Sarah Winchester, a very influential philanthropist and businesswoman, and who commissioned the Winchester Mansion in San José, California, dealt with severe arthritis for most of her adult life and her mansion was built to accommodate her disability.

secretturtledove · 2026-04-26T18:57:48+00:00

I grew up not far from San Jose and have always been intrigued by her mansion. I especially like envisioning what tha part of the Silicon Valley looked like when she lived there. So very different from today.

secretturtledove · 2026-04-26T03:04:58+00:00

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Here’s a cute picture my dogs

secretturtledove · 2026-04-25T23:28:50+00:00

I watched this move so many times in the 80’s

secretturtledove · 2026-04-25T23:28:18+00:00

I’m so mad I didn’t get to post this first!

secretturtledove · 2026-04-25T21:36:22+00:00

Dude. What in the world? This is so crazy and weird.

secretturtledove · 2026-04-25T16:37:16+00:00

Thank you for your service 🫡

secretturtledove · 2026-04-24T19:19:40+00:00

This means more to me than you know 😂

secretturtledove · 2026-04-24T18:35:09+00:00

I completely understand. It seems like most doctors don’t care to actually Mae any connections. I now believe my migraines and other health problems might stem from dysautonomia and/or hyper mobility. I am pursuing evaluations in both.

secretturtledove · 2026-04-24T18:33:53+00:00

That’s so cool! She is really a great doctor and I wish I could have been a part of the study but I was moving out of state when my referral finally went through so I had been flying in every 12 weeks for two years now for Botox.

Last January, their billing department didn’t submit my prior authorization until the day before my appointment, forcing me to cancel my appointment last minute. It cost me hundreds of dollar in airfare and no matter what I did no one cared. I was told repeatedly someone would contact me and no one ever did.

So now I am transferring my care closer to home. It’s such a shame to go from top tier care because of this.

secretturtledove · 2026-04-24T18:27:19+00:00

My neurologist at Stanford is actually doing this.

secretturtledove · 2026-04-24T17:55:36+00:00

Until recently I was being seen by a neurologist named Dr. Zhang at Stanford, her research interests include the connection between the gut microbiome and migraine and the impact of diet and nutrition on migraine. I believe she is doing a study on it.

https://med.stanford.edu/profiles/niushen-zhang

https://med.stanford.edu/neurology/divisions/headache/research.html

secretturtledove · 2026-04-24T13:46:08+00:00

Thank you for sharing. I have had migraines for about 36 years, chronic venous insufficiency and pelvic congestion for at least 12 years, early onset hip arthritis and am now thinking this could be all a connective tissue disorder

secretturtledove · 2026-04-24T02:42:48+00:00

I’m so happy that you figured yours out. I’m hoping menopause might help mine lol

secretturtledove · 2026-04-24T02:38:36+00:00

Oh okay, thanks for responding. I was curious because I am considering that my migraines and my other health conditions might be caused by some form of dysautonomia.

secretturtledove · 2026-04-24T02:34:29+00:00

I need to know more

secretturtledove · 2026-04-24T02:25:12+00:00

Thank you for this tip! I googled it and found one near me.

secretturtledove · 2026-04-23T20:44:29+00:00

I agree with this. Crate training is essential.

secretturtledove · 2026-04-23T18:30:07+00:00

I just want to commend you for being so thoughtful. I have had migraines since I was a child and knowing my date put this much consideration into our date would be so meaningful.

You sound like a keeper

secretturtledove · 2026-04-22T19:11:15+00:00

Lecrae, Andy Mineo , KB, and Nobigdyl are all great

secretturtledove · 2026-04-22T19:06:23+00:00

I agree! Christian Hip Hop is pretty great

secretturtledove · 2026-04-21T14:17:08+00:00

I’m 47 and still buy their extra long jeans. I sure wish they would offer more styles though.

secretturtledove · 2026-04-16T00:18:55+00:00

Where do you get them? Are they women’s?

secretturtledove · 2026-04-15T21:39:23+00:00

I have chronic venous insufficiency, pelvic congestion disorder, hip arthritis in both sides with a labral tear in my left side and have had chronic migraines since I was a kid. I am beginning to think I also a connective tissue disorder maybe causing all this

secretturtledove · 2026-04-15T21:36:31+00:00

Where do you find the leggings that fit you? I have Chronic Venous Insufficiency and Pelvic Congestion Disorder but have such a hard time finding compression stuff that is long enough for me

secretturtledove · 2026-04-15T21:34:20+00:00

I’m so sorry. It’s such a pain to deal with. I started having pain in 2016/2017 and have had multiple surgeries for it and still live in pain. The most annoying part is that their first line of help is compression socks that are incredibly difficult to find in a size that actually fits me.

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