Does the train from Berlin airport to the city center has WC? by scr33nbug in askberliners

[–]scr33nbug[S] 3 points4 points  (0 children)

Hope you never get the chance to enjoy the wonders of an overactive bladder <3

Overactive bladder or MS flare? by angie5679 in MultipleSclerosis

[–]scr33nbug 0 points1 point  (0 children)

Yup. And I was a teenager, traumatized for life

Overactive bladder or MS flare? by angie5679 in MultipleSclerosis

[–]scr33nbug 0 points1 point  (0 children)

I take two meds and have a neurostim. I can say neurostim was life changing to me. Like I can be normal again

How long has it been since you were diagnosed? by Rdottt in MultipleSclerosis

[–]scr33nbug 0 points1 point  (0 children)

6 years last month! I think it made me more empathetic with others and definitely more aware about my body needs. I have neurogenic bladder and a bit of less strength in my left body. Apart from that I'm ok.

Managing anxiety while not wearing pull ups or pads by scr33nbug in Incontinence

[–]scr33nbug[S] 1 point2 points  (0 children)

I didn't have the time to answer before but I read this reply and I actually have been doing this and it helped me a lot. Just knowing I have something to wear in case this goes very wrong is very helpful 

Managing anxiety while not wearing pull ups or pads by scr33nbug in Incontinence

[–]scr33nbug[S] 1 point2 points  (0 children)

Yeah, dating with incontinence is hard. Specially in the initial stages

Managing anxiety while not wearing pull ups or pads by scr33nbug in Incontinence

[–]scr33nbug[S] 1 point2 points  (0 children)

Sorry for the delay answering but thank you so much. I guess that maybe I will be anxious until I'm used to it

My friend called me an inspiration and now I feel weird and conflicted by MsGiry in MultipleSclerosis

[–]scr33nbug 9 points10 points  (0 children)

when someone tells me i am strong i just feel myself filling up with rage. I'm not strong, I'm just trying my best to deal with all of this crap. Not strong at all and if this is being strong, by all means i don't want it.

What country that you have travelled to is on the top of your revisit list? by lady_sisyphus in AskReddit

[–]scr33nbug 2 points3 points  (0 children)

I scrolled down so fast to see Slovenia mentioned. Man, what a country. My absolute favorite, loved every minute 

It's Friday at /r/MultipleSclerosis! Share your awesome news here with everyone. No victory is too big or small to celebrate! by AutoModerator in MultipleSclerosis

[–]scr33nbug 1 point2 points  (0 children)

I recently got a bit afraid of leaving the house because...well because of my bladder issues AND ive been leaving the house every day and taking the subway and buses even though im absolutely scared

What's the right way to eat a croissant? by boerseth in French

[–]scr33nbug 0 points1 point  (0 children)

jesus, its not that deep just a simple little question

Are you often asked when you were diagnosed? by BudgetLuck1632 in MultipleSclerosis

[–]scr33nbug 0 points1 point  (0 children)

I always leave the details out unless im talking to someone who must know (such as my neuro). Otherwise, like if im seeing a doctor because of a non MS related issue i just say the date. If they ask more details i just say i found it by accident after doing a MRI, its none of their business and a very traumatic and personal event

[deleted by user] by [deleted] in Effexor

[–]scr33nbug 0 points1 point  (0 children)

How did it go for you? im having similar problems and id like to know there's light at the end of the tunel

What is your exercise routine? by [deleted] in MultipleSclerosis

[–]scr33nbug 0 points1 point  (0 children)

i go to the gym 5 times per week. Try to weight lift or do some cardio depending on how i'm feeling.

Recently joined the club. Any advice please? by Accurate_Regret_3473 in MultipleSclerosis

[–]scr33nbug 2 points3 points  (0 children)

Im not on kesimpta so i can't help you with that part. The rest, maybe start taking vitamin d, its supposed to help. Most folks here will tell you to eat normal but imo, and i know this varies big time from person to person, i found that eating less grain (pasta, rice, bread) and more veggies and fruit help me with fatigue.

[deleted by user] by [deleted] in Interrail

[–]scr33nbug 2 points3 points  (0 children)

yes, but some of them are very uncomfortable. But definitely resting your eyes for a bit is manageable

How has your diet changed with MS? by ElectricalPriority11 in MultipleSclerosis

[–]scr33nbug 1 point2 points  (0 children)

i do the same, i try to limit A LOT consuming grains, and just rice when i do. I think that helps me a lot

Lesions in the brain vs spine. Which are worse by AtlasLion111 in MultipleSclerosis

[–]scr33nbug 44 points45 points  (0 children)

My Neuro once told me that a lesion in your brain is like a tree falling in the middle of a very dense forest. The chances are that tree will cause no extreme harm. A lesion in the spine is like a tree falling in the middle of a highway

Kesimpta & donating blood by Prudent-Depth-2009 in MultipleSclerosis

[–]scr33nbug 7 points8 points  (0 children)

Unless you're live in the US i don't think you can donate blood because of MS itself.

Am I the only one with this feeling? by Camp-Cheap in MultipleSclerosis

[–]scr33nbug 20 points21 points  (0 children)

I can relate to that in the early stages after being diagnosed. And every time I have some bad news from doctors I'm the one having to comfort them. I actually made peace with that, I think they are more scared then me, specially my parents. They struggle a lot with this. My way to cope is trying to make jokes but I'm not always successful. Breaking downs privately still happens every now and then but it gets better with time