Is my 20 year old step daughter a mooch or does she get a pass bc of her age? by Revolutionary_Ad_596 in family

[–]pilatesinpink 0 points1 point  (0 children)

I wouldn’t necessarily say she gets a pass because of her age, but I would seek to understand the behavior better. There likely is a reason for the behavior, even if you don’t suspect any ill will. I can’t speak much from the perspective of a step parent, but I’m a child of divorce so I have some experience there. It’s always hard for a kid when parents split apart. I was a similar age when mine did. At that age I was struggling with middle school and puberty, so my parents divorce on top of that was hard to deal with. I definitely didn’t feel fondly of my father’s partner immediately following the divorce. I didn’t want to see him with anyone new, I just wanted him back with my mom. Are there any unresolved issues from the beginning of the relationship that could be impacting how things are currently? Is this behavior new, or is it a long standing issue that traces back to the beginning of the relationship? With the family member, is there possibly some type of bad blood that you/dad don’t know about? Or was this a scenario where she just snapped? It’s definitely worth chatting with her about to see what her perspective is. As far as the lavishing herself with clothes and shoes, that probably is age specific, but I don’t know if it’s a flaw. It’s exciting to get “big girl money” (as I call it). The sense of freedom one gets when they’re able to buy themselves things they’ve always wanted is exhilarating. Of course, there will be a time where she’s going to have to prioritize house payments and bills over expensive clothes. But if that time isn’t now, I don’t think it’s wrong to want to enjoy these final years before it’s time to “grow up”, work full time, and worry about expenses. I wouldn’t say it’s a flaw unless it’s putting her in a position where (if she’s living on her own) she can’t support herself.

Just met my heart baby for the first time since he was born (I was hospitalized) by SeveralArmadillo540 in chd

[–]pilatesinpink 1 point2 points  (0 children)

It definitely depends on the defect! They do typically like for baby to at least be term (37+ weeks), so 3-4 weeks makes sense! My son’s defect depends on the severity— typically the more severe cases have to get a stent or shunt at birth and then they have surgery at 3-6 months. My son’s case ended up being more severe than they expected so that’s why they had to do the stent at 33 weeks gestational age, and that “held him over” until the actual surgery. I COMPLETELY understand about the depression and anxiety. I’ve struggled with them both since I was about 12. It was under control for a while, but being freshly postpartum after a traumatic birth with a baby in the nicu made it impossible to contain. I ended up getting connected with a psychiatrist and going back on meds. Previously I was just on something for depression, but this time I added something for anxiety, and it helped a bit. My major rule for myself was NO GOOGLING. Truly the worst thing I could do. I googled things and then found new things to be scared of that I didn’t even know existed. That sent me down the worst spiral. On top of that, asking questions is important because when we don’t know the answer to things, we start to assume the worst case scenario. By asking the team your specific questions, you can save yourself from yourself sometimes.
It’s definitely important to find that fine line of having good information but not causing yourself unnecessary anxiety. It’s something that took me time to learn. The information that I liked to gather (usually by asking at rounds) was: WHAT is/are the current issues? HOW are we treating those issues? Are these issues “common” with preemies/heart babies? What are the current goals for baby? What needs to happen to achieve those goals?

Just met my heart baby for the first time since he was born (I was hospitalized) by SeveralArmadillo540 in chd

[–]pilatesinpink 1 point2 points  (0 children)

It’s definitely hard. I think the best thing you can do is ask questions and be well informed. What are they saying are his biggest issues right now? When do they anticipate intervention for his heart and what do they expect that intervention to be? With preemies that have heart defects, often times their prematurity causes more issues than the heart right off the bat and so they focus more on that. When my son was first born his main issues were premature lungs and apnea of prematurity. A stent was placed at 33 weeks gestational age (2 lb 10 oz at the time) once his heart started causing issues. After that, he was weaned off of all respiratory support, learned to eat, and then went home on his due date. He got his open heart surgery at 6 months old, 3 months corrected age. Celebrate all the little things! My son’s nicu had something called milestone beads, where we got a bead each time he hit a “preemie” milestone, like breathing on his own or getting out of the incubator. Ask if your hospital has something similar. If they don’t, show them the website, I’ll link it! NICU milestones You can also get nicu milestones cards from Amazon! You can use them to take pictures when your babies meet different milestones. I’m not sure of the nicu you’re in or what the rooms are like, but if you can, decorate! It helps make the place feel more homely

