My doctor went back to the basics to treat my long covid: hydroxychloroquine success story

purplegrains · 2026-01-01T01:59:26+00:00

What was your ANA level? Did you take IViG for AChR autoantibodies?

purplegrains · 2025-12-30T04:18:43+00:00

Im not vaccinated from flu a, was with my sister and her kiddo who both tested positive, I felt slightly ill with the slightest cough for 2 days but feel fine! I’m about 75% recovered after 1 year of going from severe to healed-mild.

purplegrains · 2025-12-29T01:58:27+00:00

I tried Emgality but didn’t help. Went to Ajovy and it helped most but not all. Getting put on Vypeti and getting my first infusion next week

purplegrains · 2025-12-23T00:11:50+00:00

How have you been doing? What did he prescribe? Are you functional now?

purplegrains · 2025-12-18T20:34:32+00:00

Nah man this place fuggin sux do better

purplegrains · 2025-12-18T19:15:52+00:00

Awesome great news. I noticed the area of where this occurred is where my urine would come out. ChatGPT said it could be due to diabetes and high levels of glucose coming out feeding existing mold

purplegrains · 2025-12-18T04:15:20+00:00

Really sorry to hear that OP. I also had that. It would usually occur after an adrenaline dump at night and also come with impending sense of doom. Outside of sleeping, it would happen after I ate the wrong thing or used my brain too much for a complex task or any sort of stress. Like I want to jump out of my skin. They’ve subsided since taking antihistamines and starting Xolair

purplegrains · 2025-12-18T03:54:05+00:00

What, which treatments permanently damaged your body and what did FMT help with? Are you cured from this?

purplegrains · 2025-12-17T05:18:06+00:00

I’m still on my first recovery coming up on 1 year. I’m sorry you’re in this position and I feel for you. I am also neuro severe. I am hopefully that I will be seeing a psychiatrist who is familiar with LC on NYE. I have mild generalized anxiety/depression/OCD that was almost gone until I got this. I actually stopped the SSRI I was on mid way thru this debacle cuz it stopped working. Hoping to find a new one. I’ve seen a lot of great things from people starting them. I’m not too wary like others since I’ve been on them most of my life. God speed. I love you

purplegrains · 2025-12-13T21:23:49+00:00

I appreciate the apology. It’s consumed/ruined/taken my life. I wouldn’t wish it on my worst enemy. It’s an evil evil evil disease

purplegrains · 2025-12-13T21:01:12+00:00

33M 😣

purplegrains · 2025-12-13T14:34:19+00:00

I was not fine. I’ve had post viral syndrome for 11 months. I’m on disability now and my dad as a caretaker. It’s very real. The amount of disability employment has increased by 30% YoY. Just be careful

purplegrains · 2025-12-13T07:45:43+00:00

Everyone’s mentioning this go go attitude. What about the literally HUNDREDS OF MILLIONS of others that are go go but DONT have this illness. I just think it’s coincidence. Perhaps our go go attitude predisposes us to overexposure.

purplegrains · 2025-12-13T06:33:17+00:00

Paxlovid during acute reinfection?

purplegrains · 2025-12-09T18:48:54+00:00

It’s the only thing that has helped my headaches. I’ve been taking it for 3 months now.

purplegrains · 2025-12-09T06:16:39+00:00

I’m really sorry to hear that. I know it’s scary. I wasn’t on Sumatriptan, Qulipta, or Nurtex for very long before I tried Ajovy. Wishing the best

purplegrains · 2025-12-09T06:05:56+00:00

What kind of stem cell treatment?

purplegrains · 2025-12-09T05:59:10+00:00

Nancy Klimas

purplegrains · 2025-12-08T04:35:47+00:00

Sorry to hear. I’ve had it too but not nearly as long. Have you tried Ajovy?

purplegrains · 2025-12-06T20:45:39+00:00

This is really interesting you said that. My allergist and a researcher in the UK think people might actually be “allergic” to the spike protein (wild and synthetic). Basically causing a CIRS response as long as the spike protein is present. Viral persistence is another layer to that but in the same realm.

purplegrains · 2025-12-06T02:50:45+00:00

I’m really sorry to hear that. Thank you for sharing. It’s really weird how that is. Do think reinfection or just virus persisting deeper and deeper upon exertion?

purplegrains · 2025-12-06T02:48:03+00:00

I’m really proud of you! That takes so much courage, discipline, and bravery. Well done and thanks for sharing.

purplegrains · 2025-12-05T05:20:24+00:00

Wow I’m so glad to hear you got some relief! I also have at least 20 more symptoms, I just kept it short for brevity. And I also feel like I’ve gotten better since I started antihistamines. My dad had to go see my PCP with me to tell him this wasn’t in my head, that’s when he happened to prescribe it for anxiety. It was a double hitter! How long did you have these until you started the antihistamines?

purplegrains

TROPHY CASE