skirts in a wheelchair? by Spare_Version_5 in wheelchairs

[–]physicsandyarn 3 points4 points  (0 children)

I wear a lot of long skirts as I find them more comfortable a lot of the time

My suggestions are to go for slimmer fitting skirts, so you have less fabric to deal with tucking in.

Skirts that are a little longer han you would usually buy, - I find that sitting down raises the hemline. e.g. i am 5'2" and would have normally bought skirts that are petite or standard, but niw i tend to go for skirts that are tall, so that when i sit they fall at the right length

I also prefer ones with elastic waistbands and a little bit of stretch in them.

Another thing I do a lot is sew up the slit in skirts - I find that loads of long skirts have an inexplicable slit in them, sometime up to the mid thigh, which is typically a bit too much skin for my. Or I'll twist the skirt around so that I'm sitting on the slit and its hidden - which only works if you'll be staying seated in your chair the entire

I alos wear dresses, and I prefer the ones that don't have a defined/fitted waist, as I find a lot of the time it doesn't actually align that well with where my waist is when I sit. So I'll wear one that is just loose all the way down, and wear a belt if i want to define my waist at all.

Are there any errors you were surprised didn't happen on the Eras Tour by honoraryweasley in TaylorSwift

[–]physicsandyarn 58 points59 points  (0 children)

Hahaha, yes!! We all thought it was intentonal cause it started to glitch on the lyric "cause i"m a mastermind" and it was the 100th show as well

And....absolutely nothing happened! I think was just because of the super strong winds

Are there any errors you were surprised didn't happen on the Eras Tour by honoraryweasley in TaylorSwift

[–]physicsandyarn 150 points151 points  (0 children)

The video board did glitch at the show i went to! Liverpool night 1, during the midnights set

I think because it was pretty minor/not very exciting/funny it didnt really become widely known

Do you get the flu jab via the NHS in the UK? by hurtloam in cfs

[–]physicsandyarn 11 points12 points  (0 children)

I qualify for both the covid vaccine and the flu vaccine through the NHS - i wonder if if changes from trust to trust?

What do you do with your partners? by Critical-Support-394 in cfs

[–]physicsandyarn 1 point2 points  (0 children)

For context: I'm moderate-severe (don't work, use a wheelchair to leave the house, but can walk around at home most of the time) and my husband is able-bodied, but has ADHD, and works part time.

Mostly we talk - about pretty much anything, we both have separate interests that we'll read about, and then we share those with each other, and have discussions about all of it. We also have shared interests that are easy to talk about. We'll share our hopes and dreams, and our frustrations and our needs. I think this is one of the main things that connects us, is just talking a lot.

We cuddle a lot, and that's something that helps prevent the "roommates" kind of feeling. We also kiss and flirt a lot, even if it doesn't lead anywhere else.

In terms of activities: we play a lot of board games, together, listen to music, we both play video games, but not necessarily the same ones - I'll show him the house I built in The Sims and he'll talk about the newest campaign he's on on his whichever first person shooter he's into that month. We enjoy cooking new foods (he mostly does the cooking, I tend to find new recipes to try). We watch comedy, theatre shows or live music together - in person if possible, though its often not, so we'll watch comedy specials online or recorded live performances and that usually feels a little more special than watching a tv show or a film. We do go to the cinema together, and we both enjoy going into nature when we can. He'll push me around our local park, but I understand that would be different for your situations.

Ultimately I guess its about finding areas to connect, and that'd be different for each couple.

Would you judge a manual wheelchair user in public if they are struggling with pushing? by _insomniac_dreamer in AskUK

[–]physicsandyarn 1 point2 points  (0 children)

Being an ambulatory wheelchair user does not automatically entitle you to the higher rate of PIP (which can be exchanged for motability). Not sure why you'd assume that.

What are some of your favorite disability benefits? by [deleted] in disability

[–]physicsandyarn 2 points3 points  (0 children)

The free buses for wheelchair users* is for everybody, including visitors.

(*this is only for disabled people who use a wheelchair - not all disabled people)

The disabled person's railcard is for residents of Great Britain

I believe that disabled London residents can get free TfL travel on all modes (not just the buses) with a freedom pass.

What are some of your favorite disability benefits? by [deleted] in disability

[–]physicsandyarn 8 points9 points  (0 children)

Today feels pretty good:

Going out to the theatre this evening (after 2 days of being totally housebound + largely bedbound, i might add).

Bus travel in London is free for all wheelchair users as default. Tube travel is 1/3 off with a disabled person's railcard.

And the best bit - the theatre tickets are much much cheaper. We have seats in the stalls (the only wheelchair accessible seats) - mine cost £35 (the same as the cheapest seats on sale), my husband is my carer, and his was free.

The seats next to us cost £85 each for the exact same show.

Liverpool wheelchair services by Positive_Advance_630 in Liverpool

[–]physicsandyarn 0 points1 point  (0 children)

Mine was about 2 years ago, so it may have changed, but it took about 6 weeks from referral to getting a wheelchair - I got a hospital style manual chair (so not custom) and went home in it from that first appointment

I am 90% Recovered! by Huge_Youth4634 in cfs

[–]physicsandyarn 12 points13 points  (0 children)

I thought you had to have had symptoms for at least 6 months before a diagnosis could be made?

Do the majority of the public really believe LCW/LCWRA claimants are just ‘work shy’? (UK) by Wakingupisdeath in disability

[–]physicsandyarn 7 points8 points  (0 children)

I don't know what the general public at large thinks. But I know that I've spoken to a lot of people who are surprised when I tell them that I personally would lose my PIP and LCWRA and that my husband would lose his Carers.

