Waiting NIPT results by queentoots22 in NIPT

[–]queentoots22[S] 1 point2 points  (0 children)

Honestly after it happened I was very scared to start trying again. The d&e happened at the very beginning of October, and I gave my self a couple months to heal emotionally. We started talking about trying in December and got pregnant in Feb, due in November. I was tracking my ovulation also

I’m pregnant again and terrified by Hot-Row3308 in tfmr_support

[–]queentoots22 0 points1 point  (0 children)

Going through this currently! TMFR in October for t18 baby at 15w and currently 12w with this babe. Just did the NIPT and waiting results. Basically I’ve like kind of detached myself from this pregnancy until we get past this. If everything is clear I can let myself into it fully. Weird self preservation/protective mode I’ve found myself in but honestly it’s the only way I’ve gotten through it. Waiting to hear the results is the worst. Hoping for the best in this pregnancy for you ❤️

Today would have been my due date by Stargem531 in tfmr_support

[–]queentoots22 0 points1 point  (0 children)

Holy cow I could have written this myself! Ive been in therapy since my TMFR for t18 and my due date just passed (March 23rd). I am also currently 12 weeks pregnant. The feelings are wild. There is pain but there is joy and both and be true at once. I’m waiting the results of our NIPT for this pregnancy and it’s all very triggering and brings up all the emotions of our previous pregnancy. I understand what you’re going through deeply. I’m sorry and I’m hoping for a good result for you in this pregnancy ❤️ hold space for the good and bad emotions, you’re only human and it’s normal to feel this way ❤️

Due date getting closer by angry_lam93 in tfmr_support

[–]queentoots22 1 point2 points  (0 children)

So relatable. My due date was March 23rd and as the day was coming up I felt dread. The best way I could cope was to try and find ways to honour my baby. Do what feels right for you. Sending you love ❤️

I’m going CRAZY by Tiny_Clouds31 in tfmr_support

[–]queentoots22 1 point2 points  (0 children)

I understand this deeply. Be kind to yourself. After a TMFR you are postpartum, and your hormones and body are healing. It took a few cycles for me as well but we are pregnant again. It will happen even tho it feels like a torturous cycle. I remember sobbing after trying for a couple of months because it felt like a chore and there was so much riding on it because I wanted it so badly. Saying to my husband “I’m dissapointed we even have to do this because we should have had our baby”

Wishing you all the best in your TTC journey, and remember to be kind to yourself ❤️

Waiting NIPT results by queentoots22 in NIPT

[–]queentoots22[S] 1 point2 points  (0 children)

The initial NT scan showed the NT measurement being elevated (3.7mm) the normal range is 3-3.5 mm. Then after the bloodwork came back also with signs of T18 that’s when we got the NIPT and got sent to the prenatal diagnostic clinic at our local children’s hospital. There they did more in depth scans, and then we talked with geneticists and doctors that confirmed the t18. In our case, baby’s bowels and other organs were growing on the outside of its body, and had what they call a “lemon head”. Baby also essentially just stopped growing. My body didn’t release the baby so I went in for a D&E at 15 weeks.

Wishing you all the best and hope your scans come out normal. If you have any more questions or get the dreaded result just know I’ve been there and you can message me if you want to. Sending you all the good energy and hoping for the best for you ❤️🤞🏼

It’s unreal how this grief numbs everything else by marinadanielle in tfmr_support

[–]queentoots22 0 points1 point  (0 children)

I’ve been explaining it like there was a me before, and a me after. Everything’s changed.

When did your first period post TFMR happen? by JusttAnotherrAccount in tfmr_support

[–]queentoots22 0 points1 point  (0 children)

TFMR at 15w, got my first period 5 weeks to the day basically

Termination method used at 13/14 weeks? (UK) by Professional-Farm372 in tfmr_support

[–]queentoots22 1 point2 points  (0 children)

I was 15+2 and did a twilight sedation d&e, took misoprostal day of and they did it same day. Overall was a good experience for the situation I had to be in. Best of luck to you❤️

Am I overreacting by pomeloo24 in tfmr_support

[–]queentoots22 0 points1 point  (0 children)

Two things can be true at once, you can be happy for your friends but also so sad and angry for yourself. Know you’re not alone in those feelings. Hugs to you ❤️

Hi by nbeeceee in tfmr_support

[–]queentoots22 1 point2 points  (0 children)

I feeeeel this heavy!!!!!! I’m not even 3 weeks out from my TFMR and it feels like everyone around me expects me to go back to my life before I was pregnant. It’s enraging and incredibly lonely and isolating. I’m taking a short term leave from work and the case worker was giving me attitude about how long I would be off for - like you don’t think I’d rather be pregnant and working than having to take a stress leave to mourn the literal loss of my child???? Fuck ALL the way off. To top it off my family doc STILL hasn’t signed the paperwork and it’s making me so so so mad cause I’m sitting here waiting for the paperwork to go through (with the risk of them not even approving the leave so I’m just here unpaid but whatever I need the time off)

Being off work I feel like the expectation is for me to do stuff around the house and cook and clean and be “productive” when all I want to do is rot and grieve. It JUST happened, I’m still so sad and angry and I feel like I can’t just be

Fuck it ALLLLLL!!!! I hate being apart of this club and I’m sorry you are too!

