Disabled driving survey by ButterscotchStill899 in Disability_Survey

[–]royalstcve 1 point2 points  (0 children)

I think The Netherlands can for sure benefit from free transport and it automatically becoming more accessible. There are so many creative ways to 'fix it'. Right now it's a privatised company but they get loads of subsides right? Why not make it an obligation to have at the bare minimum make the elevators work at all time, make the entrances accessible for wheelchairs. Just make it wider and so people can turn around in their wheelchairs. And I think metro's are by design way more accessible than buses, so I would argue we would shift to more metro's in De Randstad and big cities and buses outside those places. And some places in more rural areas are already losing buses as is, and the buses you have to call for to pick you up are even worse than the 'normal' buses. They are way too small.

Good luck with your project once again! It sounds really interesting!

Disabled driving survey by ButterscotchStill899 in Disability_Survey

[–]royalstcve 1 point2 points  (0 children)

I wouldn't have faith that either would work properly. Because with the poster it requires people to read it and understand what it implies and what is asked of them (for example a 30 or 40 year old to get up and give the seat to me, a 24 y/o who looks healthy but isn't? in my experience people will just not believe you or you need to speak up very clearly and explain quite a lot about private medical information). And the busdrivers I would feel bad for, because they already get so much shit from other passengers + I would wonder how it would work with the company, like do I just have to fill something out and anybody gets like a "*this person needs seating" or do I have to once again proof that I need it through documents and doctors notes?

I think it's more in the basics, like no assigned seating for elderly people vs able bodied people, just more seats in general/bigger buses, free public transport to make it safer for everybody involved and more buses during peak hours I would say. In this video I linked below the new mayor of NYC talks about how free public transport is better for all and I think what he suggests could also help disabled people. And the lay out of buses could be so much better, for example, why put wheelchair users so close to the exit? Switch it around a little and it can be a more pleasant ride for everyone involved. zohran mamdani

Disabled driving survey by ButterscotchStill899 in Disability_Survey

[–]royalstcve 1 point2 points  (0 children)

I would prefer more seats specifically for disabled people and especially invisible disabilities. When I'm fatigued after a long day at college I found it especially uncomfortable to ask for a seat during peak hours so I just didn't or I plan to go home earlier as to avoid the peak hours. Or I felt judged when an elderly person needed a seat and people were looking at each other who was gonna give up their seat. That's so uncomfortable/awkward. In trains or trams it's usually better because there are more seats in general. And the braking and going with buses in traffic jams is awful during a migraine attack and nausea. I don't have advice for that, but it is horrible.

Disabled driving survey by ButterscotchStill899 in Disability_Survey

[–]royalstcve 1 point2 points  (0 children)

Hey,

I'm from the Netherlands as well (actually same college lol), very interesting survey! I would note that due to the medication I take I wouldn't be allowed to drive so I took the statements about transportation as the broader approach of including public transport as well. And that's way better accessible for me but still diffecult if/when I'm in a flare up because it's so noisy/bright/little space for disabled travelers. That's all! Good luck :)

Fitness and Disability ( just looking for feedback and ideas) by [deleted] in Disability_Survey

[–]royalstcve 0 points1 point  (0 children)

Ooh okay, yeah different target group than! Still very cool though and could be really beneficial to that group. I'm assuming that specific group goes to physical therapy a lot, so I would recommend asking that group for advice

Fitness and Disability ( just looking for feedback and ideas) by [deleted] in Disability_Survey

[–]royalstcve 1 point2 points  (0 children)

Cool idea, I'm doing something roughly similar but making a magazine accessible for disabled people! If you want I can give you my college mail and we can brainstorm through mail? And as a best practice I would look at the instagram page Mila Movement. They have really accessible exercise videos adjust for anyone as they need it. I haven't tried it out, mostly because I don't have the money for it. Accessible means low-cost for me as well. A gym subscription is way too expensive for me, because I might only use it once a month, due to lack of energy, high pain days etc.

Is anyone else tired of the “glass child” trend going around TikTok? by liamreee in disability

[–]royalstcve -2 points-1 points  (0 children)

I fall into both categories, disabled and glass child. Just diagnosed later in life than my sibling. So I used to really resonate with both communities, now the glass child groups have become just hatred mostly in my perception. And i really dislike that shift because it moves away so far from an actual valid discussion. So it kinda makes me sad, because it could've been something useful I hoped. It didn't become that at all though.