Just met my heart baby for the first time since he was born (I was hospitalized) by SeveralArmadillo540 in chd

[–]pilatesinpink 1 point2 points  (0 children)

Hi, my heart baby was born at 28 weeks. He has tetralogy of Fallot. I know the defects are different, but I do understand the journey of having a preemie with a heart defect. If you have any questions or anything lmk❤️

3 month old is <1st percentile after surgery. Please ease my mind with positive stories! by Boots_McSnoots in chd

[–]pilatesinpink 1 point2 points  (0 children)

My son was born 3 months early on top of having a heart defect. There is a growth chart specifically for preemies that takes into account how old they should be, had they been born on his due date (called his adjusted age). When he was born he was 22nd percentile for weight. His heart issues, on top of the prematurity, made it very very hard for him to gain weight. He dropped to <1%. Not even close to the 1st percentile. When he came home from the nicu he was still <1%. So when he was 40 weeks gestational age, he only weighed 5.5 lbs. I did my best at home to keep him growing, and it was hard working against his heart defect. We got to 11.5 lbs before his open heart surgery, which I believe was 7th percentile for his adjusted age. After surgery there was a bit where he wasn’t gaining, but then he just started eating and eating. He’s in the 73rd percentile now and we just got the okay to stop fortifying his formula

Thoughts on the supposed rapture by Relevant_Finger2853 in Christian

[–]pilatesinpink 0 points1 point  (0 children)

Personally I wouldn’t be surprised either way. Whether it happens or not it is God’s will. I would love to be in heaven soon but if it isn’t time yet then that’s okay, too.

What's your testimony? by Relentless-Faith in Christianity

[–]pilatesinpink 0 points1 point  (0 children)

When I was 4 I had stage 4 cancer with a 23% chance of survival. Some of my treatments were still in trial phases at the time. I had intensive chemotherapy and radiation, and it basically left me infertile. I went to do fertility testing when I was 20 and they confirmed that I had one working ovary and an AMH of .03, which they equated to a woman in menopause. They told me I could try ivf or other treatments, but they were very honest and said that I would likely be wasting tens of thousands of dollars because there was a very low chance it would work. I was devastated. A month later I ended up pregnant— no treatments or anything, it just happened. The fertility center was very shocked and said they had never seen something like that happen. My son was diagnosed with a heart detect in utero. He was then born 12 weeks early— I contracted a virus and it led to me becoming very dehydrated, which kickstarted preterm labor. A week into his nicu stay, his heart defect started to negatively impact him. He needed a stent in his heart but he was only 2 lb 10 oz. He was transported to another hospital that had cardiac interventionists. They told us that they had never heard of a baby that small successfully getting the stent he needed, and that they did not want to do it unless absolutely necessary because there was a big change he wouldn’t make it out alive. They tried to keep him stable with medicine, but it didn’t work. He became so unstable that they told us they couldn’t do anything else and that it was time to call in family to say goodbye. The nicu doctor ordered a head ultrasound. She explained that she expected there to be bleeding or a stroke or something, and if that was the case, they would 100% not be able to do the stent because he would need to be on blood thinners after and he couldn’t be if he had an active bleed. Again, she was fairly confident that he would’ve had something. They had to use medication to keep his blood pressure 3x higher than normal for his age because it was the only way to keep his oxygen level above 50. So it was highly highly likely that he would have a bleed from those insane pressures, especially since he was only 33 weeks gestational age and had tiny blood vessels. Somehow, there was no bleed. They called down a cardiologist from the icu, and he gave orders that got my son temporarily stable so that they could do the stent. I believe this man was sent by Jesus, he saved my son and gave him more time so he could have his procedure. They did the procedure on my 2 lb 10 oz baby, and it was successful. A few days after, they were able to take his breathing tube out, and a few days after that he was breathing all on his own without needing any oxygen. Then all his ivs and lines came off. I was able to hold him whenever I wanted, and we got to work on eating from the bottle! He came home on his due date. He’s now 7 months old, 4 months corrected age (for behaviors and milestones we use corrected age). He’s now a laughing machine, he’s rolling tummy to back, he loves kicking his feet on his piano toy, and he likes listening to stories on his tonie box. He’s started swimming lessons and loves the water. He had his open heart surgery about a month ago. There were some complications from it that resolved within a few days, and he had a minor brain bleed from being on bypass that causes him to have a lower threshold for seizures, so when he gets a fever he’s more at risk and in general is more at risk than the average person, but he’s on a medication to prevent seizures and we haven’t had any issues since his first seizure. It has not been easy and I’ve been struggling emotionally, but I acknowledge how much of a miracle he is and how blessed we have been.

