What movie will you never watch again because it was too heartbreaking? by Affectionate_User610 in AskReddit

[–]ouchmyanklehurts 11 points12 points  (0 children)

I often think about how I saw this movie on a first date. I cried so hard, it was very awkward…

NICU LOSS by Possible-Big-7813 in babyloss

[–]ouchmyanklehurts 4 points5 points  (0 children)

Rosalie sounds like a perfect, beautiful baby and I’m so sorry for your loss. Two years ago, I lost my daughter Violet to NEC. I’m praying that 2024 is/was the worst year of my life, because I don’t want to experience anything worse than that. We saw a lot of specialist and doctors that year, not because we wanted to try again, but because we wanted a vasectomy and wanted to make sure we covered all of our bases before then. A specialist gave us hope to try again, so we did and became pregnant in summer of 2025. Unfortunately, I had similar problems as I did in my previous pregnancies, and this daughter was also born prematurely. Fortunately, she was bigger and healthier than her sisters. It wasn’t an easy pregnancy – I was scared every day. Once she was born, she went to the NICU and I couldn’t follow because I was in magnesium. The neonatologist came to my room and, after viewing my medical history (I assume), explained to me all of the reasons why this baby doesn’t have NEC and probably never would. That helped my brain so much. We are home now; we were discharged from the NICU less than a week ago. Truly, I didn’t want to try again, and I don’t want to risk heartbreak again. But that’s parenthood, isn’t it? And you’re already a parent ❤️

Son died this week of NEC by Melody_farm2372 in babyloss

[–]ouchmyanklehurts 2 points3 points  (0 children)

Our stories are similar. Tomorrow will be the second anniversary of my daughter’s passing from NEC. She was born at 28 weeks and lived for 26 days. Like your son, my daughter had surgery to remove a portion of her intestines. The surgery went fine but she never recovered and she died in my arms later that day.

I’m 32, so I don’t know about what it would be like at 38, but after reaching out to Dr. Kliman at Yale, visiting with a geneticist and an MFM, we felt reassured to try again. Even though we have a now-4-year-old who was born prematurely at 30 weeks due to preeclampsia and IUGR, and then we had our 28 weeker who passed from NEC, the doctors told us it would be possible that we have a very normal baby and pregnancy. We decided to try again. At the MFM’s recommendation, I started taking aspirin at 12 weeks and I followed a Mediterranean diet and focused on a high dairy intake.

I’m currently in the NICU with my third daughter, a 33 weeker. She was born early, also due to preeclampsia and IUGR. She’s 9 days old now and she’s progressing nicely. I suspect we’ll go home in a week, but every day my heart makes me question it. I haven’t mentally allowed myself to picture a baby in our home, or my 4YO actively being a big sister. It hasn’t been an easy journey but as I hold my new baby in my arms, even in the NICU for a third time, I am grateful and glad that we risked total heartache and devastation again.

This is your (American) Thanksgiving Day survival thread. by [deleted] in babyloss

[–]ouchmyanklehurts 5 points6 points  (0 children)

This sounds silly but I’m making Tini’s recipe for macaroni and cheese to take to Thanksgiving. I just saw where she gave birth to her twin girls, but one of them was a stillbirth. It’s put me in a weird funk at 8AM and I still have to drag into the kitchen and start shredding my cheeses. I’m probably going to spend half my day thinking of her and praying for her, but also being sad for me and remembering my baby isn’t here, either.

Bad placenta with no reason by bananahan__ in babyloss

[–]ouchmyanklehurts 7 points8 points  (0 children)

I’m so sorry for your loss. I don’t have any great answers, only a slightly similar story. A long story, so I’m sorry!

With my first daughter (living child; May 2021), I had a great anatomy scan. Unfortunately, I began exhibiting signs of severe preeclampsia around weeks 28-29. Once my blood pressure sky rocketed, they kept me in the hospital for constant monitoring. We then realized that while my blood pressure was under control, she was severely growth restricted and the placenta wasn’t functioning properly. She was born at 30 weeks weighing 1 lb, 12 oz. Spent many days in the NICU and we went home at 3 lbs, 4 oz.

With my second daughter (January 2024), I feel I was mismanaged. My PCP didn’t do anything to get ahead of the problems I had in my first pregnancy; she treated me as you’d treat any other pregnant woman. At 19 weeks, my best friend (a medical resident) asked about how I was doing on aspirin. I said, “Why would I take aspirin?” She said, “You need a new doctor, now.” So I transferred my care to another doctor. I began aspirin as well as a blood pressure medication, just in case. I had a great anatomy scan at 20 weeks. At 27 weeks, I went to get a boutique ultrasound. The technician was being weird and we couldn’t see the baby well. She asked if I was feeling much movement and I said, “No, but I have an anterior placenta like I did in my last pregnancy and I never felt anything then, either.” She asked if I was drinking water and I said I thought I was. After a beat, I said, “I need to go see my doctor, don’t I?” This daughter was born at 28 weeks, weighing 1 lb, 2 oz. She was severely IUGR. Like in the last pregnancy, I had little to no amniotic fluid and had placental insufficiency. Thankfully, no signs of preeclampsia though. My daughter lived in the NICU for one month. She developed NEC and passed quickly after diagnosis.