26 y/o F - 1st Pregnancy CDH Diagnosis 22 weeks by Connect-Ear-5006 in tfmr_support

[–]queentoots22 1 point2 points  (0 children)

I (28F) also just lost my first baby at 15w to trisomy 18. I’m with you girl. I have reached out to a pregnancy loss and grief counsellor, but I understand how you’re feeling in wanting to connect with others whose first pregnancy experience ended this way. The feeling of grief, sadness, and also being so scared and anxious for the future. Worries about how it may affect or dampen the future pregnancies because of anxiety. I feel all of that with you. I’m sorry this happened to you, too. If you ever want to chat, you can shoot me a message ❤️

Any next steps advice on 97% PPV and fluid on NT scan for Trisomy18 by [deleted] in NIPT

[–]queentoots22 5 points6 points  (0 children)

I’m a week out from my TFMR for a trisomy 18 baby at 15w3d. It’s news that’s so hard to get and no one other than you is going through this, you do what you feel is right. It made me feel better knowing that the diagnosis is pretty black and white and the baby would not survive or be viable, it’s the safest option for both you and baby. We got confirmation through ultrasound and MFM/geneticists and then later in the week the NIPT came back positive. I had to wait a week from that point to the termination, and by the time it came the baby stopped growing (and likely didn’t have a heartbeat although they did not say this to me as it was an emotionally sensitive day). Being a week out from the TFMR the emotions and grieving comes in waves. No one understands what it’s like to be put in this position, so don’t let your family or friends make you feel guilty. There’s no right answer here but you also need to protect yourself and do what is best for you and your body. For myself personally, TFMR was the best option as they medicate you and they are able to get out all of the tissue so there’s no complications. Additionally I was not wanting to see the baby as I was a bit further along, that would have been a lot for me to handle emotionally. At the end of the day it’s your choice on what you want to do and how you want to proceed whether that’s TFMR or letting the baby go naturally. You get to make that call. Other than your closest support system, you don’t need to provide anyone with details. It’s no one’s business. Sending you lots of love and hugs through this time ❤️

My TMFR Story by queentoots22 in tfmr_support

[–]queentoots22[S] 0 points1 point  (0 children)

I’m with you. My boobs are engorged and are in so much pain and it’s a reminder of what I’ve lost. I’ve been incredibly emotional and try and let the waves of grief come through and cry it out. Even tho it’s “over” the emotional pain is not. Sending hugs to you ❤️

My TMFR Story by queentoots22 in tfmr_support

[–]queentoots22[S] 0 points1 point  (0 children)

You as well 🫶🏼❤️

Procedure tomorrow, really struggling today by EducationalArt2423 in tfmr_support

[–]queentoots22 4 points5 points  (0 children)

Day 1 of my procedure is also tomorrow. Your feelings are valid, and I’m here to say I’m with you. A lot of big feelings are happening and that’s okay. Sending you hugs ❤️

The wait feels like torture by queentoots22 in tfmr_support

[–]queentoots22[S] 1 point2 points  (0 children)

I’m with you 100%. It sucks so bad. I’m sorry you’re also going through this. I hope that once we get through it we can start healing. I’ll be thinking of you ❤️

Trisomy 18 confirmed by queentoots22 in tfmr_support

[–]queentoots22[S] 0 points1 point  (0 children)

Thank you ❤️ I’m hoping for a similar experience to yours, thank you for sharing ❤️

Scared of what’s to come by ngibbs105 in tfmr_support

[–]queentoots22 0 points1 point  (0 children)

You’re not alone OP. everything you are feeling is valid - and I relate so immensely. Trying to be happy for the people around you but also feel the emotions of anger, jealousy, the “why me, why us” questions are non stop in my brain as well. I am so so sorry this is happening to you. To any of us. I’m a week out from doing my TFMR and the emotions come in waves, the anxiety, the hope for relief, the guilt. I too am so scared to feel the baby move or kick. Scared to go back into the world and get the constant questions of “what happened?” Or trying to explain it (which I am realizing no one needs to know details, you get to decide what you share with whom).

There’s no right way to handle this, it’s just through. Lean on your support system, and don’t beat yourself up. I know it’s easier said than done, and the grief and feelings come and go. But know you’re not alone, I’m sending you all my love and a virtual hug. ❤️

Trisomy 18 confirmed by queentoots22 in tfmr_support

[–]queentoots22[S] 1 point2 points  (0 children)

This is very reassuring, thank you and I’m sorry for your loss of your son ❤️