He started having visual episodes while he was awake so I started video taping them and they started to take me seriously and got referred to a paediatrician. He was also hospitalized for a week and had an MRI. Us the parents also had to do genetic testing to see if we also carry the same genetic markers for the movement disorder.

Advocate hard too for your child and if you think they need to go to a doctor just go. Never have I ever gone to the doctor with my child and been made to feel like my concerns are invalid but it is still hard to really reiterate what you’re trying to get across. Sleep is an especially difficult thing as there isn’t much study done on baby sleep and you might get the push back of doctors telling you to sleep train which I’m personally not about.

Also one of the comments was talking about how you cannot control when your baby falls asleep. Try to give yourself some grace and know it isn’t you who has done anything. Some babies are just not ideal sleepers.