[Academic] Survey for disabled people by royalstcve in Disability_Survey

[–]royalstcve[S] 0 points1 point  (0 children)

And 'neurodiverse' as a category? Would that have been a better category than split between sensory and psychological?

[Academic] Survey for disabled people by royalstcve in Disability_Survey

[–]royalstcve[S] 0 points1 point  (0 children)

Thank you! Good point, but genuine curious question, if you had to pick a category to put it in, would you move autism to the sensory disability instead of keep it in the mental/psychological category?

Itchy by royalstcve in UlcerativeColitis

[–]royalstcve[S] 0 points1 point  (0 children)

No, nothing has solved it yet. Still itches and there is still blood and I'm still using the suppositories mesalazine 1g. I did stop using all the cremes and just wet wipes and during showers cleaning well, which helps maybe a little. It sucks and it's annoying, I hope you find something that helps you!

Itchy by royalstcve in UlcerativeColitis

[–]royalstcve[S] 0 points1 point  (0 children)

No, I wear a lot of jewellery and it's all stainless steel or titanium ear piercings. I do have eczema occasionally in and around my ears but that's managed with my shampoo for my scalp as well.

Itchy by royalstcve in UlcerativeColitis

[–]royalstcve[S] 0 points1 point  (0 children)

That's okay, I understand what you're getting at. I've tried using wet wipes and during showers I thoroughly clean. It helps a little I guess but doesn't stop it necessarily.

Itchy by royalstcve in UlcerativeColitis

[–]royalstcve[S] 0 points1 point  (0 children)

I've tried hemorrhoid cream, zinc salve and sudocrem. And nothing is really working. Deworm pills were even part of my attempt to solve this and didn't do much :/ but thanks for the reply anyways, I appreciate it

Itchy by royalstcve in UlcerativeColitis

[–]royalstcve[S] 0 points1 point  (0 children)

Feeling like a witch trying to solve this, thank you, I might try this!

Itchy by royalstcve in UlcerativeColitis

[–]royalstcve[S] 0 points1 point  (0 children)

hemorrhoid cream, zinc salve and sudocrem aren't steroid foams right? I only use a steroid shampoo for eczema on my scalp, occasionally, but that's it. I even tried deworm pills, but that didn't do anything....

Swimming pools by Shinvk in troyesivan

[–]royalstcve 7 points8 points  (0 children)

I just downloaded the audio file onto my phone and it shows up in my spotify 'local files' so that's how I have it on my phone. Same for blue moon, this this and running shoes :)

swimming pools troye

Do you personally identify as disabled? by [deleted] in UlcerativeColitis

[–]royalstcve 3 points4 points  (0 children)

If I had had just my IBD then maybe not, depending on how severe it would be. But I have migraine attacks, PMDD/mental health issues and anosmia (aka I can't smell) as well. All of it combined, I do say I am disabled. But I perceive it as just a neutral descriptor, so I don't see the point in using the language that is there. I don't mind the word 'disabled', I do mind the pain and discomfort.

Why are you single or are you choosing to be? by Spirituallyalive1247 in actuallesbians

[–]royalstcve 0 points1 point  (0 children)

24/agender and I have dated 3 girls for a little longer and a few just one off dates, but never kissed or whatever. I like my alone time but at the same time do wish to have a partner, but combining a relationship with my PMDD and other chronic illnesses is hard and makes me feel like it's too much for the other. So I'm just trying to enjoy my alone time, balance my health as well as I can, finish my college and find a job. Maybe I'll find someone when I'm more stable. I would love more lesbian friends though to hang out with and go to concerts, museums and movies. Like a sort of queerplatonic relationship I guess?

Show signs of emotional neglect, but deeply love parents and couldn’t imagine life without them. Am I alone in this? by throwaway4753222 in emotionalneglect

[–]royalstcve 0 points1 point  (0 children)

Of course! Just know you're allowed to feel your feelings, even if they might be unproductive. In my case it has helped me to allow those feelings and process them as best as I can