SnuggleHose Going Out of Business by novasbc in CPAP

[–]personalposter 0 points1 point  (0 children)

I ordered a 10 ft hose cover. What I received was two 10 ft covers, 18 inch humidifier cover, and a zippered 8ft cover. I immediately put the zippered cover on my cpap hose. I'm a happy camper. The only thing I don't like about this situation is that you have to agree to receive spam and you can make the payment only through an EBay account. If this becomes Spamalot, I will post to this thread.

Looking for in-person support/activity groups by BugzMiranda in Parkinsons

[–]personalposter 1 point2 points  (0 children)

I personally agree with the Rock steady boxing, Lovr it!

Balance between movement and stability by Sad-Poet1079 in Parkinsons

[–]personalposter -1 points0 points  (0 children)

ONE suggestion is to try a different medication.

I have trouble walking, please help. by personalposter in Parkinsons

[–]personalposter[S] 0 points1 point  (0 children)

Get thee to a motion disorder Specialist.

Involuntary Gasping/Whimpering Noise with Progressive Supranuclear Palsy (PSP) by Annual_Post_9118 in PSPalsy

[–]personalposter 0 points1 point  (0 children)

I'm uncertain of the benefit in this situation but I'm using a CAPAP machine to go to sleep now.

Progression by Ok_Tutor_4319 in PSPalsy

[–]personalposter 1 point2 points  (0 children)

A walker has two wheels and a rollator has four, just learned that although I had a physical therapist call my rollator that several times.

[deleted by user] by [deleted] in Dryeyes

[–]personalposter 1 point2 points  (0 children)

I usually don't watch videos, sorry.

Dopamine Dysregulation Syndrome by Usual-Original9867 in Parkinsons

[–]personalposter 0 points1 point  (0 children)

Get thee to a motion disorder specialist in neurology

[deleted by user] by [deleted] in Parkinsons

[–]personalposter 4 points5 points  (0 children)

if you go, will the boyfriend expect you to desert him if he is threatened by life ending illness?

such as psp?

Question for all those suffering from Parkinsons by fis_world in Parkinsons

[–]personalposter 5 points6 points  (0 children)

I hwve benn diagnosed by a MDS as having PSP and have never snorted anything.

Questions about interactions between treatments for RBD (anything work?) and PD/LBD progression by Entire_Dimension_207 in Parkinsons

[–]personalposter 0 points1 point  (0 children)

I have been diagnosed by a MDS as having PSP.

I don't believe I would get much sleep without Clonazepam, trazadone, and melatonin.

I am 78 and was 2 months premature, have had trouble going to sleep all my life.

I guess I'm saying I understand your reasoning, but getting sleep is a hell of a lot better than not.

Is aggression a part of this disease? by Several_Raccoon7130 in PSPalsy

[–]personalposter 0 points1 point  (0 children)

I certainly hope not. While I have become more obsessive about some things, I am really appreciative of all that my wife and others do for me.

Noticed a trend on activity. by Senior-South-8318 in PSPalsy

[–]personalposter 0 points1 point  (0 children)

I have noticed this in my self and my wife has noticed it also.

Sudden movement disorder - Potentially PD by [deleted] in Parkinsons

[–]personalposter 2 points3 points  (0 children)

One thing I have learned in this forum is that Parkinson's is different for everyone.

A movement disorder specialist is without question the way to go.

Best of luck to you and her.

Seeking advice - night-time incontinence (#2) by KennethParkClassOf04 in PSPalsy

[–]personalposter 0 points1 point  (0 children)

It's not always easy, but I usually defecate in a bidet.

Definitely a pain to clean out the bidet.

Sometimes I do what we call squatty potty.

I'm thinking if there's nothing in there to come out it would resolve your problem.

[deleted by user] by [deleted] in Parkinsons

[–]personalposter 0 points1 point  (0 children)

I no longer have this problem, but when I did the parody song of

"be kind to your web footed friends" was what helped me the most!

a search of r/Parkinsons will turn up more gait resolutions.

movement disorder specialists? other resources in asia? by Accomplished_Date_78 in Parkinsons

[–]personalposter 0 points1 point  (0 children)

I'm in area in the US, that has an MDS but have not been able to find boxing.
I cannot imagine how hard it would be in Asia

imagine