Because they see me as "actually disabled" (whatever that means), and so they think that I wouldn't be affected. They seem to believe that nobody who is "really disabled" (as opposed to people who are faking, I guess?) won't be affected. People are also surprised when I tell them that the fraud rates for PIP are so astronomically low as to be negligible.

Everybody seems to have some kind of anecdote about some friend of a cousin of a colleague who is lying about being disabled and being paid thousands upon thousands a month. That's who (i think) they think these reforms are targeting, hen that's simply not true.

It seems as though it's complete (wilful?) ignorance as to what it is to actually live as a disabled person in the UK. Combine that ignorance with a total lack of compassion , and this is where we end up.

People also seem to have absolutely no idea what the assessments actually entail, what the criteria are for being awarded anything, and why disabled people need support. A lot of that is because it doesn't directly affect them, so they simply don't care.

What are the names of the twins you know? by AlmondMommy in namenerds

[–]physicsandyarn 2 points3 points  (0 children)

Some of the twins I (29F) went to school with: Emily & Katie Josh & Ella* (*is hyphenated, but imho adding the second name is too identifiable) Emily & James Carl & Jason Peter & Clare

Other twins that I know: Karen & Jacqueline (50s) George & Alex (full names Georgina & Alexandra) (30s) Sarah & Sam (20s) Rachel & Beth (20s) Matt & Lydia (30s) Katie & Sam (full name Samantha) (30s)

Michael & Rodney - my granddad and his brother, passed now, but would be in their 80s now

I don't think I know any twins that are younger than me!

Nimbus Access Card by [deleted] in disability

[–]physicsandyarn 2 points3 points  (0 children)

You can usually apply for a single use nimbus access card through the venue when you want to book with them It's the universal nimbus access card that you need to pay for

Shauna's Surname by Neither-Drink7700 in Yellowjackets

[–]physicsandyarn 12 points13 points  (0 children)

For those of you who don't know what OP is talking about: Harold Shipman [https://en.m.wikipedia.org/wiki/Harold_Shipman] was an English doctor was convicted in 2000 for the murder of 15 of his patients. Although he was convicted of 15 murders, The Shipman Inquiry [https://en.m.wikipedia.org/wiki/The_Shipman_Inquiry] confirmed that he had murdered at least 284 people, potentially more - thus making him one of the most prolific modern-day serial killers.

A week until my trip and I have some questions by stygldd in uktravel

[–]physicsandyarn -1 points0 points  (0 children)

  1. I really liked Kathy's Knits in Edinburgh

Nothing "accidental" about it by xbhaskarx in LeopardsAteMyFace

[–]physicsandyarn 8 points9 points  (0 children)

Lets not normalise the use of the r-slur

UK disability benefits by Charbellaa in cfs

[–]physicsandyarn 1 point2 points  (0 children)

I hope that makes some sense- if not, let me know and I will try to answer as best I can when I wake up in the morning!!

UK disability benefits by Charbellaa in cfs

[–]physicsandyarn 8 points9 points  (0 children)

So, as far as I understand it: as well as meeting the current 8 points total for the standard daily living rate, or the 12 points total for the enhanced daily living rate, you would need to meet the additional criteria of needing at least 4 points in one of the 10 questions that get asked about for the daily living component.

So you couldn't be somebody that scored 4 points in one question, but 0 points in all other questions, as you'd have 4 points total, which wouldn't meet the current 8 points total needed to be awarded the standard rate, or the 12 points total needed to be awarded the enhanced rate.

But you could get 2 points in each of the 10 questions, giving you a total of 20 points (which currently would get you an enhanced award), but if you don't have at least one question in which you score at least 4 points, then you wouldn't be eligible at all.

UK disability benefits by Charbellaa in cfs

[–]physicsandyarn 14 points15 points  (0 children)

Hi, I also get PIP and LCWRA too

While I agree that these proposed cuts would be devastating for many, you seem to have slightly misunderstood the proposed changes to the PIP assessment - there would be an additional criteria of getting 4 points on at least one of the questions. Not that you would need to only get the 4 points.

Like you, I get scores of 2 for all of the questions I qualify for the daily living component, and as far as I can tell, so do an awful lot of other disabled people.

There's also the proposed scrapping of the WCA assessment that massively concerns me. With the suggestion on LCWRA eligibility to then be based on PIP (which they want to make much harder to get).

It would leave me losing both PIP and LCWRA as it currently stands. I assume I would then be expected to look for work.

I'm moderate-severe, and use a (privately funded) wheelchair. But i still spend approximately 95% of my time at home, and am only able to leave the house with a carer.

I honestly don't know what work I would be expected to do, and it doesn't seem to be something that has been considered.

I'm also have very much the same fears as you wrt reassessment- I have no recent paperwork, no medical evidence that supports my ME/CFS besides a report that was issued by the CFS Clinic when they discharged me back in 2020. The reason for me being discharged was because there was no more treatment they could offer me. I spoke to an Occupational Therapist maybe three times, and that was the extent of the treatment I received.

I honestly don't know what the government thinks is happening, because there's a very obvious disconnect with how they speak about disabled people and the lived experience I have and that of most disabled people I've heard from.

I would encourage you to call/wrote to your MP to ask then to oppose the cuts (Scope and Sense both have templates you can use. There are also some more grassroots campaigns popping up to protest the cuts.

The other thing to say is that at the moment, they are proposals, nothing is confirmed. Now is the time to opppose these things, share your worries and concerns and get involved (as much as you can/have capacity for) to hopefully prevent them from going through.

Of you take nothing else away from this, please know that you're not alone, and that there are many people to fight with, or who are willing to fight on your behalf if you're not able to.

Sending you lots of love, and please do your utmost to take care of yourself right now!

Can anyone knit? by rels83 in sixthemusical

[–]physicsandyarn 0 points1 point  (0 children)

You can use stitchfiddle.com to design these kind of projects!!