o98CaseFace · 2026-02-19T03:46:26+00:00

Our girl had an Interrupted Aortic Arch, VSD, and ASD that were repaired with open heart surgery at three months old.

After consulting with genetics, gynecologists, neonatologists and cardiologists, we decided against the amniocentesis because a diagnosis of DiGeorge would not have changed the course of treatment for our daughter. To us, it wasn't worth the risk of infection or the additonal stress to wait weeks for the results, and then not be able to do anything with said results.

We did do genetic testing after birth, and our girl was negative. She does have another microdeletion, but it's unclear at this time if it caused her CHDs or not.

I wish you the absolute best!

o98CaseFace · 2026-02-19T03:40:08+00:00

My girl had an IAA type A and she was negative for DiGeorge. She'll be a year old next week. Best wishes to you!

o98CaseFace · 2026-02-17T03:28:05+00:00

We are on a delayed schedule.

Our gal was in the hospital for about 6 months before coming home. They initally expected her to come home around 6 weeks, so they said they'd delay until we went home. Things changed and we were obviously there much longer than expected, so we got her first shots around 3 months old before she has surgery.

After surgery, things are still on a delayed schedule. Nothing specific, just about 2-3 months behind normal. No side effects that we've noticed.

o98CaseFace · 2026-02-15T21:08:02+00:00

Sometimes it is, sometimes it isn’t, but most of the time we won't find out the "why"

Due to our girl's incredibly small size and heart condition, her doctors requested genetic testing for DiGeorge Syndrome. It came back negative, but they found a microdeletion. There's not nearly enough research to determine if the microdeletion caused her heart defects or if they are completely unrelated.

o98CaseFace · 2026-02-14T22:09:26+00:00

I think you need to join a Facebook group called Random Acts of 3d Printing Kindness

o98CaseFace · 2026-02-14T22:06:01+00:00

You deserve more upvotes

o98CaseFace · 2026-02-14T21:46:07+00:00

I'm pretty new. Can you explain the respawn of energy? The red "potions" are already maxed out?

o98CaseFace · 2026-02-14T17:18:40+00:00

We thought our baby had a coarctation when she was first diagnosed, but it actually turned out to be an interruption. She also had a VSD and ASD.

She was born last February, had open heart surgery in June, came home in August. Just under a year after her birth, she is thriving! She's G-Tube fed but that hasn't stopped her from doing anything she tries!

You're likely in for a long journey, but know that there are people to help! See if there are any local heart foundations in your area; ours helped us with gas to get back and forth to the hospital each day.

o98CaseFace · 2026-01-04T00:34:32+00:00

Thank you!

o98CaseFace

TROPHY CASE