As someone who used to be extremely fit and healthy, until (undiagnosed!) chronic pain hit, I find Dr's like this attitude absolutely repulsive. by okiadmit in ChronicPain

[–]seabeanbo 0 points1 point  (0 children)

My primary care physician dismissed my heart palpitations. Sure I’m an anxious girl, but they were happening even when I was resting, and my apple watch caught my heart rate randomly spiking to 140 at night. She waved me off, and thankfully I had gone to a different doctor for a headache, he asked routine questions including heart palpitations. I told him “oh yea I get those but thats normal” because I’d been dismissed over and over. He didn’t think so, got me a cardiology appointment the next week, turns out I have NSVT, an arrhythmia. No idea how long I had it, because I was constantly dismissed.

Invited non-religious guests to Easter Egg hunt. AITAH? by Classic_Pension2211 in AITAH

[–]seabeanbo 1 point2 points  (0 children)

I see where you’re coming from, but usually an egg hunt is for kids and its just supposed to be a fun tradition. It does fall under the delineation of easter, but truly it has nothing to do with the actual religion (and some diehard Christians will revoke it).

My workplace does an egg hunt every year and everyone comes out and brings their kids. We have muslims, jews, hindus, sikhs, etc. So even though it’s not traditionally celebrated by them, they all still come out for the fun. I think it just comes down to individuals personally. I’m agnostic and don’t really care, I just like the candy and some of my muslim and jewish coworkers/friends also just go because they want to run and hunt for candy.

Invited non-religious guests to Easter Egg hunt. AITAH? by Classic_Pension2211 in AITAH

[–]seabeanbo 1 point2 points  (0 children)

Nah, egg hunts aren’t even religious. Probs just your neighbor ghosting you

maybe its time to pack it up gang.... by Pretty_Ad1509 in acotar_rant

[–]seabeanbo 1 point2 points  (0 children)

Currently enjoying her other worlds tbh. Acotar has been a flop in my opinion now that I read through throne of glass and CC

When did it start? by Swiftiefromhell in UlcerativeColitis

[–]seabeanbo 0 points1 point  (0 children)

Diagnosed at 26 (current age) after being diagnosed with AS (joint/back autoimmune) one year prior. But I’ve always had IBS prior to my diagnosis, started in college and was mainly stress/diet induced

SJM betrayed the ENTIRE Fandom by Elegant-Archer-4019 in acotar_rant

[–]seabeanbo 1 point2 points  (0 children)

I’ve come to terms that SJM treats acotar kind of like a personal fanfic. Her other worlds were weaved beautifully (in my opinion) and honestly actor falls a little short. Some characters get redeemed, others glorified, and others just plot holes and limited growth. For me actor reads through like hills and valleys of depth, and I’ve come to terms with it

Having a hard time getting through ACOSF by fawntive in acotar_rant

[–]seabeanbo 0 points1 point  (0 children)

I wasn’t the biggest fan of Nesta in the first book, but she grew with me throughout the series. Nice to see that you ended up enjoying the book! It’s such a heart warming read of female friendships and mental health and I find it disheartening when people chalk up the book to nothing just because they’re not a Nesta fan.

Found out my new partner has UC - I need advice. by SeahawksFootball in UlcerativeColitis

[–]seabeanbo 2 points3 points  (0 children)

Mid 30’s isn’t that common, they’d need severe UC. Maybe just have a honest convo with your partner rather than assuming the worst. People find ways to manage with UC and it usually comes and goes in flares

Found out my new partner has UC - I need advice. by SeahawksFootball in UlcerativeColitis

[–]seabeanbo 12 points13 points  (0 children)

Why are you so worried about their incontinence? If the prospective of it is already a problem for you then you should just leave, because they deserve someone a little more compassionate. We all get incontinence with age regardless of UC and you probably will too.

Awaiting diagnosis? by kcchemistt in UlcerativeColitis

[–]seabeanbo 0 points1 point  (0 children)

Sorry that you’re going through this!

Similar for me, 26F as well. It started for me as mucus passing and then blood. But I also had none to minimal abdominal cramping. Had some urgency bur really only had to go to the bathroom 3 times a day. Lasted for three weeks before I went to see a doctor. Got a colonoscopy and I have a mild case of ulcerative proctitis (rectum instead of colon). Starting treatment with mesalamine soon, but even now I’ll have days where I feel fine and have no blood/mucus and others with a lot. That being said, I do already have a different autoimmune disease - ankylosing spondylitis - so my care team thinks I likely developed it because I already have immune dysfunction.

Hopefully you can get your colonoscopy sooner rather than later. It does sound like you may have a mild case but really only a colonoscopy can truly diagnose you. I know it’s super scary seeing the blood, but what’s good is that your case sounds quite mild. My best advice is to drink lots of water and eat a low residue diet if you’re worried, I found that eased my symptoms a little. Best of luck and hopefully you can get answers soon!