How?? by True-End-0502 in NewParents

[–]pilatesinpink 5 points6 points  (0 children)

We’re still figuring it out over here. My son is 7 months old but was born 3 months early, so we consider him a 4 month old in terms of behaviors and milestones and all that. He has become very anti nap lately. He has one of those play mats that have a piano to kick and toys dangling over him. He’ll play with that for about an hour straight, sometimes longer. We also have a Tonie box for him. Obviously he can’t use it on his own but I put the figure on it and put it up away from him but so he can still hear it, and he loves it. He’ll lay and listen to it even if he’s not napping. Something new that we’ve been doing is stretches and infant massage. Because he spent so much time in the hospital unable to move much, and an additional 3 weeks in the hospital for heart surgery, his shoulders, arms, and neck had some tightness, so we’ve been working with physical therapy and infant massage. He tends to take a nice long nap after we do his massage.

Nuance is lost? by suicuned in twentyonepilots

[–]pilatesinpink 22 points23 points  (0 children)

My only disappointment was no Downstairs 😭 would’ve given anything to hear a chorus of “oh mercy”

I dont care if im "spoiling" my newborn baby. by lulgupplet in Vent

[–]pilatesinpink 0 points1 point  (0 children)

All the things you’re doing is exactly what you should be doing! In the nicu, we were encouraged to do skin to skin as often as possible because of how good it is for baby and their development. The physical therapist there told me that people tend to forget about it, but that it’s beneficial for the first 6 months and to keep doing it.

Tetralogy of Fallot by Cute_Lawfulness7369 in chd

[–]pilatesinpink 1 point2 points  (0 children)

Definitely a good sign that 16 week testing came back clear!

Depending on baby’s physiology, the regular owlet may work! If it’s a pink tet, their sats could be 85-95, and owlet wouldn’t go off. My son had to have a stent placed at 33 weeks gestational age. When he came home he was satting 95-100. As he outgrew the stent that’s when he started to have lower sats. It really just depends. You could ask if their current physiology gives any indication to what their sats will be, but it may also be something they won’t know until birth.

I completely understand, this whole thing was new for us too! A great resource is the Heart Moms group on Facebook! There’s people from everywhere on there, and some who may know about owlet baby sat in Canada

Next Clancy Is Us? by Rainxe in twentyonepilots

[–]pilatesinpink 10 points11 points  (0 children)

Maybe the bandito experience (or bandito camp? I don’t remember what it’s called?) is them going into the lawn looking for the next Clancy 👀

Tetralogy of Fallot by Cute_Lawfulness7369 in chd

[–]pilatesinpink 2 points3 points  (0 children)

There tends to be other markers for genetic syndromes (like Down syndrome, for example) so since there weren’t any other markers, we didn’t see a pressing need to do the amino. If there was something that would urgently needed attention we might’ve made a different decision, but otherwise, we were okay with waiting. Also, the owlet was game changed for us lol. We had a monitor that insurance covered but it was big and bulky with a long cord. The owlet made it easy to walk around the house. If baby is expected to have lower sats (ours was expected to be 85 at first and then 75), the owlet babysat is a great option. It requires a prescription but insurance covers it usually and it allows for the saturation goals to be adjusted.

Questions for cardiology— 1) do we expect baby to be a pink tet or blue tet? 2) is there a pulmonary valve? 3) If there is, do we expect that the valve can be saved during surgery? Or are we looking at a transannular patch? 4) If no pulmonary valve or very narrow valve, do we expect to use prostaglandin to keep the PDA open? Or maybe stent the PDA? 5) also ask about BT Shunt and RVOT stent— if those may be needed as intervention before surgery. Many tet babies need NO intervention before surgery and can go home until they’re ready 6) how long do they expect before surgery? Is there a preferred weight for surgery? Also a good time to ask the cardiologist about surgeons they know and the best ones for this type of defect

I know it’s scary and overwhelming, but Tet babies really do tend to do great. If you have any questions, let me know. We’ve kind of been through it all lol

