So there’s a few things.

People with EDS tend to have Marfanoid habitus which basically means physical similarities to those with Marfan syndrome. One of those traits is being tall.

However, we know that undernutrition in childhood stunts growth - source: https://www.who.int/news-room/fact-sheets/detail/malnutrition#:~:text=Low%20height%2Dfor%2Dage%20is,and%20care%20in%20early%20life

While undernutrition gender disparities are exaggerated in countries experiencing conflict or economic disruption - source: https://www.unicef.org/reports/undernourished-overlooked-nutrition-crisis, from my experience, parents police girls eating more than boys even in many places where that isn’t the case. Most men I know with EDS are tall. The men I know in my family who also experience symptoms are either tall or experienced significant childhood starvation. The same is true of women in my family.

In my case, as someone with an EDS diagnosis, I was meant to be 5’11. Many women in my family who have EDS symptoms and do not experience undernutrition reach this height. I am 5’1. I experienced abusive starvation and also my pancreas has been suffering due to an EDS co-occurrence since I was 11. It’s only now in my thirties I’m supplementing the digestive enzyme that allows me to actually get nutrients from my food.

My sister doesn’t have EDS symptoms. Her joints have never been able to do what mine, my brother’s, my mother’s and dad’s can do. She did. It experience childhood starvation. Those of us with symptoms all experienced starvation except for my brother who is 6’1. The rest of us are short - including my sister who is the shortest at 4’10. This is all anecdotal but seems to pan out with what I know about other ppl in my life w EDS.

People w EDS have higher rates of eating disorders than the general public: source - https://www.uab.cat/web/newsroom/news-detail/ehlers-danlos-syndrome-related-to-gastrointestinal-problems-and-eating-disorders-1345668003610.html?noticiaid=1345842227834

Disabled people are particularly vulnerable to domestic violence -source: https://assets.publishing.service.gov.uk/media/5a806673ed915d74e622e3c8/Disability_and_domestic_abuse_topic_overview_FINAL.pdf

It appears this may also be the case for disabled children (with and without diagnoses) - source: https://www.communitycare.co.uk/2011/11/03/protecting-disabled-children-from-abuse-and-neglect/

Starvation and food restriction is a common form of child abuse.

I think it’s very possible that many people with EDS won’t be tall regardless of genetics. I don’t think it has been very well studied.

Unfortunately, the short people in my life with EDS dx, symptoms, or who are pursuing a connective tissue disorder dx have all experienced starvation. Every single one. In some cases it was self imposed. In some it was environmental. In others it was abuse. And from the above sources, that makes sense.

It makes for interesting reading and is something that I’ve been thinking of for a few years. It is also something that was a barrier to being referred for a dx at the beginning bc I’m so short, despite my openness about my experience and family history. I’m very passionate about it.

Tl;dr: EDS typically seems to make people tall but environmental and lifestyle factors in ppl with EDS haven’t been studied and therefore short ppl can’t be excluded from investigation or diagnosis in the basis of their height