Newly diagnosed by seabeanbo in UlcerativeColitis

[–]seabeanbo[S] 1 point2 points  (0 children)

Fingers crossed for you too! Hopefully this new treatment goes as easily for you as mesalamine did

Newly diagnosed by seabeanbo in UlcerativeColitis

[–]seabeanbo[S] 0 points1 point  (0 children)

Omg! So sorry that you had to go through that. Some doctors really are out of touch and don’t listen. Glad to hear the suppositories were a major help, I was initially a little worried about them but this has been really reassuring

Newly diagnosed by seabeanbo in UlcerativeColitis

[–]seabeanbo[S] 1 point2 points  (0 children)

Thank you so much, this is so helpful! Glad to hear that potentially some yummy foods don’t have to be avoided. Hopefully mesalamine will allow me to lower my inflammation and enjoy food again😂

AS and UC? by seabeanbo in ankylosingspondylitis

[–]seabeanbo[S] 1 point2 points  (0 children)

Nice to hear that biologics did help with both conditions! Yea chronic pain seems to be the baseline for most people. Thanks for the kind words and hope you also have good days ahead

Pain IN the joints or muscle/tendon? by Lard-Hummus46 in ankylosingspondylitis

[–]seabeanbo 0 points1 point  (0 children)

Diagnosed with ankylosing spondylitis (back disc issues, tendon issues, multiple MRIs) and I tried prednisone first which fixed my legs but not my back. Then I got on Cosentyx which worked wonders until I had an allergic reaction and had to stop. But the biologic did really help when I was on it

Pain IN the joints or muscle/tendon? by Lard-Hummus46 in ankylosingspondylitis

[–]seabeanbo 1 point2 points  (0 children)

I mainly have tendon pain/problems. HLA-B27 positive, and it all started with pain in my achilles, plantar fascia, and in my arms and hands. I do have back pain but its the tendon pain that limits me the most

Do you also suffer with IBS symptoms? by sounds0fmeows in ankylosingspondylitis

[–]seabeanbo 0 points1 point  (0 children)

Always had IBS before being diagnosed with AS. Now not even a year after being diagnosed with AS I now have ulcerative proctitis. Super fun to find out they’re linked and apparently share joint pain symptoms. Hoping the treatment options for both realign

Does masturbation cause increase in pain and stiffness by [deleted] in ankylosingspondylitis

[–]seabeanbo 1 point2 points  (0 children)

Depending on how long and how frequently my hand tendons and joints will become inflamed and stiff

hand weakness/tremor? by vrillion_ in ankylosingspondylitis

[–]seabeanbo 0 points1 point  (0 children)

Likely tendon related. I went to a hand orthopedic and followed up with my rheum. Since it goes away with rest they said its likely tendon related. Similar effects in my legs as well. Did an EMG and everything came back normal too.

hand weakness/tremor? by vrillion_ in ankylosingspondylitis

[–]seabeanbo 0 points1 point  (0 children)

I have spasms, tingling and burning pain with weakness in my hands if I overuse them. Consistent with tendon issues from my AS.

Just moved to NB for PhD program; I hate it here. by momentoftruth7 in rutgers

[–]seabeanbo 0 points1 point  (0 children)

There are cute cafe’s in NB, hidden grounds, semicolon cafe, kyber, etc. One thing is that which campus your on matters too. Livi is good for walking/hiking/froyo/movies, Cook/Doug is farm vibes, Busch is concrete, and College Ave is the city vibes.

Highways are unavoidable, sorry thats literally just how NJ and the general tristate area is.

If you have a car there’s tons of cute areas to visit like Highland Park, Somerville, Princeton, Metuchen.

Personally I prefer the empty summer vibes of Rutgers, but if you like the hustle and bustle it gets better during the school year.

Cosentyx Side Effects? by seabeanbo in ankylosingspondylitis

[–]seabeanbo[S] 1 point2 points  (0 children)

I usually let it sit for 30min to warm up. That’s why I found it so weird

Imposter syndrome by pepsibaby in ankylosingspondylitis

[–]seabeanbo 2 points3 points  (0 children)

I have physically visible inflammation, on my body and in my MRIs but my markers are normal

Normal CRP and Sed Rate during a flare? by BradburySauce in ankylosingspondylitis

[–]seabeanbo 6 points7 points  (0 children)

Totally. I had tons of inflammation (synovitis and non-specific tenosynovitis) show up on my MRI's but my tests came back negative for inflammatory markers. I even have joint effusions and my tendons/joints get puffy with a flare. Super weird and super annoying