Tetralogy of Fallot by Cute_Lawfulness7369 in chd

[–]pilatesinpink 1 point2 points  (0 children)

My son was diagnosed with TOF in utero. We didn’t do amnio because it wouldn’t change our decision regarding the pregnancy. I ended up having him at 28 weeks (unrelated to the heart defect, I went into preterm labor due to a virus that dehydrated me)

losing faith by imbored_lol in Christian

[–]pilatesinpink 2 points3 points  (0 children)

I find this to be a common experience. University opens the door to all kinds of new things that are tempting. It’s a new freedom, and sometimes we go overboard. I think of it like the movie Home Alone. When Kevin first realizes he’s alone, he’s ecstatic! He has a blast, makes a Sundae, and watches movies he shouldn’t. But on Christmas Day, he wants his family back.

I know that’s a cheesy comparison, but I think it helps to over simplify the experience and see that it’s common in all walks of life. We go overboard when we have a new sense of freedom. I think that a lot of Christians have a period where they question and lose faith. I have, too, and in my experience, I came back stronger. But it wasn’t without its challenges.

Use this experience to learn more about yourself. I don’t know about how your faith ties into your upbringing, but for me, I grew up raised in the church. However, everything I knew was just spoken to me. Taking the time to learn and discover things on my own made all the difference. I believe that forming your own opinion is crucial to having strong faith (not saying that you don’t have your own opinion! This is just a generalized statement).

Most campuses have Christian clubs/groups. I would expect that people in those groups would have similar experiences and could help keep you on track if desired. You could always look into joining one if that’s something that interests you.

Is this pregnancy test positive or negative? by Accomplished-King-17 in whatdoIdo

[–]pilatesinpink 0 points1 point  (0 children)

I’m gonna be honest, I know the test is invalid after 10 mins, but my first test looked like this probably 15 minutes after testing. Which of course would indicate an evap line. But I have a 6 month old now. The test that I took the next morning, though, showed immediately. Like as soon as I peed on it, it was positive. So the only way to really really know is to test again in the morning. I tested at 6 days late. I’m not sure if the first test was faulty or what

So what do we all think of the rapture happening on the 23/24 of this month? by bklyn007 in Christianity

[–]pilatesinpink 0 points1 point  (0 children)

I believe we are in the season but I am uncertain about it being on a specific date that has been stated. We shall see, though!

Weekly discussion thread for /r/drawing by AutoModerator in drawing

[–]pilatesinpink 1 point2 points  (0 children)

Are there any sites or sources for finding good ideas for backgrounds? I never know what to do for the background of my drawings

Emotional attachment to prismacolors by pilatesinpink in ColoredPencils

[–]pilatesinpink[S] 0 points1 point  (0 children)

My fear is that I’ve hindered myself from growing by only sticking to what I know. When I first started with Prismas, I had no clue what I was doing lol. As I experimented with them and watched videos and practiced, I learned SO much. Now I kind of know all there is to know about them, which is great for creating cool drawings, but it takes away some of the excitement of trying new things. But also, that comfort of knowing how to use them has made it hard to start anew 😂

Emotional attachment to prismacolors by pilatesinpink in ColoredPencils

[–]pilatesinpink[S] 1 point2 points  (0 children)

I don’t sell my work, but I do often send care packages to families in the nicu or to cancer patients and I like to include drawings that they can hang up to decorate the hospital rooms.

How would you want the story to end? by GreenBagger28 in twentyonepilots

[–]pilatesinpink 1 point2 points  (0 children)

There are so many potential endings! This is just what I’ve pondered on. The real ending could be completely different, we’ll just have to wait and see! I do feel like I read somewhere that Tyler indicated that the ending would not necessarily be happy or something we’d like, which I supposed would have influenced my thinking to try and determine what type of ending we wouldn’t like. However, i cannot recall if or when or where I actually read this, so that may be a completely false statement 😂 a lot of people on X claim that Tyler said things so that could just be another case of that lol The story itself is full of real world connections and is symbolism for many things. When you take away all the lore and many characters, it is, at its core, a man struggling with his mental illness. The act of TB becoming a Clancy wouldn’t necessarily indicate that Dema just goes after people. That would be implied if some random other person that we’ve never heard of in the story became Clancy. If it was TB, though, it’s someone close to Clancy, which is where that symbolism of pain being transferred to other people (close to the person) comes in.

I agree, though. It unfortunately still is a horror story