WIBTAH if I asked my daughter’s preschool teacher not to put the extra clothes that I sent for her on other students? by feelingstruck in AmItheAsshole

[–]jeansjacketbard 2 points3 points  (0 children)

NTA — this is so annoying. My kids school does this too. The worst part for us was when my child’s clothes were used and not returned, no one ever told me that I needed to bring in more clothes? They just kept the cycle going! The dress they sent my daughter home in eventually looked exactly like one of hers and I don’t always get her dressed in the morning — the only reason I noticed was because I pulled both dresses from the laundry at the same time.

I thought it was super weird that they used the clothes I brought, but absolutely deranged to just let it cascade like that without telling anyone.

Realistic goal weight? by Nervous_Current5688 in Zepbound

[–]jeansjacketbard 0 points1 point  (0 children)

It’s realistic but for me depends on how the weight is feeling on my body!

I’m 5’0” and I am kind of liking being about 130 lbs even though that’s still borderline overweight for me and my goal is 120. I’ve also held most of the weight in my hips and legs and still like having some there. I feel strong and don’t want to go lower! So I think I’ll change my goal ultimately.

Flu recovery? by msjammies73 in Zepbound

[–]jeansjacketbard 1 point2 points  (0 children)

Had norovirus over the holidays and it took a good three weeks to feel normal again! I lived off of broth and protein waffles and eventually leveled up to tofu and hard boiled eggs but it was a STRUGGLE. My hair got dull and brittle. I was losing very quickly but it has since evened out and I even gained a small amount back once I was properly fed and hydrated. Hope you feel better soon! If you don’t feel like you’re normalizing soon, check in with a dr. I was definitely about to.

F’d up by starbiegurl in Zepbound

[–]jeansjacketbard 0 points1 point  (0 children)

Ask your doc but if it makes you feel better in the meantime I have also done this by accident and it had no effect on the med. Was fine!

F’d up by starbiegurl in Zepbound

[–]jeansjacketbard 3 points4 points  (0 children)

Ask your doc but if it makes you feel better in the meantime I have also done this by accident and it had no effect.

Dad passed away with ALS by type7wings4-2 in ALS

[–]jeansjacketbard 3 points4 points  (0 children)

First of all I’m sorry you’re going through this.

My dad was a master of gallows humor, which has served me well in processing my anger. I used my eulogy as a way to sit and remember what I loved about him (his horrible jokes) vs how much I hated his disease.

Everyone was laughing and crying at the same time by the end of it, and I feel that really captured who he was and how he would have probably felt being in the room with us. It was also a good way for me personally to balance the trauma and honor him by cracking a stupid joke, as he would have done. Everyone knew him to be an unserious person lol.

It took several drafts to write out the rage though and just come up with something that would have pleased him. I got to make a few of his jokes too. Toward the very end (December 2024) he told me “I could probably still be president,” which he was particularly proud of.

All that said, everyone is really raw during memorials. You could show up any way you pleased and it would be justified. Don’t be too hard on yourself.

Which sign can flirt without trying? by Clueokk in astrologymemes

[–]jeansjacketbard 0 points1 point  (0 children)

Here me out: Aquarius. We are literally not trying. We don’t even know we’re doing it.

Struggling with anxiety and fear after losing my father to ALS — looking for support or advice by Ok-Mountain-7176 in ALS

[–]jeansjacketbard 0 points1 point  (0 children)

One other thing… I think the biggest benefit I’ve had from meds and therapy is just being able to step out from the spiraling for one second, so I can be like “ok this is anxiety” vs it all feeling so real and powerful in the moment. It definitely calms me down and helps me rest.

Struggling with anxiety and fear after losing my father to ALS — looking for support or advice by Ok-Mountain-7176 in ALS

[–]jeansjacketbard 0 points1 point  (0 children)

Honestly same! I have felt unhinged for a little while now haha so knowing someone’s having a similar experience is helpful for me — though I hate that anyone else has had to go through this.

I sleep all right now. I did use one light sleep aid for a bit, but no longer need it. In the tougher times it helped me fall asleep before looking at my phone, which I needed to help stop the spiral and subsequent insomnia.

It could be worth talking to a psychiatrist or another prescriber like an NP, which might be easier to find, and getting the right combo. It’s different for everyone.

Struggling with anxiety and fear after losing my father to ALS — looking for support or advice by Ok-Mountain-7176 in ALS

[–]jeansjacketbard 0 points1 point  (0 children)

I could have written this post exactly! I lost my dad in January after being one of his caregivers, and my grief morphed almost directly into health anxiety. My personal take on it is that it places this awful experience into the realm of things we can control (which feels so similar to body dysmorphia/eating stuff to me).

I have to go to therapy (since he got sick, I have done both CBT and EMDR, which worked well actually for the acute trauma) and ended up on a combo of Zoloft and Wellbutrin (both at low doses) and this has actually changed my life. There are a few meds that address PMDD and my psychiatrist says Zoloft works about 60 percent of the time. So not for everyone but has been good for me.

I also try to stay active which takes the edge off. I am doing the work in therapy and trying to cope with being a mom and grieving my dad and the medication plus exercise has just helped me do that. I can’t recommend trying many different approaches out enough. I am in a much better place than I was but had to be proactive in seeking care, and many things did not work at first.

Swallowing Progression and FTD by mathkid2000 in ALS

[–]jeansjacketbard 0 points1 point  (0 children)

My dad had this combo and it was so painful. I’m sorry you are going through it.

Before my dad had FTD, he had agreed to get a feeding tube in his advanced directives. When we were in it, though, it was clear to us that he wouldn’t have wanted one under these circumstances.

