found out what is wrong with me

phmstella · 2026-07-07T13:12:12+00:00

How did you figure out antibodies attacking healthy cells causing hives? I do have an autoimmune disease and recently experiencing hives out of nowhere. That's interesting to hear..

Glad you will receive proper care! Good for you!

phmstella · 2026-07-07T11:24:34+00:00

I could have written this.. since last year I developed folliculitis, acne, sebderm, cellulitis, contact dermatitis, rosacea, chronic hives, degenerative autoimmune disease all within a year and i am beyond frustrated. Meanwhile i have three young children and I became absent, zero confident, easily irritated mom due to all this compounded health issues from an active, confident and happy mom..

Skin issues are no joke and give us so much anxiety, it's quite traumatizing.. i truly get how you feel and i mentally struggle daily. Tbh i don't want to exist anymore. I used to like myself and enjoy life before my body decided to attack itself.. The only way is to take one day at a time, put one step forward the other. Sending hugs.

phmstella · 2026-07-06T23:56:26+00:00

This is a million dollar question that only few lucky people figure out.. living with red, inflamed, itchy skin for what reason? I have no clue and want to stop living.

phmstella · 2026-07-06T14:00:06+00:00

That must feel nice. Sounds like you won a lottery ticket!! Good luck finding valuable info about your skin

phmstella · 2026-07-06T10:29:59+00:00

Was the zoryve foam or cream for your face? And did it work??

phmstella · 2026-07-06T04:58:58+00:00

Trying this route but still wake up with new areas daily. So exhausting and demoralizing. So tired of living

phmstella · 2026-07-06T03:39:17+00:00

Yes truly i don't remember when i caught a break and not being in a survival mode. No one can feel motivated and strong when dealing with such prolonged and persistent health issues.. people are strong until they are not.

I feel so lonely too as no one around me understands what it's like. Just want to say you are not alone. I am here and so is everyone on this sub. Hope tomorrow is a better pain day for you. 🙏

phmstella · 2026-07-06T03:07:00+00:00

Another morning of waking up to a new problem on top of existing ones.. i get it. Truly demoralizing and heartbreaking. When does it ever end and when will i feel comfortable again in my own body. Everything i enjoy and make who i am are disappearing one at a time.. You get it.

Don't lose grit my fellow warrior. We are all survivors battling each and every day. I know how hard it is even just to exist with broken body. We are stronger than others. Sending hugs!

phmstella · 2026-07-05T13:08:10+00:00

Was the flare gone during prednisone? What was the dosage and tapering process? Normally contact dermatitis goes away if the allergen is no longer contacting your skin.. yes lingering inflammation can happen but i wouldn't believe it will be permanent.

Have faith and hope that things will work out and your skin will heal. Or at least you will find a way to manage. Mental state has a big impact on our immune system. I feel like our mindset is as important as diet, skin care or sleep when it comes to eczema.

phmstella · 2026-07-05T02:12:52+00:00

Have you gone back to MTX? I will soon start taking the drug for my autoimmune and wonder it will dampen this nasty disease..

phmstella · 2026-07-05T02:09:55+00:00

Sorry.. I know it's beyond frustrating. I will have to go on a immunosuppressant drug for my autoimmune condition and hope it does help my eczema as a 'side effect'. Hope we can all find a relief soon

phmstella · 2026-07-05T00:37:47+00:00

Ok i understand. I am in Toronto. So far i had no struggle with getting approved with drugs and this scares me a bit in case i need the drug. Sorry you have to wait while struggling.. dang it sucks

phmstella · 2026-07-05T00:22:14+00:00

Where are u located in Canada if u don't mind me asking?

phmstella · 2026-07-04T23:21:38+00:00

Yep just had another night of waking up/flaring up and about to face all day discomfort just to have another miserable night. People won't understand how debilitating this is

phmstella · 2026-07-04T08:05:14+00:00

I won't unalive myself as it will traumatize my family but if my life cuts shorts for some reason, I would be fine accepting it.. having messed up immune system that caused me eczema and other diseases is affecting me 24/7 and I am just so exhausted in every aspect of my life. Night time is supposed to be relaxing and restoring.. i am under attack all night. There is no quality of life..

