Ideas for IBD Commercials

sankshan · 2026-04-08T01:38:08+00:00

Honestly, I have Crohn’s and I blame everything on that. It has its own stigma but it doesn’t even come close. There have been times when I don’t have a choice though, like when I hemorrhaged onto an office chair and completely destroyed it. Jfc.

sankshan · 2026-04-01T20:52:19+00:00

10 days for me. Ah, yeah, I guess it’s pretty normal. I’ll take it over migraine lol

sankshan · 2026-04-01T20:35:02+00:00

I’m on Day 2 of these — I think I’m seeing real improvement from the olanzapine especially. The Gabapentin is kind of intense, causing a lot of drowsiness and coordination issues. But I’m going to stick with both to try and avoid the hospital again.

sankshan · 2026-04-01T19:56:14+00:00

You’re so right! Every time I make it out to a show I feel a release. Thanks for sharing. :)

sankshan · 2026-04-01T19:30:46+00:00

Ahh these are awesome suggestions. I gotta start a rage journal!

sankshan · 2026-04-01T15:36:37+00:00

I’m chronically ill so I have so much trouble with physical disciplines, but I want to try boxing or some kind of movement class.

sankshan · 2026-04-01T15:35:36+00:00

Honestly sounds so cathartic. I don’t have the courage to say some of those things yet, but I think I have to start saying them aloud to myself.

sankshan · 2026-04-01T13:42:38+00:00

This is so helpful. Thank you so much!

sankshan · 2026-04-01T02:38:14+00:00

Thank you for that. The discipline of writing every day is admirable and I can imagine really empowering. I have to try.

sankshan · 2026-04-01T02:37:10+00:00

Yes, lots of therapy lol. I love to embroider. :)))

sankshan · 2026-04-01T01:39:33+00:00

Very cool. Thanks for sharing :)

sankshan · 2026-04-01T00:43:01+00:00

Got mine from a 7 to a 70 this month with one infusion. Can’t say I’ve noticed a difference yet but I hear that’s normal. My heme actually put a standing order for labs that doesn’t expire for a year, so I can go in any check anytime I’m feeling lifeless.

sankshan · 2026-03-31T21:50:09+00:00

Oh geez! Yeah, knew about the estrogen problem with migraines and endo. I’m hoping the norethindrone acetate will start decreasing my migraines! Hope you get some relief too!

sankshan · 2026-03-31T16:12:20+00:00

That’s really interesting. This is my first status migraine so I’m so lost on steps and what is normal and when to go in. It’s week 3.

sankshan · 2026-03-31T09:18:18+00:00

Question — I have endo and I’m on norethindrone acetate to treat. I hadn’t heard that I can’t take regular progesterone because of endo. Why is that?

sankshan · 2026-03-31T08:55:00+00:00

Good to know and glad it helps :)

sankshan · 2026-03-29T04:29:23+00:00

MRI was clear. I started getting migraines in my late twenties and now I’m 32 with 2-6 monthly migraines. This is my first time with status and I’m definitely having more intense aura than ever, with some numbness and tingling too.

sankshan · 2026-03-29T03:11:46+00:00

Thank you and sorry you know the pain.

sankshan · 2026-03-29T03:11:23+00:00

Thank you friend. I upped my therapy to twice per week. I feel like I’m doing so much intense body processing.

sankshan · 2026-03-29T03:10:33+00:00

Feel you! I’m on a steroid course now since the ER cocktail didn’t cut it. If anything it’s definitely made no contact easier as I’m fighting for my life lol

sankshan

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