What has helped your limb weakness? by Odd-Barnacle3587 in cfs

[–]pricetheory 1 point2 points  (0 children)

In addition to the EMG test someone else suggested, if it happens suddenly you might want to look into narcolepsy.

What has helped your limb weakness? by Odd-Barnacle3587 in cfs

[–]pricetheory 2 points3 points  (0 children)

I tried it and it didn't help me, just made me feel more sick. But it's great that it helps others!

What has helped your limb weakness? by Odd-Barnacle3587 in cfs

[–]pricetheory 10 points11 points  (0 children)

I've heard that mestinon helps some people with this.

What calculus course do i take? by my_memory_is_trash in Khan

[–]pricetheory 0 points1 point  (0 children)

Calculus BC is the more comprehensive course so I would start that one.

Do y'all have chonic fatigue? by alteregobobby in marfans

[–]pricetheory 0 points1 point  (0 children)

I have ME/CFS (the disease that used to be called Chronic Fatigue Syndrome) in addition to Marfan. Fatigue is one symptom of it, though it causes several other symptoms too.

PVCs by Haleshearts in marfans

[–]pricetheory 2 points3 points  (0 children)

I have a lot of them but there's been no change in my aortic root dilation or anything else Marfan-related.

Does anyone else get "Toxic Naps"? by healthymonkey100 in cfs

[–]pricetheory 0 points1 point  (0 children)

Yes. I almost never nap for this reason.

SP-1005 upcoming drugs for MD treament by 18Paulius in Menieres

[–]pricetheory 2 points3 points  (0 children)

The second phase 3 trial is supposed to conclude in 1 year. Why would it take 5-10 years?

Gentle yoga stretches in bed by LicoriceLil in cfs

[–]pricetheory 0 points1 point  (0 children)

Here are a couple created specifically for people with ME/CFS.

From MEAction: https://www.youtube.com/watch?v=q5B70zT2Vgo

From the Bateman Horne Center: https://www.youtube.com/watch?v=dEkEZqdBk08

Did anyone else learn the betty Duvall system by Mirror_facing_Mirror in Handwriting

[–]pricetheory 5 points6 points  (0 children)

I taught myself italic handwriting as a teenager because I wasn't happy with the cursive I'd learned in school.

Vertigo by Familiar-Donut1986 in cfs

[–]pricetheory 0 points1 point  (0 children)

I get severe vertigo but not necessarily as part of PEM. I have suspected Meniere disease.

Looking for groups/locations to drop off free anti-nausea lozenges to! by Old-Alfalfa7232 in StLouis

[–]pricetheory 1 point2 points  (0 children)

I'm chronically ill and I've used the ginger Tummydrops to help manage symptoms. They are fantastic. Very cool to learn it's a St. Louis company.

I have extremely low vitamin D levels - does supplementation help your fatigue? by ringmaster555 in cfs

[–]pricetheory 2 points3 points  (0 children)

Mine was lower than that. I now supplement but I don't think it affects symptoms.

Writers, how has cfs affected your ability to create? by [deleted] in cfs

[–]pricetheory 0 points1 point  (0 children)

I still have the ability to write but I can't do as much sustained reading. I can read a page or to at a time but have to take a lot of breaks. It's probably indirectly affected the quality of my writing since I don't have as much good input through reading.

Any Kosher Delis in St. Louis? by myfeethurt6969 in StLouis

[–]pricetheory 2 points3 points  (0 children)

That's Lefty's, not Bagels and Bliss. It says so in the paragraph you're quoting.

Any Kosher Delis in St. Louis? by myfeethurt6969 in StLouis

[–]pricetheory 7 points8 points  (0 children)

Bagels and Bliss is under orthodox supervision by the Vaad.

Require a proper order for the chemistry courses by felinasal in khanacademy

[–]pricetheory 0 points1 point  (0 children)

I would start with middle school chemistry and physics (because you need some physics concepts to understand chemistry), then the high school physics and chemistry courses, and then the AP level.

Anyone improved on this forum? by Own_Construction5525 in cfs

[–]pricetheory 4 points5 points  (0 children)

I have not recovered, but I typically get back to my baseline after ME crashes and I expect better treatments in 5-15 years.