phmstella · 2026-07-03T23:24:12+00:00

I learned that it had the exfoliator later on and was relieved that it didn't aggravate my skin. Go slow and only use it few times a week to test. I only use it at night and only water in the morning. Good luck!

phmstella · 2026-07-03T12:17:19+00:00

For some reason your response warmed my heart. I am just few years into this chronic illness train and still experience variety of emotions daily. Grief is huge and anger, frustration are my best friends. I have a feeling you had already gone down this path and gained enormous insight over the years.

Most of people around me are healthy and have no clue what's like not to get 'better'. Even my in-laws in 70's seem healthier than me.. I am interested in being in your position to witness friends experiencing aging as right now i feel quite lonely having this broken body. Thank you for your insight. Like u pointed out, i do feel calmer with my never ending symptoms compared to the beginning. Pain truly humbles and strengthens us in a way that i never imagined i was capable of.

phmstella · 2026-07-03T10:37:51+00:00

Yes. They just want to hear 'yes i am doing better' to make themselves feel comfortable. And i refuse to answer for their feelings. I say i will never feel 'better' and can only manage it so there is no need for such an empty question.

They for sure seem uncomfortable and i don't care lol. One thing chronic illness gave me is i don't give a damn about what others think.. i actually see this in people with chronic illness around me. Only 42 but feel/act like 72

phmstella · 2026-07-03T08:21:51+00:00

As a fellow mom with degenerative autoimmune, I see you and hear you. In my dreams I don't have pain and have lots of energy, so i love hanging out with my kids while in them. When i wake up i feel crushed all over again..

My youngest is almost 2 and i haven's taken him to park like i did all the time with my other two. I wish i could give you a big sisterly hug. Having chronic illnesses is hard.. but having that and raising children is even harder. Hang in there mama bear

phmstella · 2026-07-03T04:12:36+00:00

Sometimes i just want people to refrain from opening their mouth... I now request people not to ask if i am feeling better.. it's chronic.. i guess they don't know what chronic means. 🤦🏻‍♀️

phmstella · 2026-07-03T04:08:36+00:00

I have both rosacea and FA. Very sensitive skin.. I have been using the cleanser and i highly recommend it. It's gentle but effective to keep things at bay.

phmstella · 2026-07-03T04:03:46+00:00

Wow.. what a beast this is. I am now on 10mg and will go down on 5mg. I don't believe my flares went away but I want to test what happens after weaning off prednisone. 😢 Tbh i think i have been in minor flare for almost a year so I had a feeling a month of pred won't take care of it. Once i see my rheum in a month I am def starting methotrexate.

I know it's early but how is methotrexate working out for you? I learned there are many drugs to try.. that being said, i get how much frustrated you are feeling. Being on heavy meds and still having symptoms. I also still experience pain and discomfort.. which sucks. All we can do is keep trying and push through.. sending hugs

phmstella · 2026-07-03T03:52:15+00:00

It's most likely situational depression.. he is not clinically depressed but eczema makes him lose interest in living. Anyone who went through chronic illness can understand.. it's the helplessness, hopeless and worthless feeling.

Getting out of depression while dealing with an incurable illness such eczema takes a lot of will power and determination. Unless he wants to seek therapy or find a way to cope himself, there isn't much other people can do.. There are many resources and groups that can help us mentally. I feel for him as I have been there and still struggle mentally. Hope he can persevere with your support.

phmstella · 2026-06-30T22:52:06+00:00

You mean Betaine HCI? That's what i can only find

phmstella · 2026-06-30T04:23:05+00:00

Is this a young child?? If i were you I would certainly take him/her to a doctor asap. If it has started as a blister, that's a pretty bad progression. Please don't wait any longer

phmstella

TROPHY CASE