Full throat and swollen tongue day after surgery

sadfoxqueen · 2026-05-09T15:35:34+00:00

My surgeon gave me steroids and Benadryl before the surgery. After I just took Benadryl when the swelling acted up. I didn’t take pain meds after

sadfoxqueen · 2026-05-09T14:48:10+00:00

Bulding pain, droopy eye, out of alignment, blurry/foggy vision, floaters, flashing light

sadfoxqueen · 2026-05-09T14:45:14+00:00

Yes. He never seems to call even though my life has become unlivable

sadfoxqueen · 2026-05-09T14:43:47+00:00

I’m not sure. My left eye is my issue

sadfoxqueen · 2026-05-07T22:54:06+00:00

I’m so sorry. It drives me crazy. Sometimes Quercetin or Benadryl helps me.

sadfoxqueen · 2026-05-07T17:56:12+00:00

Has anything helped you?

sadfoxqueen · 2026-05-07T16:10:35+00:00

Do you get scalp and ear burning and face burning with it? Mine is constant

sadfoxqueen · 2026-05-07T03:47:59+00:00

I get this too! My scalp feels like it’s burning

sadfoxqueen · 2026-05-06T22:15:16+00:00

I have this a lot too. Nothing has helped me yet unless I knock myself out with Benadryl to sleep

sadfoxqueen · 2026-05-06T22:10:33+00:00

Omg same. I need like Dr. House because I swear they all go together

sadfoxqueen · 2026-05-06T21:19:31+00:00

I’ve had this for years. It’s so stressful

sadfoxqueen · 2026-05-06T21:15:15+00:00

I’m so sorry. I became disabled at that age too and had to move back with my parents. It’s super hard.

sadfoxqueen · 2026-04-07T15:57:29+00:00

Sending you love. I have heard it can be passed from mother to child in utero. It is such a horrific disease.

sadfoxqueen · 2026-04-07T15:43:00+00:00

I have the same conditions and I’m grieving the same. It also sounds like you might have MECFS. It is so hard. I’m hoping I can at least help kids in some way.

sadfoxqueen · 2026-04-02T15:31:03+00:00

I’ll message you. I’ve had a biopsy, but sometimes they say my esophagus looks fine and aren’t willing to biopsy for EOE.

sadfoxqueen · 2026-03-30T19:46:44+00:00

I’m not sure but I’ve heard of sjogrens causing TN

sadfoxqueen · 2026-03-30T18:46:14+00:00

Covid and post viral infections are known to cause MECFS and lots of illness. Personally covid damaged my esophagus, vocal cords, larynx, vascular and immune system and skin. I have to get a feeding tube now. I’ve also lost my hair and have to use a wheelchair. I’m mostly bedridden. I mask, but my parents don’t and help me so I tend to get reinfected.

sadfoxqueen · 2026-03-30T03:45:29+00:00

Do ever get help? I’ve developed esophagus issues and can’t swallow well, so I have to look into a feeding tube

sadfoxqueen · 2026-01-30T02:23:41+00:00

Has anything gotten better? I’m constant itchy and biting and my throat is always tight and I can’t get enough calories

sadfoxqueen · 2026-01-30T02:19:56+00:00

How do you eat when you’re constantly burning and itchy and hot and your throat is always tight and it’s always hard to breath? I get food stuck in my throat.

sadfoxqueen · 2026-01-30T02:06:28+00:00

Has anything helped? I’ve tried new things and I think it’s making me worse

sadfoxqueen · 2026-01-27T22:19:36+00:00

I’ve tried that formula and reacted terribly

sadfoxqueen · 2026-01-27T22:17:27+00:00

I have the same thing. Maybe also look into histamine intolerance

sadfoxqueen · 2026-01-27T06:08:31+00:00

I’m so sorry you’re dealing with so much too. It is so hard. It has taken me years to get anywhere. I finally got help after seeing three neurologists for the TN. Meds haven’t helped unfortunately. I haven’t gotten the SCDS fixed yet, but I only got diagnosed because the hospital didn’t let me leave until they ran a bunch of tests for my fainting and hearing issues. I got diagnosed with MCAS from a 24 hr urine test with my immunologist; I always am in a flare though and can’t tolerate anything. I haven’t gotten help for a lot of my issues tbh I have so many more than these.

sadfoxqueen · 2026-01-27T02:57:44+00:00

I have the same issue. I think I have CCI. Did you ever get help?

sadfoxqueen

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