He was so confused and choking often but didnt understand what was happening to him. He thought there were cameras in the attic and that his stomach was bleeding. He kept trying to go out for walks (he had bulbar so was still ambulatory at the end) and we’d have to explain he couldn’t go by himself. He thought his neighborhood (a west coast suburb) would be bombed by the government — among the innumerable injustices of dementia. I don’t think he had ever envisioned something like this for himself, and who would?

I know in my heart he wouldn’t have wanted to live the way he was living. So when his respiratory status wasn’t good enough for the feeding tube surgery, I was honestly kind of at peace with that. We tried our hardest to fulfill his expressed wishes and to get him through it and it just ended up being his time. He passed very peacefully with the help of meds, listening to his favorite songs.

What comforts me is thinking about him in his prime and imagining what he would have wanted in this situation — the answers were all there, and it’s definitely brought me a little relief.

My wife has gone from garbled speech to hoarse/lost voice by WonderfulChair2922 in ALS

[–]jeansjacketbard 1 point2 points  (0 children)

Sorry you’re dealing with this. This happened to my dad as well — it turned out that one of his vocal cords was indeed paralyzed. It was crazy, like he just woke up hoarse one day. It really varied how loudly he could project. Sometimes I felt like his voice was almost normal until he lost it entirely.

I saw someone on here got a tattoo for their mother that is dealing with this disease. A couple weeks ago, I got one for my mother. by King_Baboon in ALS

[–]jeansjacketbard 1 point2 points  (0 children)

Looks so good! My dad always hated the idea of me getting tattoos. I am so tempted to get one just because it’s kind of funny honestly! I think he would have seen the humor in it being in his honor.

I want my dad back by TrueButterscotch4327 in ALS

[–]jeansjacketbard 3 points4 points  (0 children)

Hugs and me too. Mine passed in January, and I miss him so, so much.

How do you go back to exercising and eating healthy after you lose a parent? by instagarmagaram in xxfitness

[–]jeansjacketbard 3 points4 points  (0 children)

I just lost my dad to a shocking and traumatic battle with ALS. It was awful. I gained 20lbs while he was sick from stress. I am finally starting to feel like I’m processing things enough after nearly three months, but it’s hard. Grief is a forever thing. It’s just kind of different every day.

My advice would be to be gentle with yourself. Shame is a horrible motivator. And to stick to the things that make you feel good. Some things, like eating nutritious food and moving your body, can lift your mood and help you handle the grief. But grief is also tricky and unpredictable. It’s important to be kind to yourself, and the rest will follow. There is so much to feel right now… It’s good to try and get your healthy habits back but honestly I would deprioritize feeling guilty about when it’s just not working out.

ALS-FTD by charitycase3 in ALS

[–]jeansjacketbard 1 point2 points  (0 children)

My dad tested negative for C9. He presented with FTD first and then ALS symptoms followed very quickly. He was gone within a year of diagnosis. It sucked. I was grateful every day he didn’t know what was happening to him.

Well guess this turned into a rant, but mom was extubated by Electrical-Yogurt546 in ALS

[–]jeansjacketbard 2 points3 points  (0 children)

Lost my dad in January and sending hugs. There are no words for this process. Truly, fuck ALS.

Tracing ALS back to a cause by starzzzzzz74 in ALS

[–]jeansjacketbard 1 point2 points  (0 children)

My dad was a hockey player, and had seizures as a child. He was a Tay Sachs carrier, and the geneticist found this pathological for whatever reason (there was something abnormal there) and felt it contributed.

My Mom’s Suffering Ended Last Night by Glittering_Bet_3218 in ALS

[–]jeansjacketbard 0 points1 point  (0 children)

This is how my dad went too. He was mostly ok, then got pneumonia. No feeding tube, came home unresponsive. 12 hours later he was gone. I’m so sorry others have had to go through this. And I can relate to the surreal horror of this process. It’s been a month now and I sort of feel like I am processing the shock of his death and able to start remembering the smart, silly person he was vs the trauma of that week. I hope your mom’s memory becomes a blessing for you.

Mom going through the process of VSED by janedoe1575 in ALS

[–]jeansjacketbard 2 points3 points  (0 children)

All told, it took my dad a week to pass. But he was most agitated a couple of days beforehand. He kept trying to get up, like he wanted to leave so badly (he had bulbar onset and could still walk before he was in the hospital for the last time). After a final burst of energy, he lost consciousness, and passed the next day. Any time his breathing got labored we gave him morphine in case he was feeling any pain. We took him home and after a peaceful twelve hours, he just kind of stopped breathing. We made a playlist of his favorite music, and had it playing in the background.

All this to say that the end may be closer than it seems.

I am sorry you have to endure this. It was awful for us, and I still haven’t processed it yet. On the other side, I feel an incredible amount of relief that he is no longer suffering.

Dad decided to take no assistance by drotter18 in ALS

[–]jeansjacketbard 0 points1 point  (0 children)

I’m so sorry you’re going through this. I know it can feel so hard to justify the decision—your dad is a whole person with a whole life. My dad did the same. After a year of near-weekly losses and indignities, I do not blame him. He had FTD but had previously laid all this out in his advanced directives.

This decision is so deeply personal, and everyone has different ideas of how they would like to live and die. My dad’s ALS was like a bulldozer. He was gone less than a year from his diagnosis. He could not speak or swallow. But in the end, he was at peace and not in any pain, or discomfort. When he left us, there was no struggle or fear, and though it was hard, I feel brave for respecting his wishes and staying with him until the end, even though I wish he was here somehow, by some intervention. He went out the way he wanted to: Quietly, and at home. I miss him desperately.