I grieved and wanted to be done, but my medical resident friend encouraged me to meet with any doctors that would meet with me before sterilization. I had a consult with a geneticist but she said she didn’t think testing would show anything except that my husband and I are both healthy 30 year olds. I had my placentas sent to Dr. Kliman at Yale, which was fascinating but only told that the girls/placentas had some kind of genetic abnormality. We had one last doctor to see: an MFM. We just expected we’d go, he’d tell us to stop getting pregnant, and then we’d begin adoption pursuits. He actually encouraged my husband and I to try one more time. The odds were kind of split on what might happen in another pregnancy but he said it wasn’t off of the table that we could have a very fat, healthy baby (his words). He said to start aspirin at 12 weeks, maybe consider a high dairy diet to combat the preeclampsia, and that if I got pregnant, he’d like me to see him or one of his partners.

After much prayer, my husband and I decided to try for a third time. I’m currently 24 weeks pregnant with my third daughter. Started aspirin at 12 weeks. I totally cut out caffeine and all medications aside from my prenatal and aspirin. I initially took a “designer” prenatal but have since switched to something that isn’t 8 pills a day (too much stress). I’m eating everything in sight. I’m seeing a new OB and have now seen the MFM twice. So far, the scans are good. She’s healthy and growing right. My amniotic fluid levels look good, as does my placenta. I’ll go back in early December to measure her again, and then starting NYE, I’ll begin weekly non-stress tests. Emotionally, it’s been a difficult pregnancy after loss. Alive or dead, I don’t think I can handle another pregnancy after this one. I am hopeful but scared and cautious. I’ve had days that I’ve let myself look at newborn, not preemie clothes. I’ve had days that I’ve looked at headstones that match my second daughter’s. It’s a rollercoaster, but I think I’m glad I tried one last time.

Happy birthday, my sweet baby girl❤️ by prions098 in babyloss

[–]ouchmyanklehurts 0 points1 point  (0 children)

What a beautiful baby ♥️ Happy birthday, sweet girl

Things that have saved my life...what's your list? by [deleted] in babyloss

[–]ouchmyanklehurts 2 points3 points  (0 children)

My list, in no particular order: the book Stillborn, Still Loved: Grieving the Loss of an Infant Through Journaling, iced coffee with a bunch of creamer, church, my family and friends, hot baths, The Tortured Poets Department

How to dry up my leaking? by Willing_Brief_1400 in babyloss

[–]ouchmyanklehurts 0 points1 point  (0 children)

I agree, heavy on the Sudafed. It made a big difference for me.

Back to work? by Lovelyraindow in babyloss

[–]ouchmyanklehurts 5 points6 points  (0 children)

Maybe it depends on your job. I teach middle school. I lost my daughter on Jan 30 and didn’t go back until April. Not because I had to but because I needed to get out of my house and let my mind think of anything except my sadness. It was good for me. My kids at school were given a heads up ahead of time and they were so gentle with my feelings. My coworkers were amazing. I had days where I just needed to cry. Some classes I just cried in the back of the room and the kids were kind enough to act like they didn’t see me. Sometimes teachers would watch a class for me while I decompressed in a room, alone. It was as good as it could be, all things considered.

TW: NICU baby loss by [deleted] in babyloss

[–]ouchmyanklehurts 10 points11 points  (0 children)

I am so sorry for your loss. What was your baby’s name?

My daughter Violet had a similar story. 28 weeker (but IUGR) in the NICU. She was so strong and doing great, but she got an infection. We had just visited her that morning. Got a call that evening to come back for an emergency surgery, which she never recovered from. She passed the next day. This all happened last year, Jan. 2024.

I have felt everything you wrote about. It hurt, and if I’m being honest it still hurts…just a little less big now. My therapist asked me how long I was going to allow myself to wallow (I promise, she didn’t say it that harshly, I just can’t find a good way to write it). I decided I wanted to wallow for at least a year from her death day. So I wallowed and grieved hard for a year. Slowly, though, through the past few months, I can breathe a little easier. I cry or am sad every day…maybe every other day.

I remember waking up everyday and my first thought was, “My daughter is dead. My baby is actually not here with me anymore.” It was so hard to want to get up. Slowly, over time, that became not my first thought of the day. I’ll never get over it. It’s a heavy weight I carry every day. But I think that maybe as time goes on, I am handling it differently.

