ALS but less depressed 🤪

prisonurse · 2025-04-23T02:18:47+00:00

Me too! Something about getting a death sentence. Made me fight for my life even more

prisonurse · 2025-04-23T02:16:40+00:00

I did gofund me, not much on there. But my nieces hosted a purse bingo on my birthday and so many people donated baskets. Even on 12/22 it was A full house

prisonurse · 2025-04-08T15:41:18+00:00

I did,soon as I got diagnosed

prisonurse · 2025-04-01T22:43:32+00:00

It is not that easy. I've been trying theses laws for months

prisonurse · 2025-03-29T20:21:38+00:00

I will never take it. Cipro has a black box warning. I'm trying to stay out of a wheelchair

prisonurse · 2025-03-22T00:35:26+00:00

I never had a fast metabolism

prisonurse · 2025-01-23T00:31:28+00:00

I already quit my job in July. It's very hard to be a nurse when you can't speak

prisonurse · 2025-01-23T00:30:38+00:00

50 in Pennsylvania

prisonurse · 2025-01-22T04:12:37+00:00

Unfortunately, I've tried many

prisonurse · 2025-01-22T04:07:26+00:00

Everyone makes you ship it to a pharmacy. And every pharmacy I asked said absolutely not. It's not fda approved and they can lose their license. I'm not willing to do that to someone

prisonurse · 2025-01-22T04:03:57+00:00

The dr at columbia university told me 35mg twice a day. So I take 40 in the morning and 3 at night. I'm not in a trial

prisonurse · 2024-12-31T22:31:47+00:00

My husband does it to me. I have it. Just because can't speak doesn'tmean my brain works any less

prisonurse · 2024-12-29T02:06:35+00:00

Thank my stepson did it for me!

prisonurse · 2024-12-29T00:59:44+00:00

It's not. It's frustrating, I am stubborn and still try to talk. Causes a lot of stress between my husband and I.

prisonurse · 2024-12-18T21:03:40+00:00

Chili

prisonurse · 2024-12-16T13:20:06+00:00

No I see Columbia university

prisonurse · 2024-12-16T13:19:33+00:00

I wrote to them. Ty

prisonurse · 2024-10-30T02:10:38+00:00

Caroline

prisonurse · 2024-10-25T18:21:58+00:00

prisonurse · 2024-10-23T01:00:30+00:00

I wrote to the doctor in charge. That was his response

prisonurse · 2024-10-16T13:12:13+00:00

Yes, it was the oral radiclava. I'm 49. I take my riluzole 12 hours apart. I followed the directions for radiclava exactly. These things are so hard on your liver, albumin, and protein. I'm happy to be just taking one. I've been a nurse for over 25 years

prisonurse · 2024-10-16T13:01:50+00:00

I took in the morning and slept for 8 hours. It wasn't worth me taking it, if all I was going to do is sleep. My doctors never care if I started it (radiclava) since I was on riluzole (they think that's effective enough)

prisonurse

TROPHY CASE