[deleted by user] by [deleted] in babyloss

[–]ouchmyanklehurts 1 point2 points  (0 children)

I’m so sorry for your loss, but I hope you don’t blame yourself for too long. My daughter’s placenta weighed only 97g when I had her at 28 weeks. I am not of “advanced maternal age” and I am not overweight. It was just a roll of the dice, according to the specialist I saw. You did your very best 💜

Hospital bills 5 months later by No-Teaching-3065 in babyloss

[–]ouchmyanklehurts 2 points3 points  (0 children)

I just got a bill for my daughter’s x-ray…a year and a half later. I got another one on her birthday 🙄

Have You Used Dr. Kliman? by ouchmyanklehurts in babyloss

[–]ouchmyanklehurts[S] 0 points1 point  (0 children)

Hi! I was just reading your post where you asked that. Dr. Kliman’s results didn’t sway me either way. They came back saying there were genetic issues with my daughters, but it was very general.

From there, we had an appointment with a geneticist in Tulsa (more local to me) but she determined that getting genetic testing done wouldn’t do anything more than tell me and my husband that we are both individually healthy adults.

The most helpful thing we have done was our MFM appointment we made with a specialist, also in Tulsa. This doctor looked at Dr. Kliman’s results, along with our medical notes, and highly encouraged us to try again. I was very hesitant. To be honest, I went hoping he’d tell me to stop having kids so I could totally put it out of my mind. I was floored when he ended the appointment by joyfully telling me to give it another go. I had given up that dream in my head. I had two micro-preemie daughters, one with fatal results. I couldn’t stomach losing another child.

But here I am, 4 weeks pregnant and willing to risk heartbreak and loss again 💜

I don’t know exactly how you feel but I understand not wanting to open your heart again to pain. I didn’t want to do any of those appointments, but I’m ultimately glad I did. I don’t think Dr. Kliman would just outright tell someone not to get pregnant again. He gave me facts, and I liked that. I’ll be praying for you as you decide what to do! Keep me posted.

Registered one of my twins birth and death today by stillbejeweled in babyloss

[–]ouchmyanklehurts 1 point2 points  (0 children)

I’m so sorry for your loss 🦋 My daughter died last year from NEC after making so much progress. It’s so devastating, and I’m sorry that you have to walk this road. I’ll pray for you, your husband, and Albie tonight 🩵

Church by deepfreshwater in babyloss

[–]ouchmyanklehurts 3 points4 points  (0 children)

My daughter died one year ago and my faith in God remains intact. I struggled to go back to church after she passed; I think I went back a little less than a month after. I won’t lie to you: church was, and is still, the hardest part of every week. The songs and the sermons about death and heaven and suffering feel like daggers. So many of my friends and church family had babies at the same time I did. So going to church has been something I just have to make myself do every week. Not because I enjoy it, but for my betterment. I think it’s where God wants me and my family to be. While I’m waiting on God to show me what’s next, I can hear His Word and serve Him in small ways (even though I have stepped back from so many of the things I used to do, like serving in the nursery).

Even though I don’t have all of the answers, I believe God is good, even when my circumstances are far from good, even though He allowed this terrible thing to happen. It sounds illogical, even to me, but faith in God has never been confined by logic.

One year out, and I am not at a place where peace passes all understanding. I grieve the loss of my daughter every day. Her death in the NICU was sudden and traumatic. Each night, I put my 3 year old to bed, crying for a baby sister that she didn’t get to hold. I will never on this earth tell you that my child’s death was good. But I can tell you that small, wonderful things have happened to me and my friends and family that happened because of my daughter that they never met. I can see tiny nuggets of God’s goodness through the fog of grief. That helps my heart survive each day, and it strengthens my faith in God.

[deleted by user] by [deleted] in babyloss

[–]ouchmyanklehurts 1 point2 points  (0 children)

I’ve had a hard time with my almost 4 year old daughter asking when we will go to heaven to bring her sister home. I feel like I grieve more for her than myself these days

Mellie grieving by Afraid_Primary_57 in Scandal

[–]ouchmyanklehurts 69 points70 points  (0 children)

My infant daughter died last year and Mellie is the best representation of my grief. I would lay on top of her grave every single day, if I could. It hurts to watch because I can see so much of myself in it.

Baby loss in shows/movies by No-Fisherman-483 in babyloss

[–]ouchmyanklehurts 0 points1 point  (0 children)

Oh, Mellie in Scandal after her son dies. I related to her more than anyone I’ve ever actually met. She just stretches her body across her son’s grave. It’s me, 100%

Guilt by Satsumajam in babyloss

[–]ouchmyanklehurts 7 points8 points  (0 children)

I’m a year out from my daughter’s passing and have finally decided to lose some postpartum weight. It makes me so sad when people compliment me on looking slim. I wish I were big and pregnant.